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horsesjapan

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  1. Well yesterday was just a big disappointment. I was assured that this dr was the best celiac dr in this part of Italy but he didnt' want to hear about any other symptoms other than GI symptoms and said based on the negative results for celiac of my bloodwork from the military dr (which had a negative Endomysium IgA and Gliadin IgA but no total Iga or tTg...
  2. I have read about kids whose "growing pains" never recurred after going gluten free. So I would say celica/gluten intolerance CAN cause bone pain. I'm almost convinced it can cause just about anything! If certain things don't resolve on a totally gluten free diet, then I'd pursue some other avenues for those symptoms. Nancy
  3. Ciao! I am an American stationed overseas in Italy and I'm looking for gluten free flour to bake with for my ds. There is a farmacia not too far from our house that has a lot of gluten free items, but they all seem to have dairy or egg in them which he is also allergic to. Same thing with the gluten free section at the local Coop store. Any other suggestions...
  4. Skin testing tests for IgE reactions, which involve histamine (think hay fever, itchy eyes, watery eyes, runny nose, anaphylaxis). Intolerances (which I think is a dumb name, it still involves an immune reaction so *I* call it an allergy) are usually IgG reactions which can only be tested for with a blood test. IgG reactions are often delayed by a couple...
  5. You say she is sensitive to milk, have you removed all dairy products from your diet? My ds would react to foods that I was eating. Your diet may be the cause for the gas she seems to experience. Problems we had with my ds were reflux, projectile vomiting, bloody stools, and eczema. He also was born average height and above average weight (10 lb 2.5 oz...
  6. You say she is sensitive to milk, have you removed all dairy products from your diet? My ds would react to foods that I was eating. Your diet may be the cause for the gas she seems to experience. Problems we had with my ds were reflux, projectile vomiting, bloody stools, and eczema. He also was born average height and above average weight (10 lb 2.5 oz...
  7. What you probably want to request is an ELISA or RAST blood test (I'm not sure of the difference) to check for IgG reactions to foods. They can test IgE via RAST (not sure about ELISA, we haven't dealt with that) as well, so you might have to specifically request IgG. You might want to start with the main allergens (wheat, soy, dairy, egg, peanuts, tree...
  8. My ds has those allergies too, I have used Bob's Red Mill products with some success. Right now we are stationed overseas so I am seriously limited in options. I use milled flax seed for egg replacer in many things (plus he gets some extra Omega 3's that way!) and I have used EnerG Egg replacer in the past with success (but don't have it here). I just...
  9. From the Open Original Shared Link, "Rice Flour, Corn Flour, Tapioca Flour, Xanthan Gum" Nancy
  10. Well, he was accidentally glutened/soyed last night. I grabbed a can of enchilada sauce to put on dinner last night, forgetting that I usually dump salsa over the enchiladas and thought AFTER he'd eated that I didn't check the label (not sure why it was in my pantry, unless I"ve had it there since pre-diagnosis lol). I'll keep a watchful eye on him and...
  11. Thank you for your explanation. It makes sense, though I agree that it is strange to include it! They did do the Endomysium IgA test which was negative, but w/out a total IgA I don't know if that is valid. I finally got my referral put through from the doc, now I'm waiting to hear back from the GI with an appt. There are two hospitals I can go to here...
  12. I keep reading that the blood tests are not totally reliable. You could order the genetics test from enterolab which would tell if you have the genes for celiac or gluten intolerance. If those are negative, then I'm not sure what to say, except that maybe there are more genes involved than they currently are aware of, or it's not a celiac/gluten intolerance...
  13. So I posted my test results before, but here they are again: Gliadine IgA 2, range is <7 Gliadine IgG 8, range is <7, RESULT IS HIGH Then, underneath, is this: Interpretations: REFERENCE RANGE: IgA: <3 mg/L IgG: <3 yrs: 30 mg/L >3 yrs: 18 mg/L What does that mean?????? Are those *my* ranges or are those "normal" ranges...
  14. "Another thing you may want to do is to do a image search for DH photos. DH leaves a very distinctive purplish scar that usually doesn't fade real quick, well until gluten-free anyway. Perhaps if he sees pictures that look like his rash that will encourage him to either get a skin biopsy or just go gluten-free. While the skin will hold the deposits for a...
  15. I would be leary of going on the recruiter's word. Their job is to recruit, and many have lied in order to meet their requirements. Not all recruiters are bad, but there are some that will say whatever it takes! I dont' know for sure, "just" being an Air Force dependant wife, but I doubt there are gluten free MREs. Some jobs don't allow for a regular...
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