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cookie22

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Latest Celiac Disease News & Research:

Everything posted by cookie22

  1. cookie22
    you don't really develop crohns disease. it's usually already there. unless i'm completley mistaken.
  2. cookie22
    oh, then you know something, i'm an idiot and wasn't thinking. i suppose in my own way diet has made a difference/is important, because i would not in a kabillion years ever try to eat something like cabbage lol. When my arthritis isn't flaring, i am very active and, i am on a million meds between my arthritis and crohns. So, it is possible to be on medicine...
  3. cookie22
    i suggest keeping gluteny snacks for the rest of the family (it's not realistic to make them all gluten-free, it's really not, your famiy cares about you, but they are not sick, you are and it won't hurt you if they eat a kitkat), and cook all meals gluten-free.
  4. cookie22
    art parties were always fun, or bead parties where everyone can make jewlrey, make your own cupcakes (ice, toppings) is always fu like she suggested), or decorating sugar cookies too.
  5. cookie22
    if the doctor has interpreted the results and seen them, you should be able to get them without a holdup. i like the planting yourself in the office idea lol even though it may be impractical
  6. cookie22
    someone will jump in, but they are working on two pills right now if i'm not mistaken, one like you say and one that will be for accidental glutenings to help? Anyone hear anything similar, i swear i read it on the site of the drug company. But, no, there is nothing out now, trust me, we wouldn't be here if there was.
  7. cookie22
    Hi everyone, I thought I'd start this topic to see who else is out there in the same boat as me, celiac and crohn's disease, and if anyone wants to talk about it/vent/find support!?
  8. cookie22
    I guess the two are a little different because mine can't be controlled by diet to any extent, but, when i was first diagnosed (chrons) before they figured out the right combo of meds for me, it seems to be the go to "start" drug. It made my liver go bananas, and they tried other ones, but it usually works for everyone to some extent. Let us know how the...
  9. cookie22
    ditto on the altoids being not safe, but other than that i haven' found one yet, if anyone else has, please let us know!!
  10. cookie22
    i agree with you but it appears once again the loudest voice wins.
  11. cookie22
    that's horrible about the little girl. i heard about something like that happening years ago, i thought every pool had to make modifications but apparently not. i will pray for her. but, really, next time you're having a pity party, invite friends and turn it into a real one bc no party is fun alone =D. we should keep a thread going or start a new one about...
  12. cookie22
    Oh hang in there both of you=-D Have either of you just been diagnosed? Things get a lot easier although, around here it gets a bit frustrating when you have people who just have celiac which can actually be stopped going on like they have the plauge and you have something on top of it that is totally incurable. I'm sure the people with lyme feel the same...
  13. cookie22
    i really beg you guys to get a book on celiac before you keep posting this stuff. it's really not correct. now you'll probably jump on me like you did those other two posters. you sure don't like people to be on any other side but the lets all act like celiac does things it doesn't and act like celiac is the worst thing in the world. it's not folks. i'll...
  14. cookie22
    really, celiac is not that complicated and you don't need to go to a rocket scientist to get a scope. people like to act like celiac is so darn dramatic and horrible because its apparently exciting having a disease. actually, it's one of the best things to be diagnosed with, because we can fix it/stop it by just not eating gluten. I really am not sure why...
  15. cookie22
    I'd get him seen as soon as possible. If it is a Ped. GI, he is trained how to scope esp on little kids, that sounds sort of like a fib from columbia to get you to go there instead. A scope is a fairly easy procedure, really, if your choice is now or in months, i'd do it now. and, it's not like you're going to uncle joes endoscopys in the back of a van, you...
  16. cookie22
    no, really, he has the big thing down. the ONLY treament for celiac is a gluten free diet. i reccomend Dr peter green's hidden epedemic book. it has a blue and green and white cover, it's really the best.
  17. cookie22
    no, it doesn't work that way. like the guy beneath me said, it's two different parts of the body, and two completely different reactions in the body. celiac has villi flattening, crohns has ulcers. it's like confusing a stuffy nose with a sprained ankle. however, and this is a big however, you can have both. i do.
  18. cookie22
    i hate to tell you she will always feel "different" and left out. i'm an adult and i do. as she gets older she will learn that you can still be socal without food, but itis ver hard. try to always have extra snacks for her in your purse. you have to give her a little bit of special treatment that way if her other siblings can eat gluten.
  19. cookie22
    If they have no idea what gluten is or what celiac is, I lie, keep things vauge, and give them the impression that i will go into anaphylactic shock or something very big and exciting will happen if they screw things up, and send things back if it even looks funny. 9 times out of 10 i don't have a problem. I always speak to the manager, not the server. The...
  20. cookie22
    really, before you blame it on celiac, i would be tested for everything else. Have you been? Even doctors like to blame everything on the first suspect. I read in a book that doctors are taught when they hear hoofbeats not to look for zebras, meaning, assume it's the first/easy thing that comes to mind. It is not a very common side effect of just plain celiac...
  21. cookie22
    have you been tested for lupus?
  22. cookie22
    i've always been told exactly what you say, i'm open to new opinions though, only if they're based in fact not just confusion. otherwise if no one can really produce any to the contrary that you just said i guess i'll go on thinking i'm right for now.
  23. cookie22
    in order to start the immune response it must be ingested for plain celiac disease, i respectuflly say you are incorrect at this point. it is a reaction in the digestive tract. i invite you to prove me wrong with a book suggestion, but that is what i have been told by celiac experts, and that is what i've read everywhere. It is fine to personally decide to...
  24. cookie22
    as you can see from the other posts there is sort of a spectrum of celiac symptoms. And, the denial thing is pretty common, it's a big shock!
  25. cookie22
    it goes two ways, the people who go out and replace everything, donuts, cookies, bread, bagels, pancake mix, often gain a bunch of weight. The people who simply avoid it often lose.
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