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Niteyx13

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    Mesa, Az.

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  1. I know this is a long shot, because I can finding NOTHING about gluten-free info about this restaurant, except the one in Disneyworld (and I live on the other end of the US). I have a graduation party coming up for my niece, and this is where they want to have it at. Does anyone have a clue if anything they have is gluten-free? If not, I guess I will be eating before I go. Thanks!

    Deanna

  2. I think I am in love with this company. The bread didn't quite rise as well as it should have, which I am sure is my own fault. But, it was good hot - which seems to be typical of gluten-free bread (but forget it when it cools down). We ran off to church am we just got back. I tried a piece cooled, and it is still good (even though it didn't rise right)...Hallelujah! The kind I made was Homestyle White. If anyone tries, or has tried, the mock rye please let me know. Yay! :)

  3. Thank you all for your input. Please keep in mind that everyone is different, and not all of us may have the same will power and strength. I have never felt as well as I think I should gluten-free. When I am eating gluten I feel about 80 (at least what I imagine 80 feels like), gluten-free maybe I take off 20 years, but I never feel like I am 28. I would love to be able to stock up on gluten-free food; however, our family does have a small grocery budget. My husband and I are working on ways to improve that. I do walk almost daily, and if I had the energy I would probably go back to cardio kick boxing. I drink tons of water. I am trying to make this work out, but maybe it will take me longer than some of you.

    I was at a baseball post season party for my daughter last night at Peter Piper Pizza. I made some stir fry for myself before going, so that I knew there would be no temptations. As soon as we got there another parent was offering left over pizza. I declined and my daughter took some of it. The lady kept asking me to have some, and my daughter finally says "oh, she can't eat that". The lady asked why, and I told her I was gluten intolerant (people understand that so much better than "I have celiac disease"). She then says "oh, that's why you are so skinny" she pauses and then adds "you are so blessed". What the heck does that mean? I don't feel blessed with this disease. I am in so many other ways, but not with celiac. I know there are other people out there that are worse off than me, and I know that there are people worse off than those people, and there is always someone that has it worse. I am just trying to cope with what I have, and it is taking some time. I have my positive days, and I have my negative days, and I thank those of you who gave tips, and helped to encourage me. Encouragment was what I needed.

    Sorry for the tangent; I am not even sure what the point was now. :blink:

    Deanna

  4. Thank you all for the encouragment. I am back to gluten-free starting today. My Mother just told me she ordered a bunch of stuff online for me yesterday to try. She is so cool. I have only had the blood test, and not the endoscope, so sometimes I go into denial and talk myself into eating gluten. For some reason I seem to think it will be "different this time". I know I feel better gluten-free, although, not 100%. I cheated at Christmas too, so maybe I am not allowing myself time to get well. You all have given me a lot of great ideas. Thanks! :)

  5. Friday night I came home and I was starving, I was upset, my husband was zoned out on TV, and I had just had it. So...I ate a bowl of Life cereal...the next day I ate whatever I wanted to eat - even went to my favorite Italian restaurant, and I have been eating like that since (eating all my favorite stuff with no abandon). I feel like crud now, of course, and I want to cry because I feel like I am so stuck. I hate this stupid disease. I have a very busy life, so I don't always have time to cook meals. I don't know what to do anymore. I know it is all my fault, but I just feel like I don't have the strength to do this for the rest of my life. How do you all cope with this?

  6. Thank you all for your responses. I think I must have slipped somewhere and eaten gluten. It's weird, because I have never totally felt better yet, so sometimes I think there could be something else wrong with me. Had my thyroid drawn again friday, still awaiting those results (I am hypo). Those with thyroid disease: has anyone found that going gluten-free made their thyroid go nuts? Mine was doing very well with meds before I went gluten-free. Sorry for all the questions.

    :)

  7. Since going gluten-free I have also had nightmares at least once a week, often 2-3 times a week. I also have that moment between being fully awake where I see things floating in the room, or things standing in the room. It is very scary!

  8. I have been gluten-free for several months now. The last couple of months, though, I have had waves of dizziness and I feel lightheaded much of the time. I was at the mall last night, and I almost passed out. I also seem to get car sick feeling when I ride in the passenger seat. This is really scaring me, and I just wanted to know if anyone else has had a problem like this? My mother who is an RN thinks I may not be getting enough carbs. Opinions? Thank you!

  9. My blood tests is as follows:

    IgA 4

    IgG 27

    They also did an ANA which was Negative.

    My TSH is 7.928

    She questioned me about my symptoms, and she told me that my thyroid could be to blame for them. I told her I felt this way when my thyroid is normal. I wasn't going to let them get away with this stuff with me again, especially since I have a "weak positive" IgG, and that was after being gluten-free for 2 months, and then going on gluten for the test again. She gave me the "we can't be for sure with out the endoscope" thing, which I realize. But, I can't afford an endoscope right now. Since I feel better not eating gluten she said I can just assume I have it then. I was glad she said that.

    Anyone have an opinion on this?

    Deanna

  10. Hi all! It has been at least a month since I have posted in here. I have been back on the gluten diet for almost 2 months, and I am utterly misearable! I had my blood test today, and I should have my results by friday. If they are positive ::praying they are because I am sick and tired, and I just want to know what is wrong with me once and for all:: I am going to assume I am a celiac - without the endoscope. My son is having tummy troubles, and his dad has said he will accept a blood test diagnosis from me, and has agreed that we can get our son tested if that is the case. Yay!

    Wanna know something scary? I read an article on Ovarian cancer, and the symptoms are almost exact to celiac disease (and of course all the other diseases that celiacs are mis-diagnosed with). It was very scary, but I realize that I have had these problems far too long; I would be dead by now if it were cancer. But, I really hope awareness is raised on celiac disease AND ovarian cancer - since there are so many ongoing problems from celiac disease, and since Ovarian cancer is very hard to find in the early stages.

    Anyway, hope all is going well with everyone! God Bless! :P

    Deanna

  11. Suzanne,

    How I felt was different day by day. I had great days with lots of energy and days that I felt the flu thing too. However, now that I am back on gluten for awhile (for testing) I can see how much better I felt while gluten-free. I am actually looking forward to going gluten-free again! Keep it up; cuz it will definately take time. Hope you feel better soon. :)

    Deanna

  12. MOST (but not all) celestial seasonings are fine...I know there is a list somewhere around the web (sorry I can't be more helpful). I can drink "Honest" tea just fine; their iced peppermint is awesome, and good for our tummies! Some Tazo's are okay too, but be careful. I think calling the company, or checking their web site is probably the best thing.

    Deanna

  13. Thank you both for the responses.

    celiac3270,

    My mom is an RN and she agrees with the year to feel yourself again thing. She says it takes that long just to get the anesthetic they use completely out of your system. My mom is also doing the breast reconstruction. How did they do your mom's? Did they put the spacer thing in, and then have her go back later for the permanant implants? My mom is 67 so I was suprised when she decided to do the re-con (but then, in AZ state law requires insurance to pay for it). Please let me have your mom's E-mail address again. I will definately give it to my mom, sounds like they have some things they could talk about. Thanks a bunch!

    Deanna <~~~back to taking 2 hour naps in the afternoon, and zoking out everynight (gluten-free it was all I could do just to go to sleep)! I can't wait to be gluten-free again! I must be crazy...lol

  14. Just thought I would update everyone about my mom and my gluten diet.

    My mom had a bi-lateral mastectomy on monday (because the cancer she had had a high rate of showing up on the other side and she only wanted to do this once). Her lymph nodes were clear, praise God! Now she is just recovering from it all, and doing a wonderful job of it all. She is one tough cookie. Thank you all for the support I got about this, because it was so extremely off topic.

    I have been on the gluten diet around 2 weeks, I think. I have been eating everything I can...lol...We went to Lone Star yesterday and I ate one of those onions (I love em!), but I don't know if it was the grease, or gluten, or what, but I was really sick the rest of the day with a big time stomach ache and gas pains. I have all the old symptoms back, and man am I exhausted and lethargic. I realize now how much better I felt gluten-free, and I am anxious to go back to it. Hopefully if I do the blood test around the end of this month it will all show up.

    Thanks to everyone. =)

    Deanna

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