JenR
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Everything posted by JenR
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ARCHIVED Gluten Free: How Long To See Dh Improve?
JenR replied to JenR's topic in Dermatitis Herpetiformis
ravenwood, thanks for telling me your story. I'm really sorry you had to go through all those years of denial and misdiagnosis from your healthcare providers. It's so sad that this happens. Unfortunately it happens with lots of ailments - I've heard similar stories from people with chronic progressive spinal arthritis as well, and I myself have been through... -
ARCHIVED Gluten Free: How Long To See Dh Improve?
JenR replied to JenR's topic in Dermatitis Herpetiformis
I think you misunderstood. He didn't strike me as reluctant to do the biopsy. He felt the blood test was the best way to go. From my reading it appears to be the gold standard for diagnosing celiac, even more so than endoscopic biopsy. It's certainly less invasive! From all I have read, it appears to me that the blood test is more accurate than the biopsy... -
ARCHIVED Gluten Free: How Long To See Dh Improve?
JenR replied to JenR's topic in Dermatitis Herpetiformis
Thanks for all the helpful feedback! I followed up with my derm this week and he tried suggesting it might be from fleas ... I do have one indoor cat but come on, I don't think so! And then he said the only other thing he's thought of is DH - ding ding ding! Rather than do another biopsy he decided to send me for bloodwork, the tissue transglutaminase... -
I have an undiagnosed rash, on & off for the past decade. Recently biopsied (the rash, not the healthy skin outside it) and found to be not psoriasis, but not anything else in particular. I can post the verbiage from the biopsy report if it might be useful to anyone. I'd be happy to hear opinions on whether this sounds like DH (I've looked at lots...
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Thanks Nora - I am going to mention this issue to my doctor when I go for my annual exam in a couple of months but I doubt she'll see rationale for celiac bloodwork - and frankly I'm not sure I see it either as it must be a very low grade gluten sensitivity IF I have it. I never heard of enterolab but looked into their products - seems the stool test isn...
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I have been reading a lot in these forums and learning a lot about DH! It appears to be a, uh, many splendored thing I have a rash that comes and goes and by process of elimination I believe it may be DH. However, it's not "textbook" along with the usual definitions one finds on medical websites. I am 36. 10 years ago I had a terrible outbreak...
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