sick&tired

  Carriefaith said:

That sounds wonderful! Thanks for sharing. So Bosque del Cabo caters to people with celiac disease?

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No, it's more like they will do what ever they can to make anyone happy. You would have to let them know you were a celiac and then they would take the proper measures.

I just returned from a 12 day trip to Costa Rica. It was a fabulous trip and best of all, I never had an issue with food. First of all, the typical Costa Ricans don't eat a lot of food with wheat and they do eat a lot of fresh foods. A typical meal would be a meat, rice, beans, fried plantains (bananas), or yucca, and a cabbage salad with a couple of fresh corn tortillas. Lots of fruit is served at breakfast and breakfast is usually included with hotel stays. I did have a card I made up myself stating I had Celiac and what I could and couldn't eat. I laminated about 5 of them but only pulled them out a couple of times.

I knew where we would be staying during our travels and emailed all the hotels ahead of time. I can't say enough good things about one of the places we stayed, Bosque del Cabo. It is at the tip of the Osa Peninsula, a gorgeous setting 500 feet above the Pacific and Golfo Dulce. Every evening was a gourmet buffet and the cook made sure everything on that bufffet was GLUTEN FREE!!!. I have never been treated so nice anywhere before. Turns out the owner's best friend is a Celiac so she knows all about it. I was so tickled to eat all the same food as everyone else. She would make me my own special fruit deserts.

I encourage anyone with Celiac Disease to travel throughout Costa Rica with not many worries. I didn't see any breaded fried food but that doesn't mean it's not there. Also, all the tortillas I came across were corn. Didn't see any wheat tortillas.

-Bobbi

I am going to Costa Rica in a month. I'm havina Spanish speaking friend write up some info cards for me for restuarants. (I know you can get it here.) I plan on eating lots of plain fruits, veggies, meats, and beans and rice. It sounds like a lot of their traditional cooking would be gluten free except for wheat tortillas.

-Bobbi

Thanks Jessica. Yes, I know the injections skip the gastro tract. I was given injections as a jump start for treatment. Could be I'm not getting the right anti-biotic or possibly it's not being properly absorbed because of celiac disease. Looks like I'll have to return to the Doctor today. I don't want to end up in the hospital with an I.V. drip if it turns into a bone infection.

Best to all.........

Bobbi

I am self diagnosed by a gluten-free diet. (What a difference!) I have developed an infection on the knuckle of my hand. The doc is concerned about a bone infection if it doesn't improve.

I first had an injection of an antibiotic to be followed up with a regimine of pills. I should have seen an improvement within 2 days. I didn't, so back to the Doc for another injection and a different antibiotic. It's 5 days later with no real improvement in swelling and pain and I'm wondering if because of celiac disease the antibiotic can't be absorbed.

Here is a quote I just read online about bone infection treatment:

Parenterally administered antibiotics are usually employed, but oral therapy is also effective when the pathogen is sufficiently susceptible and gastrointestinal absorption is ensured.

Thanks for all the info I've gained from this board. Hopefully, someone knows something about this. My Doc is pretty clueless when it comes to celiac disease.

Sincerely,

Bobbi

I'm new to the board. I've read articles about CS here but I guess not enough. After years of agony and endless tests with no answers, I finally read about Ciliac Sprue and put myself on a gluten-free diet. I was elated when my pain, bloating, mental fuzziness, and fatigue suddenly went away. I stayed well for about 5 months and then had a bad relapse after eating in a Chinese restaurant. I think I had several things to eat I shouldn't have, including soy sauce.

So I started investigating more and realized I could really only eat things that were whole foods or prepared items that were already deemed OK. I can deal with it. Anything is better than my quality of life before. As I read more, I realized my grown children and grandchlidren could be at risk. I wanted to get diagnosed so my family would have some definite results in hand if I tested positive.

I went to my GP Doc and asked him for the test for antibodies to endomysium and tissue transglutaminase. He is not at all familiar with this disease and asked me why I would want the test if I tried the gluten-free diet and felt better. I answered I was especially concerned about my grandbabies having it and possibly becoming malnourished.

He is also not at all familiar with the blood tests and after calling the lab to see if they could accomodate the tests, he was told they were esentially the same test. (Are they?) So I only had the tissue transglutaminase, I think.

Anyway, the office called me today and told me the test was negative. I was crushed because if it wasn't CS I must be crazy! Then I read here how one must be "active" to test positive. I can't live like that. I was so, so, so sick last summer. I felt my life was over.

Any other options? And any Docs in the Metro Detroit area who are in the know?

I do have other auto-immune and connective tissue diseases. For me, they pale in comparison to the pain and agony of my Celiac Sprue symptoms.

Thanks so much for your time and sharing.