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dublin555

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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by dublin555

  1. If you're still eating gluten, I'd ask your doctor for a proper blood panel, specifically tissue transglutaminase IgA, total IgA, and maybe deamidated gliadin peptide tests. Home tests aren't always reliable. Since you mentioned fatigue and weight loss, it's worth checking for nutrient deficiencies too (iron, B12, vitamin D). Even if it's not Celiac...
  2. Hey Julie! I was in a similar situation before my biopsy and my gastro said Tylenol was fine. Just avoid ibuprofen or anything anti-inflammatory until you're cleared. Hope your surgery goes smoothly!
  3. Karen, that sounds really tough. You must find both RA management and your new gut problems extremely irritating to handle at once. Together with your pain relief you still experience ongoing bloating complications that drag on without a resolution. Of course visiting a doctor to obtain a proper celiac diagnostic evaluation becomes necessary when no formal...
  4. Yeah, it’s tricky. I’ve seen a lot of mixed opinions too. Some folks can tolerate certified gluten-free oats without a problem, but others with celiac still react. Honestly, it really depends on your sensitivity. Your doctor would be the best person to ask about your specific situation.
  5. I’ve been through something similar recently, and I know how frustrating it can be when nothing seems to work. Based on what you’ve described, it might be worth considering dermatitis herpetiformis, especially with the family history of celiac disease. Testing could give you some answers, and while online kits aren’t as reliable as a GP, they’re a good st...
  6. The positive DQ2 result is important since it suggests a genetic predisposition to celiac, but the bloodwork not showing clear signs is confusing. The inflammation in her stomach could still be related, and it’s worth pushing for more tests, like a biopsy or a deeper look at other possible causes. It’s a tough spot, but you’re on the right track trying to ge...
  7. I totally agree, it’s so much more than just the physical struggle that occurs, there is the emotional struggle that goes along with it. It’s almost like you’re always navigating people who are uncomfortable with your needs and that pressure really wears you down. The fact is, the one that really did care will understand. This has nothing to do with you b...
  8. Typical of how celiac can slip through the cracks. If the biopsies keep coming back negative, I’d start questioning whether the tests are being done right or if there’s something else going on, like non-celiac gluten sensitivity or another autoimmune issue. It’s maddening how hard it can be to get straight answers.
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