EmmaQ

Hey, We're staying on the Canadian side of things. At an indoor water park hotel system, like Great Wolf, but not Great Wolf. I'm going to have to stop in a grocery store as well b/c we are planning on breakfast and lunch in our hotel room. I'm not sure if anything will be disallowed crossing the border.

Thanks. I'll come back when I know where we are staying.

Hmmm, I guess I should have mentioned we don't do a ton of dairy products. And the baby can't have any. I have the Celiacs who also are intolerant to oats. Beside even gluten-free oats should not be given to a Celiac child who is DQ2. The DQ2 gene group has the mark of oat reaction. It isn't the gluten protein cross contamination, it is actually an...

I'm in a food rut. My kids are eating way too many Enviro Kids Cereal bars, it will get old soon and then they won't want them ever again, ever. I have a toddler w/o many teeth who is Celiac. He can't eat apples, carrots, or other hard foods. He has trouble with stringy, like oranges. I'm in a rut about what to feed him. School is out and...

HI We're traveling to Niagara Falls in a few weeks. Any suggestions on safe and friendly places to eat? I so hate being told they won't serve us! It's like the liability policy have arrived and every restaurant out there is rude now. I just want a salad without bread crumbs or onion rings and you can't just take them off. Anyway, the its a PITA to...

I've been ironically doing accounting from home for years. I am no longer due to my #1 client closing their business this past year and I have 4 kids 3 not even in school. I figure I need to clean it up for tax purposes. I have a 4 yr old computer I'm depreciating HY. And I have a cellular phone that broke which has a SL depreciation of 10 yrs. How...

Very few medical doctors are testing IgG reactions. Most of what you are describing are gut issues and IgG would be were to go looking. An Allergist is going to run IgE test, the results come back on a scale of anaphylaxis. Given your dh has allergies to foods, your child very well might come positive on something. You should call and ask specifics...

The IgA deficiency is a tricky thing. Let me try and explain from my experience. Mayo Clinic results were "normal" for IgA and our pedi only requested the TTG test w total serum. Mayo only uses one lab range for IgA screening, my son's TTG was negative. I went to a Pedi GI and he retested with Prometheus Labs. IgA total serum was not normal, but...

Belinda, Those photos are some of the most strikingly Celiac I've ever seen. Oh, poor baby! FWIW - I went through my photos and just could not find a really good one. I will describe -- underweight, shorter than sibling and peers, ribs petruding, no real budda belly, sunken eyes, once we shaved his head at age 3 it was very disturbing, it made it...

The Lundberg Farms Hot Rice Cereal is a bit textury for babies. I tried it on my LO. He never has gotten used to the texture, maybe now that he is 1, I'll try again. Dr. Fasano's Pediatric Fellow (can't remember her name) told me Beech Nut was safe. I used Beech Nut. I called Gerber and the woman I was tranfered to on allergens told me it was manufactured...

La Leche League's book The Womanly Art of Breastfeeding talks about food introductions and the hows. Remember any doc probably has only had 1 hour of nutrition in all of his/her years in med school - ignor them. Now since you are Celiac, there is a 50/50 shot your kid is too (unless possibly the dad also has the gene at which point the odds go up). A...

Definitely stay glutened up a lot. Children heal so quickly that any slack could result in less villi atrophy and then a negative biopsy. Have you considered driving to a different Pedi GI that can get you in more quickly? We drove to Baltimore to Dr. Fasano. I would not say he is the best though, the number of biopsy samples taken was too little, they...

I could have written that !!!! I know that look of disappointment, with the look of I'm not going to cry behind it. It breaks my heart. I try not to have something glutenous for a treat for the other kids unless I have an equal for those in the house who are gluten-free. I generally have a few snacks and treats in my bag at all times, I have forgotten...

The scoping is not the difficult part, this is very true. It is obtaining the biopsies and preparing the slides correctly and then having knowlegdable pathologist looking at them and a Celiac Specialist doctor reviewing them himself. My thoughts are if a Celiac Research center is nearby, within driving distance, then go there. Around here it's the...

Have you ever heard of the Carbohydrate Specific Diet? I would start there. The gut needs to be healed to be well. The Maker's Diet is an interesting read, not sure if I buy it all, but it is good if you have the disipline to give up everything and try dirt to feel well. I think it worked for him, may or may not work for someone else.