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lynne1978

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Everything posted by lynne1978

  1. Hiya not written for a while. Just got some of my result back, I have HIGH levels of elastase in my stools, but am unsure what this means. Anyone know? I have been looking on line but can only find explanations for low levels. cheers
  2. Hi all, couple of questions, sorry if I sound daft/silly/thick etc or if you've already replied to answer these q's but i've been trying to look up the answers and theres SOOO many replies I cant find them! 1. What is a herx? been trying to figure out what u are talking about on here! 2. What are these tests you are discussing at the moment and what...
  3. Thanks I was thinking about getting something like it done again. The potato croquettes are just potatoes and oil, no dairy, and I have had them in the past and been ok with them. The sausages had: Pork Rice Peas sweetcorn turnip onion potato starch salt beef collagen casing sugar onion (twice?!?!) coriander thyme any thoughts on that...
  4. when i'm feeling ok, pretty much my diet consists of chicken, rice, rice pasta, cucumber, bananas, lettuce, tuna, rice cakes, water, sometimes a little soya in tea, cocacola, I was feeling really good this morning, I just had some sainsburys freefrom gluten free sausages with potato croquettes and eggs (the potato things and eggs seem ok with usually) and...
  5. Hi, thanks for your reply, i have had accupuncture for some things, which helped for a little while, I did have something a few years ago for allergy where they get you to hold a metal stick thing and pots of substances and measure some energy (dont know what it was called) which said I should avoid Aspartame, MSG and dairy. I had a blood test sent away years...
  6. Hi all just wondering what people think the best place to get tested for allergies etc? I would like to get some tests but not sure which direction to go. Any opinions/experiences? Thanks!
  7. Hi thanks! Its really good to know I am not crazy and that there are other people who dont feel 100% every day! Hopefuly i can figure out what is making me feel so bad!
  8. Hiya I have been reading this thread for a while and i've gotten some really good ideas from it. I feel exactlythe same as you a lot of the time, I am frightened to eat cos I feel awful. I have started not to say anything to people now as i am sure they think i'm making it up, and I just feel so bad and oftern sit and cry, thinking there must be something...
  9. Hi all, i have gone gluten free in the past, just using basic plain foods and felt fantastic, this time i have been eating gluten free cakes/bread and bought some gluten free corn cereal. I feel AWFUL! Any suggestions as to why this may be? Anything in them that might be causing me to feel bad? I have a 'stinging' headache, 'fizzy' head and feel shattered...
  10. [quote name='Ursa Major' date='May I find that if I put rutabaga in it is a little more satisfying.
  11. Hi I posted another topic on the 'coping with' section, but i thought i'd post it in here too. I am in dire need of tasty food that is free from gluten, dairy, nighshade and soya free. Hard one, but I really hope someone out there has some ideas as to what to eat!!
  12. I am having a real hard time making meals up, that are gluten free, minus the potatoes etc, also I'm wondering if soya and eggs are affecting me. are there any good suggestions for appetising meals that are basic in content, and gluten free? I'm getting so fed up getting ill from foods, or bored with them!!! Any suggestions for tasty safe recipies would be...
  13. lynne1978

    ARCHIVED Mad Mother?

    LOL thanks! My doctor also actually told me there was no test that could determine a gene for coeliacs... when I told him I had read about it he then said oh well if there was it'll be too expensive to test anyway...!!
  14. lynne1978

    ARCHIVED Mad Mother?

    No its not the same doctor who referred me, although I have had to fight to get any tests for myself anyway - the docs seem to be too busy and think ''well, IBS can be extremely painful'' is going to solve everything!!! I have another appt for him for thursday and hope to get a blood test done then. It makes you just want to bang your head against a brick...
  15. lynne1978

    ARCHIVED Mad Mother?

    Here's a good one... I am being tested at the moment, my son was taken off wheat as a baby due to vomiting, he now is back on wheat and is showing classic symptoms, black eyes and yellow skin after bread/cakes, stomach aches, vomiting, no attention, cant sit still, etc etc. I took him to the Dr today, who told me he is on the 10th percentile for weight...
  16. Has anyone had a reaction to frizz ease? My head has erupted and I feel like I have had a reaction but not eaten anything to my knowledge, when I checked the label it states wheat as an ingredient!!!
  17. Think you can get it pretty much anywhere! I have a rash (not diagnosed but pretty sure) develop when I eat gluten, in my hair, eyebrows, ears, back of thighs, and under my boobs!!!! (sorry for the decsription LOL)
  18. Hi yes hes been on low gluten at home, although he does still get it in his diet, definately thursdays and fridays with school dinners, and at least everyother weekend due to either my parents or his grandparents feeding him cakes, biscuits or loads of sandwiches, and readybrek!!! he's really ill after that, I learnt this but they wont listen to me, hey,...
  19. Hi thanks so much for your reply YES!!! he has bad breath, REALLY REALLY bad farts-i mean you clear the room if he says 'pardon me' as you cant breathe!!! He is also starving all the time, to the point this morning getting to school, he asked for snacks and was told to wait and he sneaked a snack anyway even though the teacher had told him no. I have booked...
  20. Can anyone help me... I just spent about an hour licking thankyou letter envelopes for my sons birthday and now feel really tired and sick and have a cracking headache. I am in the process of being dx and was wondering is it a relatively common thing for it to be in them and is there enough gluten to cause a reaction like this?
  21. YHi thanks! yes he has; we have been looking in to ADD and ADHD as he cant concentrate on anything or keep still!!! Unfortunately I cant use enterolabs, I am in the UK. That sucks, Itd be a great help. I think i'm gonna go to the doc monday and tell him everything and see if I can get him tested too. at least if it was disgnosed I can then get really strict...
  22. Yeah Ive been thinking this for some time, I dont give him bread ect at home, and his teacher has even commented on how much more attentive he is at school. The problem is his dad (we dont live with him) gives him everything and he;s often sick on returning from seeing him, and my parents don't believe he has a problem, myself (for 5 years) and my son have...
  23. Hi Just wondering, I am being tested for coeliac, my son was on a wheat free diet when little as he was always sick, and as he's gotten older they said he'd grow out of it, so hes eating normally now. The only thing is, when he's had a lot of wheat he's got dark circles around his eyes, tummy aches, is sometimes sick, very naughty and grumpy, and has really...
  24. Please help... I have always had digestional problems, since I can remember, and I have always felt 'ill'. I used to get so upset and think that noone should feel that ill constantly unless was something drastically wrong with them. I have had blood tests done for everything imaginable, and the tests for coeliacs always come back negative. I have tried...
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