Niteyx13
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Do you drink caffeine? I have noticed that it makes my anxiety worse (even though I still drink it - I drink it less than I once did). I have also found that if I get my mind on something else, that helps. Things like reading, praying, working out help me a lot. I was on meds once, and I don't blame you for not wanting to be on them.
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I have been tested for diabetes, and they have told me I could have some hypoglycemia (spelling?). Yes, I found that I wasn't drinking as much when I was gluten-free, but I didn't realize it until I started on gluten again. My thirst is always for water too, nothing else helps it. I actually suffer from terribly bad constipation, not diarreha. My other symptoms are the common celiac disease ones exhaustion, gas and bloating, irritability, etc.
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A lot of you know I have gone back on gluten for a time to be tested. I have noticed since going back on it; aside of feeling just horrible, that I am constantly thristy all the time. Now this is a symptom I had before going gluten-free, and it went away when I was gluten-free, but I didn't even notice it was gone until going back on gluten and finding that it is back. And, wow is it back with a vengence! Anyone else noticed this? Is it a symptom of celiac disease, or is it maybe that gluten foods just have more dehydrating ingredients (I know that sounds weird but I am sure it is possible)? Thanks!
Deanna
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Your tyroid is a gland in your throat area that produces certain hormones. Hormones that have to do with metobolism, and other stuff I know nothing about...lol. Yes, it is a blood test, and they correct it with a medicine. Your thyroid can be low or high. Low, you are usually sleepy among other things, and high you are hyper and it is harder to sleep. However, I am hypothyroid and when I went on the gluten-free diet I had trouble sleeping for whatever weird reason. I also found out after going gluten-free that my medicine wasn't the right dose, but I was still not producing enough. Sooooo...the change in the diet had something to do with it all. Talk to you doctor about it.
Deanna
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I have run into some pretty decent pizza crust recipes. I even found some gluten-free waffles that I didn't have to choke down! Just keep looking around at stores, and online, there are some good gluten-free bread or bread type foods out there. So, don't mourn the pizza too much! =)
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This is a new way to look at the disease. When I found out about celiac disease I was almost in tears at the relief of knowing that there is a possible answer to my sickness and chronic fatigue. At 28 years old I am way too young to be feeling so crappy, and for such a long time - 10 years! Not eating gluten sucks, but feeling sick, lethargic, extremely tired, and dealing with the constipation and gas sucks sooooo much more! My opinion is please stay on the diet, you don't want it to get to a point of where imodium just doesn't do it anymore. I seriously thought I was dying for a very very long time, and I thought doctors just didn't care about my problems. It can be very scary stuff!
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Well, like I have said in another post, my problem is that for my ex husband to allow my son to be tested I have to have a positive test myself. He won't go off of what I think, and a doctor may "expect".
Gretchen, I am not even having an endo. I am only at the blood test, because I have pretty much self diagnosed myself. This was after my first cousin found out about her condition and it sounded so much like me that I began researching. We will see if the blood test is enough for my ex, if it is then I won't even have the endo. I know I have this disease, now it is just proving it, ya know?
Thanks for your responses!
Deanna
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Yesterday was my first day to go back on gluten so that I can have my blood test. I am sooooo sick today. I have had diarrhea all day, and my head feels like it is out in outer space somewhere (anyone else get that?), I am also almost dizzy at times. Since I have been gluten-free for 2 months, but with 4 or 5 mistakes how long would you all say I need to stay on gluten before the test is done? I was thinking at least a month (I have to get my insurance straight anyway). I'm going to have to make sure I eat all my favorites that I can't have otherwise until my test...guess that is the bright side...lol. Anyway, thanks for being here all!
Deanna
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Kathy,
Before going gluten-free I was like your husband in many ways, especially with sleeping anytime, and anywhere. It only took a few days on the gluten-free diet to change my sleep patterns to where I had a very very hard time sleeping. And, I have heard this from other people. Yet, I still don't feel very well in my tummy. It sounds to me like your husband is on the right track.
I also agree about getting another doctor. Many doctors kept giving me IBS meds, and telling me to get more active (when I had no energy for that). I brought up celiac with another doc and she told me the test are expensive stop eating "Carbs" and you'll feel better...DUH! I went to a new doctor last week and I left the office with an order for the blood anti-body test (to be done when I have been eating gluten awhile again, of course). So, what I guess I am saying is don't give up! This doctor was soooo awesome. He listened to why I believe I have it, and he didn't do that "I'm the doctor I know all" crap to me. He was so open. So, don't give up hope. There are good doctors out there!
Deanna
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What is transubstantiation? I know very little about catholism, so I am curious.
Deanna
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It would be awesome to have full custody of my son. Yes, my ex is a moron, but unfortunately the state of Arizona is a state big on joint custody, and being a moron doesn't disqualify you as a fit parent. It is a thought, though, if he is diagnosed...lol. His dad will have to learn A LOT to take care of him the correct way with the disease. We'll just have to wait and see what comes about.
Deanna
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My periods have always been a monster. Lasting 6-7 days, heavy flow - especially the first 3, cramps that have sent me to bed, and PMS like mad! I have only been gluten-free for 2 months, but since this time my periods have been worse, if that is possible! lol...I just got one saturday and I was sick that day, in fact I stayed home from church which never happens. I noticed I bled like crazy too for the first 2 days - more than usual (I went through more pads/tampons than usual - I had to hit the store again). I hope this isn't too much discription, but I thought I should share.
Deanna
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I am a non-denominational Christain and we take communion in church every week. We coincider it very important, not in the belief that it will bring us closer to the Lord, but because we feel we need to remember what Christ did for us more than just a couple of times a year and on Easter. So, it is not just catholics that find it special. We have a very nice quiet prayer/rememberance time during communion. We do the same thing in my church where we dip the bread in the juice as it is passed around. There is one other lady that I know of with diagnosed celiac in my church and we both use gluten-free wafers that the church provides. Neither of us have ever had any problems. I would say unless you are extremely sensitive then it would be alittle paranoid to be afraid of getting gluten from communion as long as you are using a gluten-free wafer. Just my opinion.
Deanna
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I know about Entrolab. I am afraid that without a doctor's diagnosis my ex- husband would not accept it. I have to pray that he does even with a diagnosis. He already told me he doesn't want "our son's life to have limitations". Which is really stupid if you think about it, because if he is a celiac and he doesn't eat right his life will have limitations anyway - if he feels as sick as I have all the time. We'll see what happens with all of it, at least now I have a open door to start the process. Thanks for your responses.
Deanna
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As some of you know I am undiagnosed. I have been on the gluten-free diet for 2 months now, and have felt quite a bit better. I have learned to eat on it very well, etc...
I went to the doctor today. I had planned on seeing my old one (because I needed a thyroid blood check), and it turned out he has finished his internship, or whatever, and is now gone (this is the one that was always giving me IBS meds). I told this new doctor what I was doing with the diet, and about my family link, and all the reasons I believe I have celiac disease. He listened very well, and then just said to stay on the diet if it makes me feel better.
The problem is that I share joint custody, and if my son has it the only way his dad will follow a diet for him is if there is proof. He already said he won't do anything at all to test him unless I have proof of having it . I explained all this to the doctor. He understood. Sooooo...I am going back on gluten for awhile. BUT, I actually left the doctor's office with the lab slip for the blood test. He told me to get it in a month or so. I am excited about this, because I am one of those people that likes to know things for sure. Now I just have to hope that I eat gluten long enough, and that the antibodies show, etc.
I wanted to share this with everyone that has frustrations with doctors. I think this new guy happened along for a reason (it's totally a "God thing"). So, no one give up if you are undiagnosed like me, and you have problems with doctors.
Deanna
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Hello all. There is a celiac on E-bay that sells 300+ recipes in file form on E-bay. I don't remember her user name, but I bought that cookbook from her a month ago for like $4 (I can't remember the exact amount, but it was really cheap). Then we just printed it off and put them in a 3 ring binder. I have used a lot of the recipes in it, and she also has some great cooking tips. All I did was search for gluten free recipes, or celiac recipes, or something like that. I hope this is okay to post here. It has been very helpful for me.
Deanna
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I totally had those symptoms. The insomnia was terrible, and I still have it. I take Tylenol or Ibuprofen at night just so I can sleep. The headaches finally went away, though. I also had and still have some days really bad acid reflux that I didn't have before. It's weird, but in my opinion normal from what I have heard from others.
Deanna
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I have a hard time believing anything that says when you were born effects this that and the other thing. But, that was interesting to look at, and I do not have any of the August problems. In fact, I looked up most of my family members month of birth and I didn't find a single one that fit. We have never been known to be normal though....
Deanna
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I know this is could be completely unrelated, but I used to get an inchy painful rash around my arm pits. I eventually discovered that I was allergic to secret deodorant. So, I would definately check out the products you use on your face.
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Rian,
That is such an unfair thing for someone to say to you; and for your daughter, about taking cupcakes to school. Just because she has celiac doesn't mean she shouldn't not be able to do the things other kids do. If the kids don't like them then they don't have to eat them. Some kids probably won't even notice a difference. I agree with you about people needing to be made aware too.
Deanna
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I ate Panda Express' rice one day, and just had plain veggies (I of course made sure there was no soy sauce or anything else on it). It was kinda bland, but I was fine afterward. I have a bad habit of not eating breakfast, and if I get out doing something I will go until I am so hungry I feel like passing out. Yes, I know this in unhealthy and as I am writing is my husband is reminding me of that...lol...anyway... That was one of those days where I was desperate to eat. I was fine on what I ate there. But, you are right just about EVERYTHING there is covered in soy sauce, and so I would assume gluten.
Deanna
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There was nothing about their new food period, not just whether it was gluten-free or not. Which I think it kinda weird, it is not very hard to add to a web site...at least I don't think it is.
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Hi all...I have seen an ad for some new stuff Wendy's is making for Atkin's diet. They actually look pretty good. But, I went on their web site and could find nothing about the new stuff. Does anyone happen to know if they are safe? I am probably asking this pre-maturely since it is so new that it is not on their site, but I thought I would see if anyone here had heard anything yet. Thanks!
Deanna
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Open Original Shared Link
Also has gluten-free beer, but I don't think they ship. They are located in the NY area from what I can see. =)
Deanna
Thirst
in Related Issues & Disorders
Posted
I won't take iron, I am constipated enough as it is! lol
I did have some problems with anemia with my pregnancies, but not since. However, I have not been tested for a long time either, so maybe I will bring it up with the doctor.
Thanks!