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ellen123

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ellen123

  1. ellen123
    Thanks, everyone, for your great suggestions. I'm not sure which one I use but if whatever I do comes out successful, I'll let you know. Ellen
  2. ellen123
    Does anyone have a tried and true stuffing recipe that's gluten-free but also doesn't rely on cornbread? I have family members who have multiple food allergies (corn, casein, eggs) in addition to gluten intolerance. I've tried two experimental stuffings so far (stuffed a chicken each time) using gluten-free bread made primarily from brown rice flour and...
  3. ellen123
    I'm not sure if this links to the same article but my son just sent me this link to a Chicago Tribune article about Whole Foods labeling issues. Open Original Shared Link Ellen
  4. ellen123
    I have not sought an official diagnosis because, as a retired lawyer with a lot of negative experience with the insurance industry (and also as someone who knows from personal experience how tenuous health coverage is when you're not in a group plan), I don't want to take the chance of being denied coverage, or terminated from my individual plan, now, or...
  5. ellen123
    Are you sure there's not another cause lurking out there? For instance, many DH sufferers find that iodine (such as in iodized salt, shellfish, seaweed) and NSAIDs such as ibuprofen, advil, etc. aggravate the rash and can cause an outbreak. This appears to be the case for me, and I've read similar comments on this forum.
  6. ellen123
    Many people on this forum who have those itchy bug-bite-looking bumps say it can be DH. I have them too, and although I haven't had them biopsied, I believe it's DH. I had it only occastionally, a couple of times a year maybe, before I went gluten-free. Since becoming gluten-free last winter, I now get the bumps much worse if I accidentally ingest gluten...
  7. ellen123
    I am happily gluten-free since February 08. My severe daily neck pain is gone as are the frequent migraines associated with the neck pain. Peripheral neuropathy is improved, although not completely better. DH has gotten worse if I get cc'd (or it could be from seaweed, iodized salt, or shellfish, which I now try to avoid. The only problem I'm having is...
  8. ellen123
    I have DH and neurological symptoms but no GI symptoms. I haven't had a biopsy or endoscopy so I don't know what my villi look like. I consider myself to have celiac disease based on the fact that I have DH and neurological symptoms and that a gluten free diet has dramatically improved all symptoms overall in the 4 months I've been completely gluten free...
  9. ellen123
    Wow, that's really good to know. It's amazing what I've learned from others on this site in just a few months! Thanks. Ellen
  10. ellen123
    First, HAPPY BIRTHDAY, Ursa. I'm also 55, so haven't quite made the 60 mark yet. I haven't been gluten free for that long, only a few months, but I am still mystified by the sudden onset of symptoms when I cannot for the life of me figure out how I could have gotten glutened. I tend to feel like the many good days I have are lucky, but I've stopped questioning...
  11. ellen123
    According to Dr. Peter Green [Celiac Disease: A Hidden Epidemic], If you have a positive diagnosis of dermatitis herpetiformis, you have celiac disease. And you must adhere to a gluten-free diet no matter how "normal" your intestine may appear. (Emphasis his.) There is no other known cause of DH other than celiac disease. Apparently the only really reliable...
  12. ellen123
    That sounds like a good idea. Or maybe I can have them write "allergies: wheat, barley, rye." I'll give this some thought. Thanks.
  13. ellen123
    I've been gluten free for about 3-1/2 months now and I also noticed I was gaining weight. In addition to the explanations above, I found that I was eating a lot more carbs than I had been before and I'm guessing that contributed to my weight gain as well. In my effort to find gluten-free foods, I was relying a lot on rice and noodles for both lunches and...
  14. ellen123
    Thanks, Yolo. Please see my reply to Ursa's comment for the answer to why my doc hasn't noticed that I'm feeling better now. In short, I don't go to doctors unless I'm scheduled for my 100,000 mile service, or I feel like I'm dying. But you're right. It feels like my doctor should be informed, not so much for any reason I can think of but more so for...
  15. ellen123
    Thanks, Ursa Major. In fact, it was your comment on another thread that made me understand for certain that I do have celiac disease. I am positive I have dh, but no, I have not been tested. I am a person who seldom goes to doctors. In fact, in spite of years of pain in my neck, for the most part I didn't seek treatment, as on the few occasions when I mentioned...
  16. ellen123
    Sorry, I guess I wasn't being clear. I don't need the official diagnosis or a note scrawled in my records. I want to tell them because I feel it's important to educate anyone and everyone who needs to know, not just family and friends, but health practitioners too. Especially since my daughter was given misinformation about it and they are likely to similarly...
  17. ellen123
    I am anxious to inform our family doctor about the fact that I have celiac disease but I don't want it in my medical records because I am afraid it will result in a hassle with my current health insurance company as well as hinder my ability to get health insurance in the future. Even though I wasn't aware of celiac disease when I got my insurance I know...
  18. ellen123
    Me too! I had begun to think I was getting off easy, as my DH outbreaks were getting milder after only a few months of being GH. Then I got glutened by assuming something was gluten-free that wasn't, and I had a major outbreak too. It lasted 2 weeks and covered places I didn't even know I had! Sorry to hear you're in the same boat as me, but since we...
  19. ellen123
    Thanks for the info -- but the problem is not that advil/ibuprofen/motrin don't work. They work great for my headaches if I take 2 or 3. The problem is they aggravate (activate) my DH, which lately has been more irritating than the migraines! I wonder whether Mobic or Relafen would have the same effect as advil/ibuprofen in terms of instigating a DH outbreak...
  20. ellen123
    Thank you, Ursa. I'll try playing around with E.S. Tylenol first, then if necessary will try to get a prescription for the one w/ codeine. I'll also look for homeopathic migraine remedies -- I have one for "trauma" type joint and muscle ache that I've used with some success, but not one specifically for headaches.
  21. ellen123
    Wow. I didn't know this either. Thanks Happygirl (and Ursa) for this information. I clearly have DH and other symptoms but am self-diagnosed. Since going gluten-free and seeing obvious improvement, I've been telling myself and others that at most, I can say I'm "gluten intolerant" or "gluten sensitive" while being unsure that I have celiac disease. Hmmm...
  22. ellen123
    Hello friends, Now that I have learned that anti-inflammatory drugs like ibuprofen (and aspirin) caue new outbreaks of DH in many people, including me, I need some suggestions about the most effective pain-relief for headaches and/or neck pain. Since becoming gluten-free, I now have far fewer episodes of severe neck pain and migraines, but they do crop...
  23. ellen123
    Oh of course! Liquids and gels . . . . I guess I was picturing the Tasty Bite boxes in my mind and didn't think about what's inside them! I guess all the Tasty Bite curries have to go in luggage.
  24. ellen123
  25. ellen123
    While everyone's advice has been great, I feel like Happygirl really summed it up: if you have any doubt, just don't eat it. If you haven't read enough yet on any given day to know that what you're eating is safe, and that it's been prepared safely, just say no. I have learned this the hard way, and I have to keep reminding myself every day. Yesterday...
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