jeannine

Thanks! I'll have to remember those!

I just wanted to add my story as well. I walk about 50 miles a week- and kept gaining weight. The doc's would all tell me to lose weight- well, how- I can't exercise any more than I am! I also have dh- finally dx'd after 18 months with very few gastro symptoms. I have been gluten-free for about a month, the dh is healing, bit by bit and every once...

We were meeting some friends for lunch and they picked the restaurant. Canyon Cafe in the Quarry. Anyway, I contact the restaurant and tell them that I have Celiac and do they offer a gluten free menu. No, they don't offer a menu, but ask to speak to the manager because almost everything on their menu can be made gluten-free. So, I ask to speak to...

That looks a lot like dh. I was diagnosed with dh after having the rash for 18 months. I have been gluten-free for about 3 weeks, but was told by my derm that it could easily take a year for it to go away. Dapsone is not an option for me (and I'm sure it would not be for your ds, either) so I was given lidocaine (sp) which is topical and numbs the rash...

Thanks for your replies! I did talk to the husband- and he didn't have any tests done. I told him he needed a new doctor. It seems that he was given a cream for the ringworm and told that he could have some gluten daily (approx one sandwich a day). He told me that his doctor is the best and very "cutting edge." Whatever that means! Oh, well. To...

After 18 months of hell in the form of dermatitis herpetiformis, I was diagnosed. It took multiple skin biopsies and duodenal biopsies. So, I tell a friend and she tells me her husband was just diagnosed as well. I asked about how he did with the testing and she said no testing- he had ringworm and had diarhea for about a week and went in for the ringworm...

RoseTapper, I'll see how it goes with the gluten-free and I am hoping that the rash will clear on it's own. I originally broke out 18 months ago so I'm not sure how long it will take with the diet alone. It is getting hot here in Texas and I want to be able to wear shorts At least I'll have a week before I talk to my doc again to see if I notice any...

I went back to my derm today. He is a resident and always needs to have someone else come in. Well, today he was able to bring in 2 doctors, both with experience with DH. They agreed, with out a doubt, that this evil, evil rash is DH. They told my doc to take 2 biopsies to make sure. They gave me some numbing ointment (heavy duty stuff) and said the...

Well, my follow up isn't until May 1- so much for the 2 weeks. Cruelshoes- that is interesting about the polyps. I learn something new every day! Thanks! Jeannine

Just wanted to add that a lot of marinades have wheat in them! I didn't know that until I found out that McDonald's grilled chicken has wheat products in it! Here is the entry from their website: Grilled Chicken Breast Filet: Chicken breast filets with rib meat, water, seasoning (salt, sugar, food starch-modified, maltodextrin, spices, dextrose, autolyzed...

I just had my scope and biospy 2 days ago. Two weeks before that I saw the gastro for the first time and when we scheduled the biopsy I was told to eat gluten- and lots of it, some at every meal. I was soooo sick, I have (I think) dh and broke worse than ever and lost over 15 lbs in the 2 weeks (I'm overweight so that wasn't as horrible as it could have...

I went in yesterday and had a liver biopsy, upper scope and a doudenal biopsy. I never saw the doc after since a emergency came in and he was called in. The nurse showed me (and gave me my own set) of pictures of the scope. She told me that my fundus was covered in polyps and doc removed 10. I asked about diet and told her I was no longer eating gluten...

Well, another day another 2 pounds! After the biopsy, I am going to go gluten-free- really gluten-free (not the half-baked job I was doing). This is just crazy, losing so much weight so quickly, feeling like crud, and the rash is everywhere but my face now! I am now sick enough to know that even if my tests come back negative, I have to do something...

I have been seeing a dermatologist for a rash that I believe to be DH. The doc doesn't know what it is. The rash has been around for over a year and I've been seeing the derm for 8 months. He finally added my history to my rash and sent me to a gastroenterologist. I talked to a MD, resident and PA while there. They looked at my history but not so much...

Thanks for your replies! I always learn so much when I come here. The dermatologist did a "general" biopsy back in Aug/Sep and isn't interested in doing a specific one. He scrapes the rash about every other visit and looks under the microscope and just tells me he doesn't see anything there. He is a resident and always has to call in a more senior dr...