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lizzie42

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  1. lizzie42 started following Help figuring out stomach pain , Trip to Anaheim/Disney , Low iron and vitamin d and 3 others
  2. lizzie42
    Any and all tips about safe places for my kids with celiac to eat! In the park and also in town.
  3. lizzie42
    Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer. Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks...
  4. lizzie42
    Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
  5. lizzie42
    Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
  6. lizzie42
    My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
  7. lizzie42
    It says normal is less than 5.
  8. lizzie42
    My daughter has been gluten-free about 4 months. Prior, her tTG was over 100 (test maxed at 100). Her liver, iron, vit d are all normal again and she has grown 2 inches and gained 4.5 pounds in just 4 months! It's amazing. But her tTG is still at 9. Is that normal or should it be zero? Is she still getting gluten? We are SO strict. We don't eat out. She...
  9. lizzie42
    I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any...
  10. lizzie42
    Do you think a children's multivitamin might help? I just ordered the probiotic and also multi from hiya. I'm usually not into the multivitamin as my kids eat really healthy but maybe for the ones with celiac?
  11. icon knitty kitty reacted to a post in a topic: Help figuring out stomach pain
  12. lizzie42
    Thanks! She was taking iron and vitamin d. Iron has improved so I took her off that (that was not the source of the pain). Vitamin d was low also pre diagnosis but we didn't check b. She has blood work due at the end of the month so I can add vitamin b. She is on a meat kick right now so eating beef regularly.
  13. icon knitty kitty reacted to a post in a topic: Help figuring out stomach pain
  14. lizzie42
    Her poop is totally normal since going gluten free. Once or twice per day. She eats a lot of fruits and veggies. No juice. She said the squeezing is in the spot where her food goes in her belly. Definitely not dehydrated. She drinks tons of water.
  15. lizzie42
    Hi, My 3 year old was diagnosed a couple months ago. We went gluten free, very strict, and everything improved. Energy, no more meltdowns, bad rash is mostly gone. She's doing great. Except she complains every day of stomach pain. She describes it as squeezing. Any ideas from anyone? We cut out oats and it didn't make any difference. She doesn...
  16. icon Scott Adams reacted to a post in a topic: Second child with Celiac
  17. lizzie42
    We decided along with the pediatrician based on his results and his sister having it that he does have it and proceeded with the gluten free diet. His behavior seems a little different so we will see how things change over the next few weeks! We think we just caught it really early. He can always do a gluten challenge when he's older if he wants...
  18. lizzie42
    But yes seeing all those negatives does give me a bit of doubt! I feel confident but those results give me a seed of doubt. Especially since it's a lifelong diet for him!
  19. lizzie42
    When I originally posted I hadn't talked to the pediatrician yet and didn't realize about the budosinide. Now I feel pretty confident. I was concerned that all of the tests didn't come back positive - that seemed kind of ambiguous to me. I didn't realize that was common. Do a lot of people on here have a positive tTG but negative other tests? I thought the...
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