gaylamac

Hang in there! I support what others have said, you are likely still in the healing process, it can take months. I had the same experience, the first few weeks was a mix of better at times and "worse than ever" other times. The testing is far from precise in my experience. I was misdiagnosed for for years, was negative for blood test and biospy four...

Thanks for this. I have been struggling with how to start testing for my 3 sons. They are 21, 20, and 11. Two definitely have symptoms, have never been tested. Any advice on this would be appreciated. I was diagnosed with celiac last month, at age 44. I had some problems with the testing myself, tested negative back in 2004 for both blood and biopsy...

Celiac is a definite possibility. Don't stop with the blood test, you can push for a skin biopsy (test of you are DH Celiac) or other Celiac (biopsy of intestines). I am not a Dr. but hearing my experience may help. A negative celiac blood test isn't a complete picture, and in my case it was totally misleading. I am 44 and have had stomach problems...