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Taylor King

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Taylor King

  1. Taylor King
    Thank you for your responses! I still haven't tried gluten. Too risky right now with the pandemic. I do still want to pursue a second opinion, b/c there are too many grey areas with my Dx.
  2. Taylor King
    Oh! The thought didn't even cross my mind that you were doubting my MCAS Dx! I was explaining more about my testing since that is a potential issue for you. There are specialists who will treat for MCAS even if the patient's test results come back negative, due to the symptoms. It's based on the many false negatives that occur. I was really surprised mine...
  3. Taylor King
    I will add, I definitely suggest exploring a diagnosis for MCAS with a doctor who really understands it. Even if you don't pursue treatment. Also, there are great webinars online to learn more about it. It impacts more than we realize and they are learning so much. It's only been known about for about 10 years. As far as not tolerating NSAIDs, it may...
  4. Taylor King
    I had hives, mostly from stress. I also am really sensitive to smells. I was diagnosed via bloodwork and 24 hour urine collection. What's weird, is I felt totally fine during the test. I did not feel like I was reacting to something or having a flare. Later, I had a genetic test by the Gene by Gene to see if I have extra tryptase genes. I have 1 extra...
  5. Taylor King
    Oh I'm sorry about your thyroid. My doctors have wanted to remove mine for years, but I have refused. I also want to add that in the entire time I've been gluten free, I've never felt I was glutened. I can't imagine that I have been 100% perfect with CC such a possibility. Again, it leads to doubt that I actually have Celiac Disease.
  6. Taylor King
    Oh! I should add that going gluten free has had no impact on my thyroid disease. Same dose of medication I've been on for years (I still have my thyroid).
  7. Taylor King
    Good point about autoimmune disease being linked. I have RA and Graves. Wow. Sorry to hear about your health issues. Ok. So right before I had an endoscopy I was diagnosed and started treatment for MCAS by an immunologist. Over a year later, my GI doctor admitted that he actually believes my symptoms that led me to him were actually caused by MCAS (I...
  8. Taylor King
    I was diagnosed with celiac disease and have been gluten-free for about 19 months. My story is complicated and, as a result, I have doubts about my diagnosis. I asked to do a gluten challenge. My doctor said that if I do a gluten challenge I run the risk of staying sick even if I go back to gluten free. I am looking for second opinion about the possible...
  9. Taylor King
    Hi Everyone, Unfortunately, I was having some computer problems and was unable to paste a link to the article. I went to www.mayoclinic.com and searched under 'celiac disease'. The 3rd article that came up was a brief one addressing the issue about skin care products and such w/ gluten and whether or not to avoid them. The answer was no, we do not...
  10. Taylor King
    35 years!!!!! Carla, that sounds like a nightmare. How did you cope? Did you find much relief with treatment? What was the treatment? I've heard that there is only a small window of opportunity to really get the lyme disease for a good recovery. Is this true? If so, do you know how long this is? I've been sick since May '06. I'm worried it is too...
  11. Taylor King
    thank you, loraleena. Taylor
  12. Taylor King
    Hi Carla, I had no idea Plaquenil was also used for Lyme disease. Would that affect my test results? I take 400 mg a day, and my dr just increased it to 600mg a day yesterday in lieu of methotrexate. If I am on Plaquenil for 9 months, should I be in so much pain still if it is lyme disease, or is there a lot more involved in the treatment? I felt...
  13. Taylor King
    Oh Ann, I'm so sorry to hear about what you have been thru. Do you regret not going on the drugs right away? Have you had any side effects from the methotrexate? What tests were run to determine you had RA? Also, do you have to be on metho the rest of your life, or can you go off the drug for any period of time? I guess the only thing going for...
  14. Taylor King
    Hey Carla, I have posted a question on Lymenet, so we'll see what they say. I'm wondering if the Plaquenil will interfere with testing for Lyme. Also that Cyclic citrullinated peptide antibodies test is supposed to be a predictor. Like maybe even years in advance of the getting RA (I think). It's so odd that I would have horrible joint pain and test...
  15. Taylor King
    Thank you everyone for your comments. I forgot to mention that I have been on Plaquenil (one of those drugs) since Oct before the tests became positive. Which really concerns me that I would have joint damage so soon even on one of those drugs. That is the only reason the doctor has agreed to hold off on the methotrexate for 2 1/2 more months. But maybe...
  16. Taylor King
    Hi Carla, My doctor said I was 'atypical celiac'. To tell you the truth, I've never been quite clear on what that means. I was tested thru Enterolab for casein, gluten, and soy and came up intolerant to all three. Plus genetically, I have the celiac gene. However, we did not do any further testing w/ bloodwork or biopsy. The reason I was tested...
  17. Taylor King
    Hi Evereyone, I was diagosed Gluten Intolerant on April 17th, 2007 and have been on a strict Gluten free diet since. My thryoid antibodies have been cut in half, but my RA test went from a weak positive to strong positive during the same time period. The rheumatologist wanted to put me on methotrexate (sp?), but I managed to talk him into 2 1/2 more...
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