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LilyCeliac

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LilyCeliac

  1. LilyCeliac
    I think it has been two years now that I have been diagnosed with Celiac Disease and on the gluten free diet. I have found that Doctors and Dieticians and even GI Specialists have become pretty useless at this point and the only useful information I get is from this Forum. After two years of being Gluten Free I am still feeling crappy. I go to the bathroom...
  2. LilyCeliac
    I have been gluten free for 8 months now after I was diagnosed with Celiac Disease. I have been on a gluten free diet but I haven't cut out Dairy or Casien. I cut back, but i didn't cut them out completely. I am still feeling sick and not back to my normal self yet. I want to cut out dairy and casien to try and see if it will make me feel better. BUT! what...
  3. LilyCeliac
    Hey Everyone! I've been gluten free now since summer and I'm happy to say I have been feeling quite a bit better. I have good days and bad days but the bad days are now alot less. I have noticed that I still have really bad anxiety at times. The last couple times I was on a plane I have had panic attacks and my anxiety has been insane. I am not scared...
  4. LilyCeliac
    It really is the worst. Your not alone. And I know how you feel about the non responsive Doctors. Even if they did respond they probably wouldn't have useful information. Thats been my experience. I also have to rely on this forum for information cause its almost impossible to get it anywhere else. The last time I felt really sick I was so nauseous...
  5. LilyCeliac
    When I was diagnosed with Celiac Disease through a blood test and a biopsy I was told by the specialist "you have Celiac Disease you can't eat gluten" and that was basically it. I resorted to the internet to find out all the specifics that the Doctor failed to supply me with. I was then sent to a Dietician only to find out that I knew twice as much as she...
  6. LilyCeliac
    Thanks! and to clarfiy what I meant by "be more strict with the diet": I do follow a strict gluten free diet, I am careful about cross contamination, I've stopped eating out, or eating anything that I'm not 100% sure is gluten free. So this is why I am wondering why I'm not feeling better yet. It could just be that It's going to take longer for me to...
  7. LilyCeliac
    So I've been gluten free now for 5 Months. My headaches, joint pain, and stomach cramps have definitly improved. The only thing that hasn't improved is my bowel movements. I can't remember the last time I have had a normal one! I haven't been getting the Big D as much as I used to but their still not normal. I'm still having to run to the toilet at the...
  8. LilyCeliac
    When I was younger I always had HORRIBLE cramps whenever I was on my period and my Doctor put me on the birth control pill and the cramps stopped. I have been on the pill for years now and haven't had cramps at all. I have now been gluten free for 5 months and I have noticed that now I get THE WORST cramps again when I'm on my period. I also get HORRIBLE...
  9. LilyCeliac
    I feel the exact same way as you at times. I have good days and bad days but now my bad days are few and far between which I am really thankful for. The hardest part for me is the times where I don't feel like myself anymore.... I look back on times when I was so carefree, I could eat whatever i wanted to without thinking twice, I could go whereever I wanted...
  10. LilyCeliac
    You are not alone in feeling this way. Everything you have said has been the exact same for me as well. I was diagnosed 5 months ago and I am still not feeling better. Some days I notice a change and that I am feeling an improvement but then there are days where for no reason I feel awful again, even when I know I haven't been glutened. I have had two...
  11. LilyCeliac
    Hey Everyone! I was diagnosed this summer and now that I have had a few months to adjust to the new lifestyle I am realizing alot about this disease and also alot about myself. I am still feeling sick but I have noticed some improvements to my health. I still have a long way to go and there are so many things that I could be doing better. For starters...
  12. LilyCeliac
    Wow, thanks so much everyone. Hearing this all really helps. I just had the most humiliating day of my entire life and hearing that I'm not alone has made things quite a bit better. I actually was glutened two days ago and so thats why my symptoms we're so bad today and uncontrolable. This is the first time I have been glutened since starting the gluten free...
  13. LilyCeliac
    Ok, does anyone else have the EMBARRASSING problem of sometimes not being able to control bodily functions? I was recently diagnosed and I've been going gluten free. I have noticed a bit of an improvement in my symptoms but they are still off and on. There has been a few occasions where I have no warning about going to the bathroom and have had accidents...
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