MMeade

Thank you so much @knitty kitty, I really appreciate all the feedback. I have had 2 biopsies of my small intestine that are negative for celiac disease. I have not had the genetic testing though, so that is something I will look into, since the biopsies were done without a prior gluten challenge. I tried one once before an allergy test and was sick for days. I do know that I don’t easily methylate my b vitamins but have to be careful taking methylated versions as they give me too much energy and I can’t sit still or sleep. 
 

I also prefer magnesium glycinate but I only take it in the mornings because I have to take it with food to avoid stomach upset. I’ve often wondered if I have leaky gut syndrome and my symptoms indicate yes. I appreciate hearing what works well for you. I think I’ll focus on benfotiamine and see if I can tolerate it and/or it makes a difference. I really need to find a good nutritionist or naturopath. I’ll keep looking. In the meantime, thank you for your support!

Thank you so much Scott- hearing this actually brought tears to my eyes! It is so hard to explain to people/in-laws who question me all the time- I’ve considered just telling them I have celiac disease to stop the questions. Knowing I’m not alone helps tremendously. Thank you 🙏 

Hello, I am new to your forum. I was diagnosed with multiple food allergies including gluten, 20 years ago. I do not have celiac disease. I have been gluten free for over 15 years. My symptoms seem to be very different than others and my doctors have always been skeptical about my condition. When I would accidentally eat gluten, the inflammation would cause my GI system to stop- i.e severe constipation. This eventuality led to diverticulitis which, due to numerous factors, led to abscesses and removal of my sigmoid colon 3 years ago. 
Biopsies were done and confirmed that I do not have celiac disease. I do have other autoimmune diseases- Hashimotos hypothyroiditis. 

I remain gluten free for fear of damaging the remaining colon I have left. My question to this group is- am I alone in this odd scenario? Does anyone else have this condition? When I lived in Seattle, many naturopaths understood my symptoms and condition but after moving to Kentucky, I can find no one that seems to understand or even believe my condition exists. I sometimes feel like maybe I could eat gluten again because it is so hard to avoid it in this part of the country - choices are much more limited- but again, I am fearful of injuring my remaining, colon. Any insight from others who may have experienced similar symptoms is greatly appreciated since I am feeling vey alone in my crusade to stay healthy. 
 

As an aside, while the sigmoid colon removal left me diverticulitis/diverticulosis free, it also left me with less muscle control, so I now take magnesium supplements (oxygenated magnesium oxides) to  maintain regular bowel function and avoid constipation.

Thank you- I appreciate the kindness and support this group brings to people.