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skikat

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Latest Celiac Disease News & Research:

Everything posted by skikat

  1. skikat
    I've seen a lot of posts about gluten being in children's products like toothpaste, shampoos, bubble bath, lotions, medicines, etc. But, what are the actual names of the ingredients to look for that have gluten in them?
  2. skikat
    Thanks for the info!!
  3. skikat
    They were canned peaches and before he went to canned, he had the same reaction with pureed peach babyfood, so I doubt it was related to his chewing. In regards to the "enzymes", I am referring to enzymes in the body that are needed to break down certain food proteins. He is 13 months old and has been gluten-free/CF since November. Maybe, his gut is not...
  4. skikat
    Son is one year old Celiac. Seems to have a sensitivity to peaches, apricots and blueberries. About 2 hours after eating extremely fussy, irritable and yesterday threw up almost a whole piece of a peach. Almost like the body never broke it down at all. What could this be? I have read about some children lacking certain enzymes needed for breaking down certain...
  5. skikat
    Thank you for your supportive and encouraging words! We should always listen to our "gut"....ha ha Don't give up, and do not get disouraged. We are all warriors in this battle!
  6. skikat
    Thanks for clarifying. Not sure if the doctor will do the blood test, just for me because I am curious. Especially, now that her IgG was positive, I guess it doesn't really matter at this point that the IgA was negative. I have a feeling he would say, "we have the info we need to make changes" and it is probably not necessary to have 3 y.o. go through a...
  7. skikat
    Son is Celiac, spouse is Celiac. Had dtr tested (3 yrs old) through Enterolab and her tests came back in normal range for gluten, soy, and casein. The disclaimer did say that 1 in 500 people do not have the ability to produce IgA antibodies, so she must be one of these people. I think this because she had the ELISA IgG blood test for food sensitivities and...
  8. skikat
    Hello- Also, keep in mind...although it is rare...some people have a permanent casein intolerance as well, just like gluten. Even though she is drinking Lactaid...it still has casein in it. Remember, a casein intolerance is different from lactose intolerance. Lactose intolerance is often temporary in celiac, but casein is not.
  9. skikat
    We live in Murfreesboro. Looking for a support group.
  10. skikat
    Hi- I know this was posted several months ago, but I was doing a forum "search" for anyone in Tennessee and found this thread. Hope you all will get this notification, not sure how else to contact you all. We live in M'boro and were trying to see if there was a group in this area for meetings? Please respond. If there isn't, maybe we all could start one.
  11. skikat
    Hi! We are a family of Celiacs from Murfreesboro, Tn. We are looking for a support group or looking to maybe start one. We know there is one in Chatanooga, which is about an hour and a half from us....Thanks
  12. skikat
    Thank you for your input. I know my son 1 y.o., had a temporary problem with dairy due to the gluten damage. Now that he has been gluten-free/CF, he seems to tolerate dairy okay. He showed within normal range for casein intolerance on enterolab. But, my husband has shown a casein intolerance on enterolab, as well as gluten. We were just trying to figure out...
  13. skikat
    Hello- Here is my question: It is my understanding that Lactose intolerance is temporary in Celiacs or gluten-sensitive folks due to the damage in the gut. Once healed, they can tolerate cows milk. But, if someone is tested as having a casein intolerance, is this a permanent life-long situation? Like with gluten? Thanks for any input.
  14. skikat
    I live in the U.S. Maybe someone has a letter they have used for their doctor and I can copy and paste? Minus all the personal information.
  15. skikat
    Does anyone know where I can find and print out a template for the doctor to sign that confirms diagnosis. I will be submitting receipts for gluten free foods for taxes. I already have the information about the tax credit, now I need a letter from the doctor. This won't be a problem, but I just thought maybe if there were a template somewhere on-line, I could...
  16. skikat
    I do agree with the previous post to try to continue breast-feeding if you can, as I am PRO breast-feeding if you can continue with a change in your diet. But, I had to stop breast-feeding due to going back to work and at the time. In addition, our son was having so many problems, now I know why. I've only since learned about celiac, etc. We went to milk...
  17. skikat
    Get your dtrs stool tested from enterolab. They can test for gluten intolerance, as well as soy and casein. It is easy! and- you don't have to do a biopsy at such a young age. Also, go on ebay and order some Neocate formula (hypoallergenic) It is cheaper on ebay and it was a miracle for our son who is now 11 months old. He had all the same symptoms you are...
  18. skikat
    Thanks for your input. My son showed no intolerance issues with casein when tested through enterolab. So, maybe he will be okay with goat's milk next year? We are having dtr tested through enterolab for gluten, casein, and soy to see what is going on there. It is just so hard with a 3 y.o, and a 1 y.o. to figure this all out. Especially, when your one-year...
  19. skikat
    Thank you for the replies, that really clears up some of the confusion I had. It sounds like dairy can be reintroduced at some point, although I will probably stay away from whole milk by the glass. Maybe dairy products like cheese and yogurt will be okay? Both children were tested for IgE milk allergy and both were negative. I read an actual casein intolerance...
  20. skikat
    Okay- Son recently positive with enterolab- gluten intolerance with IGA and also (two celiac genes). He is about to be one in Jan. currently on Neocate formula. Dtr is 3 and a half and has been on soy milk for a month, (nose stopped running now). We are getting her and spouse tested now for Gluten Sensitivity. Here is my confusion- 1. I have read that...
  21. skikat
    Sounds like your child has an overgrowth in yeast problem. Without going on with a long summary, let me just say that my son who is now 11 months old had all the same problems as yours. Yeast in the gut can be very painful and cause severe cramping. The arching of the back in pain is a sure sign. Another clue, is greyish sticky stools are a sign of malabsorbtion...
  22. skikat
  23. skikat
    Yes- first she was on a "z-pac" that didn't work on her congestion in her chest....then when it progressed to pneumonia they put her on a 2-week heavy duty anti-biotic. In hind-site, I wish I had known about using an anti-fungal then. It is my understanding, that if you have "leaky-gut" for whatever reason, the bad yeast can have overgrowth and toxins go...
  24. skikat
  25. skikat
    WOW! This is fascinating stuff...and so complex. Thank you for your input. No wonder docs don't know anything about this, because they obviously do not have the time to invest in this up to date research....yikes! I am grateful for your knowledge and sharing your experience.
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