Elaine40

Thanks, I guess we just have to wait it out.

Did your doctor know that day? My daughter's doctor said he didn't see any signs of celiac, but it could still show up on the biopsy. Her blood was negative. We have a strong family history of gluten intolerance with positive dietary response. She has an unexplained iron deficiency anemia, low vitamin D level and some hidden blood in her stool. It...

Thanks so much. That was really helpful. Hopefully we'll get the results of the second testing today.

My daughter's IGA showed <3 (with a negative being <11 and 11 to 17 being equivocal and >17 positive). Her IGG was 7 with negative being <11. The TTG antibody, IGG was <3 The TTG antibody, IGA was also <3, so negative for both. She has actually been retested and we are waiting the results because for some reason the hematologist...

My daughter has been struggling with anemia. Her hemoglobin came back up a bit today after a month on iron, but they found she has blood in her stools. They sent the celiac panel today and we should have results on Monday. I'm just nervous that this could be something worse at this point.

Poor guy. I totally agree with Susie here. It doesn't have to be gluten for me. I am off dairy and don't eat the yellows of the eggs, peppers are also a problem. Sugar and caffeine are big triggers, as well as some chemicals and dyes in food. I eat a very basic diet and that is how I feel best.

My daughter has anemia and they are suspicious of celiac because of malabsorption issues and my history. THe hematologist told her not to change her diet, but I'm wondering if I should do a two day wheat binge with her or if we are too late at this point. She has been eating what she normally eats (which includes plenty of breads and wheat products) and...

Hi Susie, One of my main neurologic problems was weird heart palpitations and increased heart rate due to actually a too low blood pressure most of the time but sometimes it is on the high side especially when I'm tachycardic. They say it is neurologic-based because BP is controlled from the back of the brain. I always have an increase in weird heart...

Thanks so much. The more and more I think about it, I think that I just lived with stomach aches for so long that it just didn't phase me as being abnormal. I had diarrhea probably several times a week but for the most part it wasn't unmanageable, but my stomach did burn a lot. I almost forgot about it now that I haven't had gluten in so long. My daughter...

(( HUGS )) So sorry you are having to deal with insensitive people. Have you tried Pamela's brownie mix? I try to have some kind of sweet treat for when everyone else is having their dessert.

I've always had stomach issues but it wasn't always an issue for me, sometimes just a lot worse than others and other times my stomach was doing pretty well. However, I have been afflicted with a bunch of neuro stuff. Now my DD who doesn't really have any stomach problems is in the process of being tested for celiac based on a resistance to absorbing...

Thanks so much for all the helpful info. The first set of iron tablets were hard on her stomach - she was not constipated but she woke up cramping in the middle of the night. She has switched her to something with more of a coating on it so hopefully they will be better. The thing with my daughter is that she does not have a lot of stomach issues in relation...

Hi Alex, I have been very anxious since my unofficial diagnosis and going gluten free. I went through an initial phase of feeling very depressed about the major dietary changes, the more shopping, more cooking, more preparation and much less eating out thing. I also had a lot of anxiety about being glutened because I had a stomach bug this winter...

Well, the reason we took her to the doctor in the first place was because she was very tired and always really cold. She has not complained of shortness of breath. How were you treated for your anemia? Are you feeling better now?

My 17 year old daughter has iron deficiency anemia. Her hemoglobin has been slowly going down, from 9.9 to 9.3 then today to 8.5. She has been on iron pills for the past few weeks and it still went down. The doctor is suspicious of celiac given the family history of gluten intolerance (I have not been diagnosed but have been gluten free for about six months...