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vmlehtonen

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  1. Celiac usually takes about a week. I have the number to our lab here and I call them and check in after three or four days and get the results myself. I also check the box on the form that says "copy to: patient" so that the lab will send me a copy of the results. Ask what the numbers are when you get the lab work back and check it versus other numbers...
  2. My daughter and I are also IgA deficient, that's what it sounds like you are. IgA is the most common globulin deficiency there is, it just means that you might be a little more prone to sickness than others, and more prone to other autoimmune diseases (from what the doctors say). They also thought she may have Lupus; those are autoimmune diseases. As is...
  3. Daughter and myself having celiac symptoms, but we are BOTH IgA deficient. I am having trouble getting the doctors to order the right blood tests. My daughter had her AGA IgG come back high (22, normal is 0-10). But that is the only indicator that she may have celiac. There is conflicting journal articles to whether AGA IgG is a good measure for IgA deficient...
  4. I have been trying to read up on IgA Deficiency and Celiac. My daughter had a blood test and is IgA Deficient and her AGA IgG came back high. Some articles say to perform a biopsy if this happens, and some articles say that this is not a good determinate of Celiac. I have been reviewing tons of journal articles and I just don't know what to believe. I...
  5. If I were you, I would be interested to see what blood tests the doctors ordered. I am having lots of different GI problems as well, and they ordered a celiac panel for me just to humor me and I MADE them do an IgA test as well, they didn't want to, and guess what? I came up IgA Deficient. If you are IgA deficient you can get a false negative on the serology...
  6. I am not sure which they used, I just know that the person on the phone told me that the normal started at 34 and went up to like 350 or something. Anyways, they also told me that <5 is the lowest possible score for IgA at this lab because they don't even take the time to measure it if you have less than 5, so it could be 1 or 2, but it seems that it...
  7. First test is back, I am IgA deficient like my daughter (<5 was my level, same as hers)! So I called the office and asked them to add AGA IgG, TtG IgG, we will see if they actually follow thru! Vickie
  8. That looks like a total IgA count (I think the Qn is Qunantitative), although he doesn't look deficient, it looks on the low side. I am going through a problem with my daughter, she has a few symptoms, not many, but she is IgA deficient (her IgA Quantitative was <5 and normal is 34-305) She is severely IgA deficient. And when the doctor ordered her...
  9. I took the advice of others and went to the doctor and asked for the Celiac Screen. She didn't want to do the total IgA for me and I insisted further and she told me that insurance might not pay for it, and I said I didn't care, I needed it as my daughter has IgA deficiency; she didn't think I needed it! How unaware these doctors are about Celiac is mind...
  10. Did you have IgG levels (instead of IgA) tested at all with the AGA or TtG? My daughter also had ITP when she was younger so they kept asking us if Lupus runs in our family (my grandma was also tested for Lupus and was neg.); there may be a connection between all of these disorders with my daughter since they are all autoimmune. I think that going gluten...
  11. happygirl--thank you for the website; that is one of the sites I found in my search that made me worry about her positive AGA IgG count; I have read conflicting information with what's in that article. Because the AGA IgG is not as sensitive/specific to celiac, some doctor's don't recognize it as a problem with celiac, but since Julia is IgA deficient I...
  12. I think I would feel confident putting her on a gluten free diet without having a biopsy if a Gastroenterologist told me to do so. With our pediatrician not even knowing that her IgG was not normal or why it wasn't normal or even being concerned that it wasn't normal, I don't feel confident with his initial "everything's ok" diagnosis. I have another...
  13. I have a daughter who was diagnosed IgA deficient at 2.5 years old and she is now 5.5 years old; I asked the doctor to do a celiac test because I just found out that we have a family history of this and she has some of the symptoms. When her bloodwork came back they said that everything was FABULOUS (as the nurse put it); I had already called the lab itself...
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