lilleroy family
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by lilleroy family
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Has anyone ever heard of camel's milk? I was watching Jack Hanna on Wild kingdom in an interview on GMA and he is lactose intolerant but utilizes camel's milk, wondered if anyone had heard of using this as soy is not my daughters favorite alternative to milk still. Also now that we are getting into the fall season, our family is big into soups, especially...
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ARCHIVED Fish And Lettuce Questions
lilleroy family replied to lilleroy family's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks everyone, its a lengthy deal but I have an ex spouse who seems to believe that our daughter whom is also a celiac should not and cannot consume fish, she has never had Dh but that is his opinion and ventimentally states I am poisoning her if I allow the consumption of fish in my home. I am a celiac myself and we live near the ocean so its not even... -
ARCHIVED Fish And Lettuce Questions
lilleroy family posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I have heard that reportedly consumption of fish/seafood and etc is not good for celiacs? has anyone else ever heard this? Also what about lettuces is there any concern there? Any help someone can give would be beneficial. -
ARCHIVED Constipation
lilleroy family posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
First off I am very embarrassed by this question but since I have been gluten free since March after blood antigens said I was 96% positive for Celiac and a biospy later fully diagnosed me I have now started to have severe constipation to the point that it is painful, I don't even have bowel movements on a regular basis either its like maybe once or twice... -
ARCHIVED How Many More Diagnosis's Will There Be
lilleroy family posted a topic in Parents, Friends and Loved Ones of Celiacs
My daughter was diagnosed with celiac in mid February and we are still having extreme complications from it, she has an engy tube on steriods and now the doctor wants to switch her to a medication called 6mp and believes she has an autoimmune myopathy in the developing stages of chrons disease. We know she has hashimoto's thyroiditis, celiac and now this... -
Does anyone have a recipe on how to create gluten-free mozzeralla sticks, we have found almond cheese to substitue for the real mozzeralla as daughter is currently unable to consume milk products, but we so terribly miss mozzeralla sticks and mariana sauce. Any help?
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ARCHIVED Failure To Thrive In Celiac Child
lilleroy family replied to lilleroy family's topic in Coping with Celiac Disease
I have seen so many people saying they wer diagnosed by enterlob what is that exactly, my daughter and I both had blood antigens done and then an endoscope and biospies done to confirm we were positive for celiac disease. My blood came back 92% positive and after the scope even I could tell from the pictures I had full blown celiac yet no symptoms because... -
ARCHIVED Who's Pediatric Gi Ever Requested Parent Results
lilleroy family posted a topic in Parents, Friends and Loved Ones of Celiacs
Has anyone ever had thier child's pediatric GI want their results to compare to their childs results to clarify how to treat thier child? I don't see the correlation between our results, yes we both have it yet I am not symptomatic and she is extremely ill? I also don't really trust this dr to hold to the confidentiality of my results as I have a former... -
Need to locate a good celica specialist(pediatric perferred) in the Rio Grande Valley area? Can anyone help? Thanks
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ARCHIVED Why to be careful with Lotions, makeup, shampoos etc.
lilleroy family replied to kalo's topic in Coping with Celiac Disease
Just an FYI Burts Bees has a line of makeup, shampoos, lotions and even toothpastes, which is wonderful smells great, is gluten-free friendly and is also eco friendly plus the manufacturer will provide you with a list of all their gluten free products. We love their lip balms and lotions as they smell great and feel awesome too. I use their foundation/moisturized... -
ARCHIVED Failure To Thrive In Celiac Child
lilleroy family replied to lilleroy family's topic in Coping with Celiac Disease
She's eight, we are currently dealing with Children's Mercy in Missouri but they don't seem to know what to do. She is on Leventhryroid,calicitriol,(recently stopped also)calcium supplements(3000mgdaily)(changed to a bicarbonate instead of a carbonate)Magnesium(recently stopped ),Zinc sulfate,Pertinzole(steroid)Prevacid, PotassiumK and a daily childs vitamin... -
ARCHIVED Failure To Thrive In Celiac Child
lilleroy family posted a topic in Coping with Celiac Disease
I have concerns questions and hope some one out there can help me. My daughter was diagnosed in Mid february this year with celiac disease and hashimotos thyroiditis(hypothyroidism). Since the initial diagnosis we have been in and out of the hospital totaling now three of the five months since diagnosis. Our most recent hospitalization was due to failure...