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arlingtonmom

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Everything posted by arlingtonmom

  1. arlingtonmom
    I know this doesn't completely answer your question, but I just wanted to add something. My son is currently on a gluten free diet to see if it helps relieve symptoms he is having. Our ped gi also believes he may be lactose intolerant (not as a temporary condition as a result of gluten intolerance but as a primary trait). Anyway, we're going lactose free...
  2. arlingtonmom
    Thank you so much for all your insight. I guess all I can do is start the diet, and go from there. I also would like to look into further testing. Like Tom I'm wondering what's the test for gut permeability? Osteoporsis does run in my family and so does thyroid problems, so I'm also going to push for a bone density. Are there gene tests that determine...
  3. arlingtonmom
    My doctor just called, and said that my biopsy did not indicate any signs of celiac. I believe she's a good doctor. She studied under Dr. Green at Columbia so she's well versed in Celiac, and she took many biopsies (12, I think). She also offered to send the slides to another pathologist that has extensive experience in Celiac, which I'm going to do just...
  4. arlingtonmom
    Doll and Finally Diagnosed, Thanks so much for taking the time to reply. I guess the bottom line is I just have to wait, ugh! However, it does sound that it's not normal to have any scalloping so either way I need to find out what's causing it. And, it's Arlington, VA.
  5. arlingtonmom
    I had my biopsy yesterday, and I must say it's killing me to wait a week for the biopsy results. During the endoscope the doctor saw what she described as mild scalloping. I know this is consistent with celiac, but not definitive. However, in your experience does mild scalloping usually correlate with a positive biopsy and diagnosis of celiac? Thanks...
  6. arlingtonmom
    Emily, thanks for your help. I'll try to choke down as much as possible.
  7. arlingtonmom
    I'm schedule for a scope in two weeks. I have not been gluten free, but there have been days that I've avoided obvious gluten. My blood tests for celiac were negative, but I do have the gene and I'm having strong symptoms, so I'm going to be scoped to try and find a diagnosis. I've been told to load up on gluten for two weeks. Is there a consensus on...
  8. arlingtonmom
    Thanks so much for everyone's thoughtful responses. I'm going to keep the appointment with Georgetown. I looked up the ped gi's bio again, and she did her ped gi fellowship at Columbia, so I'm hoping she had some training in the Celiac Center. I'm scheduled to have a scope the day after my son, so hopefully we'll start getting some answers. I'll keep...
  9. arlingtonmom
    Fiddle Faddle, thanks for your input. Unfortunately, my son's blood tests were negative, but because he's so young and because he is experiencing symptoms which strongly suggest celiac our doctor has suggested he be scoped, and I agree. Also, the Enterolab test showed that he was having a immune reaction to gluten. And, I would still like to pursue a firm...
  10. arlingtonmom
    Thanks so much for everyone's input. It looks like I won't be able to get in to either Columbia University or University of Maryland for several months, and I hate to have him suffer any longer. So, at this point, I think I'm going to keep my appointment with Georgetown and hope all goes well. Then, possibly, send the biopsy slides for a second opinion...
  11. arlingtonmom
    My three year old is scheduled to be scoped at Georgetown University Hospital by Dr. Rekhtman, a ped GI, on August 7th. Just out of curiosity I called Columbia University to see how their consultation services work because I have read on this board and others that people have sent their biopsy slides to Columbia for a second opinion when the results were...
  12. arlingtonmom
    Thanks for everyone's help. I'm going to try to make an appointment with Dr. Mirkin because I'd like to attempt to try to obtain a diagnosis before I try the diet. I really do appreciate everyone's input.
  13. arlingtonmom

    ARCHIVED Doctor Northern Va Or Dc

    arlingtonmom posted a topic in Doctors

    Can someone recommend a doctor in Northern VA or Washington, D.C. that is open to pursuing a diagnosis for Celiac or gluten sensitivity even if my blood tests for Celiac were negative. I'd like to find a good GI doc before trying the gluten free diet because I'd like assistance in tracking progress, such as having someone order a bone density scan before...
  14. arlingtonmom
    No Glu Girl, Thanks for the list. It was really helpful.
  15. arlingtonmom
    Thanks so much for everyone's help. I just went for my own blood tests yesterday, so we'll see what they say. We're going to see a ped GI in a couple weeks, and I'll discuss our options with her. But, I think our plan will be to try the diet for six months, as you've suggested, and see how it goes. What a great resource. Thanks again.
  16. arlingtonmom
    Sadiesmom and Snomnky, Thank you so much for your thoughtful responses. It does make me feel better to now I'm not alone. Good luck with your children.
  17. arlingtonmom
    I'm new to the board, and looking for some advice. My three year old son is being seen by a ped endo because he has fallen off his growth curve. He also has loose stools (not diarrhea) and sometimes complains of stomach aches. As part of his screening the endo ordered the celiac blood panel. He has the DQ2 gene, but his other blood tests for antibodies...
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