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3groovygirls

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by 3groovygirls

  1. 3groovygirls
    Just to update this - we got the results and she actually has C. Diff. Well, that is weird!! I'm glad it's not Celiac like my other daughter but how strange! He said she probably got it during a course of antibiotics from strep. So yeah, now we have this to deal with. Poor kid!
  2. 3groovygirls
    Thanks guys! I didn't ask WHAT tests they were running on the stool. I just assumed that was the test! They were also checking for H.Pylori I know. Maybe I misunderstood but he seemed to insinuate that if the stool came back a certain way it might justify doing the biopsy on her. Maybe I assumed it was for Celiac but it was for something else? Ok...
  3. 3groovygirls
    Hi everyone, My 11 year old was tested and sent to a GI Dr. for screening b/c she's having a lot of nausea and diarrhea. Her Celiac blood test was negative, however he's calling it inconclusive b/c I have a 6 year old with Celiac. He isn't sure if she eats enough gluten for it to be + because we eat most meals gluten-free. He is having us to a stool...
  4. 3groovygirls
    Thanks so much guys! I will keep an eye on it and if it does flare up more with some things he eats than others. Once you have a child with it you seem to want to blame everything in the other kids on it, LOL! Shadowicewolf - do you have a good lotion you use? I bookmarked a list, but wondered if any of them work better than others.
  5. 3groovygirls
    Hi! I have a 6 year old that has Celiac disease. She's had it since she was 1 year old. We are very used to it....however, that also makes me paranoid to it. My 3 year old hasn't been tested, he has no symptoms of it so his ped decided it's not necessary yet. Recently he developed Eczema on this thighs, it keeps getting worse. I noticed it was particularly...
  6. 3groovygirls
    Thanks so much!! Yes, the ran all sorts of tests which will are very negative. Here they are: Deamin GLIAD PEP IGG (DPG IGG) (<4.9) I got <0.4 " " IGA (DGP IGA) (<6.1) I got 0.3 Tissue Transglutaminase IGA (<10.3) I got 0.2 Total IGA (44-441) I got 90 Then it also says I have the DQ2.5HLA(HLA DQA...
  7. 3groovygirls
    Hi everyone! I have a question about total IgA numbers. I have a daughter with Celiac disease. I decided to go to a GI and get tested as I can tell I am gluten sensitive. I was eating about 85% gluten-free at the time. My IgA number was 90. (I also had the genetic test and found I have the gene) It is passing. My question is, if I was 85% gluten...
  8. 3groovygirls
    Hi everyone! I got my results today. I was tested b/c my daugher has Celiac and I am very skinny and had a high amylase reading, but it appears i don't have Celiac BUT I do have the genes for it. I was wondering if you all could look over the test results and tell me what you think. What are the chances someone with my genes gets Celiac? It says I...
  9. 3groovygirls
    Hi, I am sort of backwards from everyone here. I feel fine, no real symptoms but my Dr's are convinced I have Celiac. My orginial bloodwork was correct but my amylase was high. went to a GI Dr. and since my daughter has has it and is positive for the dQ8 gene and my size he thinks I have it but b/c I eat partially gluten-free the regular testing isn...
  10. 3groovygirls
    Hi, I was getting checked and posted before but I didn't have specifics. now i have them. My DD has Celiac and is positive for the DQ8 Gene. I got checked randomly b/c I was having bloodwork done anyway. Here is what they ran - but compared to what i've read online it's not anything. Is this specific enough to say I don't have celiac? Or was this...
  11. 3groovygirls
    Yes, I was so confused! They said to go to the GI b/c my amylase levels were high. But from reading they don't seem THAT high. Maybe 13-3 points above normal. From what I read this level is only a measure of irritation - like it will be raised for mumps, bowel inflamation or REALLY high (Like 3-4 times normal) for pancreas issues. I don't think he ran...
  12. 3groovygirls
    I got the most confusing results ever. I was tested b/c my daughter has Celiac disease. This is all my Dr. said. He said I passed my Celiac test but my amylase levels were high. They were only slightly high and I"ve read those are commonly raised by pancreasitits (don't have that obviously) or bowel irritation - could that be Celiac? My amylase was...
  13. 3groovygirls
    Well, I don't really mean at home, I mean at school. Like sometimes on rainy days they have play-doh recess. That type of thing. It's not like she plays with it every day. I think I'll look into supplying her school with gluten-free dough. I just never thought it was that bad b/c her Dr. seemed to think the chance was sooooo tiny and remote he made...
  14. 3groovygirls
    Ok, so I googled it to try and understand. From what I read if your IgA SERUM levels are low, this can INACCURATELY make you pass your other levels. Is that what you were saying? So if my number was 84 eating 80% gluten-free, can I assume it would be lower if I was eating more gluten? I KNOW I don't eat the equivalent of 4 pieces of bread a day! Many...
  15. 3groovygirls
    this could affect the outcome of the IgA based tests How does the low serum affect the outcome of the IgA based tests? Sorry, I am so clueless!! Here's the thing, I DO react to gluten now. I NEVER did before I started eating gluten-free for my daughter. Now my system cannot tolerate gluten heavy things - like beer. Oh geez, that kills me! Or regular...
  16. 3groovygirls
    Just curious! I still let my DD play with it, I just always wash her hands thoroughly. Her GI said the chance of it getting through her skin if she doesn't have a cut or something is soooo ridiculously small I shouldn't sweat it. Just be sure to wash well. She doesn't seem to react to it. Should I change what I'm doing?
  17. 3groovygirls
    To be more spefic: IGA Serum 84 81-469 mg/dL is normal Gliadin AB (IGA)<3 normal <11 TTA IGA <3 normal <5 Those are my numbers.
  18. 3groovygirls
    Hi all! I have a quick question. My test results were of 3 things, the first 2, I forget what it was, I passed those, the numbers had to be say <3 or whatever, but I had a question about the IGA Serum values. My value was 84 and it said passing was 81-300something. My daughter has Celiac with the DQ2 gene. Do you think this means I am home free...
  19. 3groovygirls
    Thanks for the articles and information ladies! Jackie - I TOTALLY agree with you about your daughter! You basically just described Violet's first year of life. She was MISERBLE. Labeled "colicy". Then they said she had reflux and we gave her so darn much Zantac. She is still *different* than my other kids. She's STILL clingier, she's STILL more...
  20. 3groovygirls
    That's interesting! I'm definetly going to hold off on solids - I do that for all my kids anyway, till 6 months. I tend not to have big eaters regardless though! What's funny/interesting about my DD with Celiac is, she reacted to it through my breastmilk. She was a projectile vomiter and I did the elimination diet. Nothing seemed to work. Finally...
  21. 3groovygirls
    Thanks guys!!! I'm going to try BOTH of those!! It seems like every time we go away she gets glutened. We went to Disney World, and I fed her popcorn and she got glutened. It HAD to have been that, anything else I fed her was from home. I called Disney and asked and they told me that *sometimes* they use old oil to make the popcorn. NICE. So...
  22. 3groovygirls
    Hi, My daughter is also tiny. I thought she'd grow a ton being gluten-free, but she's been gluten-free for over a year now but no big results. She's 2 years old (as of May) and still 22lbs. She's literally the size of most one year olds. I keep wondering WHEN she'll start to grow!
  23. 3groovygirls
    Hi everyone! I'm currently 9 weeks pregnant. I actually don't know if I have Celiacs or not (long story, but stupid Dr.'s don't want to test me they claim it's not genetic and I have no need since I have no symptoms. Keep in mind I'm 5'9" and 115lbs soaking wet! But I don't have diarrhea.... LOL!) but my daughter does. She is also DQ2 positive, so...
  24. 3groovygirls
    When your baby gets glutened do you find that the diarrhea causes INSTANT, horrible, diaper rash? Violet accidentally got glutened on vacation (learned my lesson NEVER will I trust resturants about fries again, other than the big chains we're used to!). It made me think, every time that happens the butt rash is just crazy. She can have diarrhea, I...
  25. 3groovygirls
    I have a question and I'll try to explain it right. Violet has Celiac, she has the gene for it, so obviously it comes from one of us, her parents. I haven't been tested and neither has my DH. However, I have my suspicions about it coming from my side of the family. So here's my question. If you don't have Celiac (or don't know) has your tolerance...
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