Colleen H

Yes thyroid was tested.. negative 

Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok 

Thank you for the detailed response..☺️

Hi all !!

Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? 

Did it work ?? 

Thank you !! 

22 hours ago, cristiana said:

@Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies?

Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed.

In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!)

My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals. 

But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate).

Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.  

When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed.

If the stomach pain is getting worse, though, it would be wise to see the doctor again.

I hope some of this helps.

Cristiana

 

 

Thank you.. Christina

My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.  

My heart is pounding and it won't stop.  Not sure what to do.  

I don't have much support other than this forum. 

Colleen 

Do you or anyone know alot about ibuprofen 

I wasn't sure if I was eating too much apple sauce.  

Something is making my pain so much worse 

I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back

Almost like an opposite effect that a pain reliever would do.

I'm fairly new to this. Whatever is going on seems to be worsening 

Do people get a withdrawal effect from gluten?  It's extremely painful 😖 

I'll post that question or research on the site 

Thank you everyone for responding 

On 10/14/2025 at 9:33 PM, trents said:

Welcome to the forum, @Colleen H! NSAIDs can damage small bowel villi like celiac disease does and can also cause peptic ulcers. It would be safer to use a prescription COX 2 inhibitor like celecoxcib which are easier on the gut. But even they should be used as sparingly as possible. 

I think I found a huge culprit for severe reactions to create worsening of my c symptoms.

Do people with celiac have sensitivity and /or have opposite reaction to certain medications

Where can I find a list ? 

I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense 

How many people get opposite effects or have a horrible attack after these meds

Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free)

I add a very tiny amount of margarine less than a teaspoon. 

I did no't have any bread   

It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms.

My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it 

The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook.

Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems...

I wonder if I should fast because I'm not eating gluten . 

Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞

Any suggestions I am open... I am bedridden when this happens to me. 

Thank you Celiac community. 🙏🏻❤️

Hello 

I'm not sure what to think . Seems no matter what I do I get sick.

I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off

My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !!

I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer 

This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞

Does any of these symptoms sound familiar to anyone?

The neuropathy is quite intense. 

What do you eat or drink after this happens 

Open to suggestions 

Thank you 

I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate 

It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔.

Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems

,  I don't know if anyone ever got hot flashes??

I suppose if it affects people head to toes you can get that too.  

It's weird...hard to decipher what is what.  

Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible. 

Thank you for your response..

Ok thank you.  Me either 

Hi all !

Can a celiac attack be so intense that it causes your entire body to work in reverse?

Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues ,

Horrible anxiety and confusion?? 

I had a Tums and you would think I ate poison. My jaw and stomach did not like it .

Not the norm for me.

Things that are simple are just out of control.

Anyone ever have this happen?? 

I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?!

Any positive suggestions ?? 

Thank you 

Hi all !!

Just curious because I am reading opposite information when I try to research. I'm fairly new.  I have all the strange symptoms including horrible jaw pain 

Are we " allowed"  to take ibuprofen for jaw and back pain ?  If not any suggestions?

I noticed with this pain also comes the nausea.  I find myself eating unsweetened applesauce.  Then having to take something for pain.😞.

However, im wondering if I'm just creating a larger mess for myself if I should not be taking ibuprofen.

I am open to suggestions and thank you so much !!