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sh00148

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Everything posted by sh00148

  1. sh00148
    Thank you. I’ve also just looked on the NICE website and it recommends a much lower dose for her age. She’s currently take 7.5 ml in total a day and the recommendation is 4ml and if not tolerated she should try alternate days. It may explain why she’s has such a loose bowel. I’m not concerned about the black poo, but more the frequency and consistency. It’s n...
  2. sh00148
    Sodium feredetate 27.5mg - don’t know if it’s buffered… I can’t recall her b12 levels. Any suggestions as to what I can do?
  3. sh00148
    Hi there, My daughter was diagnosed less than a year ago and we were prescribed iron supplements to treat her deficiency. The problem is it’s making her poo very frequently and dark black. She’s still in nappies and goes to preschool. Does their bowel get used to the supplements or will this continue? Thanks!
  4. sh00148
    Morning All, Just an update, I got an urgent appointment through my contact with PALS. The doctor confirmed her levels were the highest possible so she likely had higher levels of inflammation. Since the appointment, they ordered a second set of bloods, but as many of you confirmed he felt there was no doubt she was coeliac so asked us to start...
  5. sh00148
    Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now. Starting to see improvements in her tummy, slowly but surely!
  6. sh00148
    Hi there, I have a few questions about my daughter who is 2 and has been gluten-free for two weeks following her diagnosis please! She was originally diagnosed due to having faecal impaction and chronic constipation. Since starting the gluten-free diet, we are still on daily movicol but she is pooping a lot more than before. Could this finally be...
  7. sh00148
    Thanks. So something has come up on his blood tests and I have an appointment to discuss the findings on Monday. My son has been soya free and dairy free for a while as we did York food testing to check for allergies intolerances.
  8. sh00148
    Just had my daughter diagnosed and am currently awaiting blood test results for my son. As well as many bowel issues, mostly loose stools with mucus and lots of gassy moments sometimes leading to leaning stool, he has recently soiled himself in his sleep twice. He has been toilet trained for a long time, but is not waking up with the poo. It’s n...
  9. sh00148
    Just to update you all, my daughter had her appointment and I was thoroughly impressed and satisfied. Her coeliac results were the highest possible so she only needs a further blood test, which they did there and then to confirm there’s been no lab mix up. The doctor was convinced that the constipation was a result of the coeliac and felt that she m...
  10. sh00148
    Thanks. My email to PALs worked last night and I have got her an appointment for tomorrow. I’m thrilled. Don’t think it’s with gastro, back with paeds, but like you say, might be enough for them to see that her results were so high so no further testing required. I’m hoping I can go gluten-free shopping tomorrow to celebrate. Would you rec...
  11. sh00148
    Thank you. Yes I’d looked into both of these causes. My only thoughts on a triggering event were when my daughter was born and she had breathing difficulties so was in NICU. It’s all quite fascinating. My husband shows signs of celiac. Low immune system, b12 deficiency, peeling skin and more recently severe and intermittent allergic rhinitis. ...
  12. sh00148
    Thank you. This was my thinking too. My son is actually undergoing celiac testing now too as he has been experiencing digestive issues most of his life at 5 years old. Not constipation, more loose bowels, flatulence etc. In a very strange way, I’m hoping that his will come back positive too so that we get some answers and can actually start to help h...
  13. sh00148
    This, I do not know. She was diagnosed after almost daily vomiting in the evening in June/July. Her X-ray showed she was back up all the way up her digestive tract. Even then, she was pooing daily. Possibly a delay, yes. I don’t know. It’s all a mystery, but the celiac disease must be causing this.
  14. sh00148
    Thank you. I’ve emailed PALs again tonight requesting relatively urgent referral. I can’t stand the suffering for her anymore. I’m going to try and do the movicol in the morning from now on like you suggest as it does seem to bother her in the evening.
  15. sh00148
    So our local testing says anything under 5 was normal. 5-10 required further blood tests and 10+ meant celiac is very likely and to refer to gastro. My daughter’s was 120. The paediatrician said it was some of the highest results she’d ever seen. The more I read on here the more I wonder whether we’ve been dealing with the celiac the whole time ...
  16. sh00148
    Thank you again. We only upped the movicol due to the vomiting starting again. It’s been 3 times in the last two weeks. No other symptoms. I’m just so fed up of the waiting and I just want her to get better.
  17. sh00148
    Sorry to clarify, my daughter is two.
  18. sh00148
    Thank you so much for replying. Tonight, we only did one which is her usual maintenance dose and then immediately after she vomited. My gut tells me it’s not the constipation. I have been waiting 3 weeks for a referral since her initial hospital appointment. I contacted PALs yesterday and the paediatrics department called but seemed clueless about h...
  19. sh00148
    In our experience, yes. My daughter has recently been diagnosed and these are her main symptoms as well as a bloated tummy. Out of interest what’s the vomiting like? Is it intermittent? Just one episode? Day or night?
  20. sh00148
    Hi there, my daughter has been tested for celiac and in her initial blood tests she came up as a clear positive of 120+. We are still awaiting an appointment with the gastro team so are currently following a normal diet. Her diagnosis came about as she was intermittently vomiting and it turned out that she had severe fecal impaction all the way...
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