enigma
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by enigma
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If you can find Lifestream Buckwheat Waffles (gluten-free, of course) in your organic or healthfood store's freezer I urge you to try them! I can even pop one in the toaster and eat it plain on my way to work - they are that good!
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LUAP - That was SO interesting! I really liked your comment on how all the doctors know to do is tell us not to eat gluten, which we are glad to know, of course, but it is so evident that more research is needed on this strange disease. One day, maybe even in our lifetime, someone will find the answer! LUAP and red345 - I agree about the beta blockers...
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amfcsq - Hi! Good luck with your testing. Can I give some advice? If you are having ANY symptoms of celiac disease and your tests come back negative I urge you to still follow the gluten-free diet. Now, concerning the low carb diets - I have lost 25 pounds and kept it off for nearly a year by eating low carb (probably around 50 carbs a day, on average...
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Sorry to bring the subject up again about beta blockers but I do want to make a definite point. Everyone, especially us celiacs, should take a HUGE role, as much as humanly possible, in our health care. Many of you have learned, as I have, that we can not completely trust our doctors (they are only human, afterall) and that we SHOULD question their advice...
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KEVIN - I have to thank you for the info on the beta blockers. My doctor just recently gave me samples of them to try for lowering my blood pressure. Thankfully years ago I had heard negative comments about them so I decided to hold off trying them. Now after reading your posts I know I will definitely NOT take them, especially since I have full-blown...
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I'll answer just a few of your questions now, maybe more later as I find this VERY interesting. I was first thought to have systemic lupus as I had several of the main symptoms, including the blood marker. Doc had a wait and see attitude (thankfully) and about a year later the stomach trouble had worsened terribly and I was finally dx'd with celiac disease...
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Janine, my doctor also had trouble believing that B/P meds could cause an upset stomach. Thankfully she did say to stop the med for a few days and see if I got better. Of couse I did get better. Then when I try a new medication I get sick again. I'm now about to try beta blockers for the first time (with lots of trepidation). One thing, though, my doctor...
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I was almost clinically diagnosed with lupus just before I found out I had celiac disease (about 15 years ago). Even though I had many symptoms of lupus my doctor was reluctant to actually dx it 'cause he would then HAVE to put me on medication which he said would make me feel worse than the disease. I had the malar rash, joint pain, extreme fatigue, and...
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Beelzebubble, are you currently taking those meds for high blood pressure and not having any negative reactions to them? The ones I've tried upset my stomach terribly. Thanks
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I am having a difficult time finding a medication I can tolerate for hypertension. The ones I've tried upset my stomach and my dr. seems baffled as to what to try next. If you are taking medicine for high blood pressure could you please let me know what you are currently taking? Thanks.
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ARCHIVED Celiacs With Hypertension
enigma posted a topic in Gluten-Free Foods, Products, Shopping & Medications
If you have celiac disease and hypertension I need to know what medication you take for it. After several years of high blood pressure readings my doctor finally insisted I go on medication. (I had begged off to try losing weight, which I did, exercising more and cutting out salt but that didn't lower it enough.) The medications I have tried really upset... -
LisaB, I began a low carb diet about the middle of August and by Thanksgiving I had lost a little over 20 lbs. That's a little slower than I had hoped to lose it but I have had no trouble keeping it off even with eating more during the holidays. So I am very happy with the results and especially with how I feel! I plan to get back to the low carb routine...
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ARCHIVED Unconfirmed Celiac Seeking Advice :-)
enigma replied to tarnalberry's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tiffany, If I were you I would stay gluten-free since it is a real possibility that you could go through with the gluten-loading, have the blood tests again and even the biopsy and STILL end up with an inconclusive diagnosis or an incorrect one. But this is something that you have to decide for yourself. Frankly, after over a dozen years of dealing with... -
LisaB, Allow me to add a few vegetables to Welda's list (I know these work because I just lost lots of weight while eating them!): yellow squash (which I lightly battered in cornmeal and fried - heavenly!), zucchini (also fried - remember oil has no carbohydrates!), green beans (French or Italian or fresh - the fresh ones are delicious roasted), and I...
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Hi aball, I did the same as you, adding on lots of weight with gluten-free junk food once I became well again. But I just recently lost over 20 pounds following a low-carb high-protein diet. It's so easy to follow and stay gluten-free because you eat mostly meats, eggs, cheese, and low-carb vegetables. You have to stay away from starches (potatoes, rice...
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ARCHIVED How Long Have You Been Gf And How Do You Feel?
enigma replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Lily80, Do I ever hear you and understand! I even had several doctors over the years tell me that a little bit of gluten wouldn't hurt! As for the weight gain, I did the same exact thing - getting heavier than I ever was while pregnant! Bummer! But I just have to tell you that I just recently lost over 20 pounds by finally trying a low-carb... -
Wolos, concerning your daughter with diabetes: I really wish you would pick up a copy of Dr. Atkins' New Diet Revolution because he talks about the diabetes epidemic in this country and explains how he believes it is a direct result of over carbo-loading in the American diet. The book has accounts of his patients who were "cured" of diabetes following his...
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ARCHIVED Biopsy Negative But Doctor Still Thinks It's There
enigma replied to tgcatmr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You have a very wise doctor. As he/she probably told you, it can depend on the area the biopsy was taken from AND on the experience of who reads the biopsy. I'm also 5'3" and went from 95 lbs. at diagnosis (very sick) to 120 lbs. within a year. I then later ballooned to over 140 lbs. eating too much gluten-free junk food! Don't do that! (Happily I recently... -
ARCHIVED How Long Have You Been Gf And How Do You Feel?
enigma replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi and Happy New Year! I' ve had celiac disease for over 12 years and it's been a long hard haul. Don't want to bore you with all the details but I was at first dx'd with IBS and lupus before they found the celiac disease. By that time I was SO sick I thought I was going to die! When I first went ignorantly semi-gluten-free the change was drastic! The... -
A few months ago I started a low-carb hi-protein diet to try and lose 20 lbs. I've lost over 20 pounds and gained so much more! I can't believe how easy it is for a celiac to follow a low-carb diet. The recipes don't use wheat flour or hardly anything else that has gluten and the food tastes good, too. But what has surprised me is how much better I...