Jump to content

misulli

Advanced Members
  • Posts

    16
  • Joined

  • Last visited

misulli's Achievements

  1. Thanks. I agree. I guess it would be nice to have some support from the medical community and maybe show the doc that a negative blood test does not always mean negative and to not put us all in the "IBS" category. My most recent bloodwork has been on the lower side of normal for B12, in addition to being slightly anemic. I also just did some bloodwork...
  2. I tried starting the diet, but went back on gluten on the chance that I would be getting the endoscope. I don't want to skew the results. I am just anxious that he will totally dismiss the enterolab results and the genetic results.
  3. Hi, I had a negative test for Celiac, but came back positive with Enterolab and also had two copies of the HQA-DL2 gene. I called to ask to speak with him and am waiting a call back. I am almost certain he is going to say no and that it is not warrented. While I do believe in Entrolab, I am not sure I want to bring this up with him. Any thoughts??? Michelle
  4. I am on the path to being gluten free after being diagnoses via enterolab. My question is: do most people lose weight when starting this diet? I am already quite thin (110 lbs, 5'4) and am concerned about losing too much more weight because of dietary changes. My main symptom over the last seven years has been uncontrollable and unpredictable D, which...
  5. That is so freaky!!!! I have worked for the government since I was 22 and they have always had trouble getting a good fingerprint on me. I used to joke around that I would be a great criminal because no one could get my prints!!!!
  6. I found the site you were referring to. It was great! A little scary...but hilarious!
  7. Thanks all for the words of wisdom and kindness. I feel like there should be some sort of "gluten Anonomous" - Hi my name is Michelle and I'm a Gluten addict! :-) I'm sure I will get there. Part of me is still in denial. I want to believe that my symptoms are caused by something else and the antibody testing done by Enterolab was "low" so therefore maybe...
  8. So after getting my positive enterolab results (including nifty genetic verification that I am doubly doomed (HLA-DQ 2,2), I went Gluten free. The weekdays were OK as I was working and could only eat what I had brought with me (all gluten free). The weekend was MUCH tougher. I brought home a few different kinds of bread to try (I might add Bread has always...
  9. My appointment is not until the end of March. I started eliminating Gluten yesterday. I am hoping I will show some improvement prior to my appointment and then I would also have to share with him. By the way, I stopped off at Whole Foods earlier this morning and was amazed and very pleased to see the amount of gluten free stuff they had there.
  10. Thank you all so much. This can all be so confusing and frustrating. The next big question is do I bring these results to the Gastro doc who has all but given up on me and diagnosed me with IBS. My bloodwork for Celiac done 6 months ago had come back normal as did a colonscopy. He doesn't feel the need to do an endoscopy. My main issues were D (all the...
  11. In terms of my gene test results, it looks like I have a copy each of the 0201. Is this, combined with my other test results fairly indicative of Celiac or gluten sensativity? I do not see too many on this board with the same gene types. Thank. M
  12. Thanks, that is great advice. I am hopeful I will begin to feel better and that alone will help him understand. He comes from the type of family that unless you are truly dying (ie: blood pouring out form somewhere), you don't need any medical help. I think if he lived just one day in my shoes, he'd be at the doctor office by the afternoon! Thanks again...
  13. I do feel badly most of the time and live on Imodium so I can function during the day (ie: go to work, take care of my children, etc). I am happy to have found the cause, although my gastro doc will surely dismiss the Enterolab results. He has done every test except for a endoscopy. All with normal resuts (including the blood tests for Celiac). He has...
  14. Thanks so much. You are right. It does help to know others are in the same boat!
  15. Hi, I just got my enterolab results back and need some better interpretation on where to go from here. I know many of you have gone through this yourselves. Here are the results: A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value Fecal Antigliadin IgA 18 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.