LizzieF

Thank you both for your insights. I think I’ll have to repeat testing in a few months and have a longer period of gluten consumption. 

@trents @knitty kitty would NCGS show some celiac in biopsy? 
 

@trents blood tests were IgA 47-310 normal range - mine was 120; TTG <15.0 antibody not detected, mine was <1.0.

Hi everyone - I have been gluten free for 2+ years after doing some genetic testing that showed inability to process gluten and carrying a gene for celiac (I’ve had GI related issues for 20+ years that were diagnosed as IBS/lactose intolerance). After persistent low iron, new GI suggested we look at celiac. Endoscopy results noted the below. I have to add that I added gluten for about 12 days prior to my test (and was miserable in the process).

“The differential diagnosis includes celiac disease, but the degree of intraepithelial lymphocytes does not reach the threshold for Marsh 1 lesion.” Chrons/Colitis negative.

GI suggested I continue eating gluten (after a 3 day pause awaiting results) to do bloodwork. I ate gluten for another 1.5 weeks (about 4 weeks in total) and blood work came back normal. My symptoms however have continued to get worse with changes in bowl habits, sharp pains in the abdomen and nausea. 

I feel like I did not have gluten for enough time prior to my endoscopy for accurate results. What do you do in such a case? (Note: still pending follow up from GI)