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B'sgirl

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Latest Celiac Disease News & Research:

Everything posted by B'sgirl

  1. B'sgirl
    I grind my own flour. Rice flour tastes much better if you grind it fresh. I usually use a combination of flours but I use brown rice flour the most. I also use Jasmine and Sweet rice flours. 1/3 to 1/4 of my mixture has fresh ground millet grains as well. I have to buy my starches but I get them in bulk and store them in sealed buckets to save money. It...
  2. B'sgirl
    We actually do not even have Celiac. Testing was negative and genetic testing showed gluten intolerance but no Celiac as well. But the insurance doesn't care. It's all the same to them. But no insurance doesn't mean we would go without monitoring anything. It was a high deductible so we planned to pay for routine care and minor problems with cash. (And honestly...
  3. B'sgirl
    My problem is not insurance denial. It's a rate up. They will not reduce the rate unless there have been no symptoms for a year. But with 3 little children it's nearly impossible to avoid accidental exposure. It's frustrating because our health is great and we hardly spend any money on health care. We applied for a $12,000 deductible plan and they still rated...
  4. B'sgirl
    I need to get some stool testing that reports bacteria and yeast levels and varieties. I'm going to take management of this into my own hands. What's the most cost-effective way to get this done?
  5. B'sgirl
    The gist of this process: 1. Some food (or molecule or protein or parts thereof) gets into the blood stream. It may be that this item is supposed to get into the blood stream or it is pulled into the blood stream too early (the enzymes or bacteria have not yet fully disassembled the item) or it should never enter the blood stream. 2. The body
  6. B'sgirl
    I've tried several times to fry cornmeal with no wheat flour mixed in. It falls apart in the fryer every time! What do I mix in with the corn meal to make my hush puppies stay together?
  7. B'sgirl

    Happy birthday and may God bless you today!

  8. B'sgirl
    What kinds of challenges do your kids face with their "food allergies" and other issues? What do you do to help them feel better about it? I have a 2 1/2 year old and a 1 year old who have to be gluten/milk/soy/egg/yeast free. So far they are a little young to feel out of place but I want to know how to prepare myself. I would love to hear specific experiences...
  9. B'sgirl
    I know someone in Austria with Celiac who cooks with this. The brand name is Wiechert and the flour is called Fertig Mehl. Does anyone know of anything like it available in the U.S. or online? I just wonder if it would taste better than rice or bean flour. My friend claims it does. I'd pay good money for some if it was really free of gluten content.
  10. B'sgirl
    Sounds like my son. I recommend reading a book called Raising Your Spirited Child by Mary Sheedy Kurcinka. It has nothing to do with Celiac but I found it to be very helpful. Even if your child doesn't fit the exact mold it is helpful. He just had a sudden influx of energy after going gluten-free and we had to find ways to manage it. Being clingy can also...
  11. B'sgirl
    1. How long does it usually take a young child to catch up to the age average for size after going gluten-free? If growth was stunted they may never actually catch up. It is better to compare their personal growth than compare to other children. 3. I'm concerned that her blood work was negative years ago and is still negative now for celiacs. She...
  12. B'sgirl
    I agree with this suggestion. It can be really hard to read the symptoms when they are little. If the baby is gluten sensitive feeding it to her could prevent the absorption of important nutrients and you won't realize it until the damage is already done.
  13. B'sgirl
    I had the same concerns about having my child tested because he was so young (not even 1 1/2) when I suspected Celiac. He had many symptoms though and so I figured it wouldn't hurt to just put him on a gluten-free diet and see what happened. He improved a great deal with the diet change and I later had to eliminate milk as well. After awhile I had him tested...
  14. B'sgirl
    I had the same experience with my daughter. She would always scream and arch her back all of the sudden and I never understood it. She quit doing when she was about 6 months old too. I can't remember when I started avoiding gluten with her so I'm not sure if there is a connection. I am still not sure if she can tolerate it or not. I just don't give it to...
  15. B'sgirl
    I went on a gluten free diet while breastfeeding my second child because my first child had celiac and actually weaned himself (probably because my milk was harming him) by the time he was 4 months old. I wasn't going to take any risks w/#2. And what I learned from it is that I actually feel a lot better on a gluten-free diet. My symptoms were so mild I didn...
  16. B'sgirl
    The gluten sensitivity test will tell you if your child is sensitive to gluten. The transglutamase test tells you if your child is absorbing food, I think. Which would you rather know more? I think if it were me I would want to know what exact thing was bothering him so I would do the gluten test. You can tell if food is being absorbed by growth and observable...
  17. B'sgirl
    If you are doing a blood test or a biopsy there is no guarantee that the test will come up positive no matter how much gluten in in the diet. My son's tests came up negative but he is most definitely sensitive to gluten as well as casein and soy. We eventually had him tested through Enterolab and although he had not had milk or gluten for almost a year his...
  18. B'sgirl
    I had a similar story. I took him off gluten, he did better. After a little while he had trouble again. I took him off milk, he did better. After awhile he had trouble again. I took him off soy and he did awesome. Now he's having trouble again. You may want to consider that your child has multiple allergies, leaky gut, or gall bladder problems. I won't bore...
  19. B'sgirl
    My two-year old was in the same situation. After going gluten-free he showed a lot of improvement but still had periodic undigested diapers and rashes. We later found him to have problems with milk, soy, and possibly corn. You may have to try and eliminate more than just gluten to find out.
  20. B'sgirl
    My two-year-old gets it as well. The only thing I have found that helps is a mixture of A&D, Mylanta (to neutralize the acid), and baby powder (just to thicken it to an easy-spread consistency). My son has problems with gluten, milk, soy, egg, and yeast. His rashes get so bad he can't sit down. You might need to rinse your child with water after a diaper...
  21. B'sgirl
    Is it possible to tolerate Soy Milk (Silk) and not tolerate Soybean Oil (vegetable oil)? It seems that may be the case with my toddler.
  22. B'sgirl
    I am Mormon too! (I posted earlier on this topic) and that was the church I was referring to when I said we had stable nursery leaders. They have been really good about everything down to cross-contamination. They wipe down the table and have B sit in the same spot every time, far enough from the other kids so he doesn't steal their snacks. They watch to...
  23. B'sgirl
    My neighbor used to give her daughter peanut butter rolled in powdered sugar as a snack to try and help her gain weight. You might try something like that, if you haven't already.
  24. B'sgirl
    We took him to an allergist and came up with nothing. His symptoms: doesn't sleep well, lots of large bowel movements (4 a day), often has what looks like sand in his diapers, bad diaper rash, very cranky at times, eczema, bloated belly, sometimes acts disoriented or spaces out. All those symptoms improved after going gluten-free, but weren't completely gone...
  25. B'sgirl
    At my church they have the same people in every week so they all know about Barrett and his intolerances (he is 2). They keep a bag of his own snacks in the closet so I don't have to worry about bringing them. At church activities I just send his own food with him and inform the leaders. There are a few other kids with Celiac who go to my church and so we...
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