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TaylorsMom

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Everything posted by TaylorsMom

  1. TaylorsMom

    Happy birthday! May God bless you today!

  2. TaylorsMom
    The endoscopy went well. The worst part for Taylor was having the IV put in. The worst part for me was watching her "go under" from the anesthesia. The GI said he didn't see anything to the naked eye but said that what we are looking for is microscopic so we have to wait for the results. We get the results on Thursday of this week in the evening at our...
  3. TaylorsMom
    Bridget, Taylor is 2 years old, just had her birthday last month. I wish the procedure was earlier in the morning but to be honest, I don't think Taylor will be too affected by it. She really doesn't enjoy eating anymore, so as long as she can have clear liquids she'll be fine. As far as the enema, I'm not exactly sure why I have to give her one, guess...
  4. TaylorsMom
    "Her bloodwork came back inconclusive (low IGA/normal TTG), though it was done too soon to be accurate, but with the low IGA I am told it the TTG results can't be trusted. She has one of the two genes, though I didn't find out which." Can someone explain to me why results with a low IGA and a normal TTG can't be trusted? My 2 yo daughter had the same...
  5. TaylorsMom
    In my previous post I mentioned that Taylor's blood work came back negative for Celiac. We saw her GI last week and he still says that there is a fair chance that she does have celiac, but the blood tests were negative because she may still be evolving into the disease. So, I got a call yesterday and they want to do the endoscopy tomorrow! I had no idea...
  6. TaylorsMom
    she does not have Celiac Disease. I am relieved but also very confused right now. I just can't understand, if it's not Celiacs, then what? I just can't accept that her symptoms are of a normal, healthy toddler. The nurse suggested that her distended abdomen may be caused by swallowing excess air, huh, that doesn't make sense to me. And I still don't...
  7. TaylorsMom
    Kirsten, I know that we talked earlier today about all of this but I just wanted to respond for everyone else. Taylor (going through testing for Celiac) will often refuse to eat, but she will beg me without end for something to drink. There are times that she goes for days without eating anything but a banana here, some strawberries there, maybe some...
  8. TaylorsMom
    Rebecca, I think Taylor may just be at the beginning of not growing anymore. She has only gained 2 pounds in a years time and only 3 inches taller than what she was at her 1 year appt. So I think, like your son, she may continue to fall on the charts and possibly even lose weight, only time will tell. Megan
  9. TaylorsMom
    Good, I'm glad that he ordered the right tests! Taylor is not at all Gluten Free right now. We did have her off of dairy because that was her regular ped's first thought, that she was allergic to dairy, but we gave that a month with no changes so were giving her dairy again. Thanks, Megan
  10. TaylorsMom
    My dd, just turned two, rarely sleeps through the night. She just saw a ped. GI today and he is testing her for Celiac. A normal night for her consists of falling asleep on her own, but then she wakes up at least 2 times usually more. She does a lot of whining and moaning in her sleep also. There have been many times that she wakes up and seems very uncomfortable...
  11. TaylorsMom
    Hi, were back from Taylor's GI appt. The doctor was excellent and really took the time to listen and talk with me about Taylor's symptoms! He said that he has a "strong suspicion" that she has Celiac. He ordered some more blood work and is scheduling an endoscopy. Here is a list of what the script for the bloodwork says, can anyone tell me if he's covered...
  12. TaylorsMom
    Hi! Thanks again for all of the replies and encouragement. Thanks in part to all of your help my daughter got a referral today to see a Pediatric GI!!! Her appointment is scheduled for September 2nd. I will keep you all updated. Thanks Again, Megan
  13. TaylorsMom
    I have a question that may not be linked to Celiac Disease at all. I believe that my 2yo has Celiac but I am still working with the ped to get her tested (you can read my other post to hear the story). Anyway, I'm curious if any of your children developed a mysterious rash before becoming gluten free. My dd has gotten a rash 3 times now (in just over a...
  14. TaylorsMom
    I am far from an expert but I thought I'd give a suggestion anyway. Is he lactose intolerant as well? Is it possible, since at 8 1/2 months I'm sure he's trying new foods, that he has recently had a new dairy product and he's not handling it well? I'm not sure of your story before going gluten-free, so I may be way off. If so sorry in advance. You are...
  15. TaylorsMom
    MaryAnn, First of all you are so fortunate to have a Ped. that is educated about Celiac. I'm still not sure if my daughter has Celiac or not but I would love to have a Ped that would even consider it! As for your son's symptoms, he very well could have Celiac. I have done endless research and have found that Celiac presents itself with an array of...
  16. TaylorsMom
    Thank you ladies for giving me such reassurance that I am doing the right thing. It's nice to hear that you have all been in my position and eventually did get a diagnosis, so it gives me some hope. Heather, I am in Northwest Indiana about 30 miles south of Chicago. Through my online research of Celiac Disease I have learned that the University of Chicago...
  17. TaylorsMom
    Hi. Thanks for all of the responses. We went to see the doctor this morning and I still don't have many answers. I told him again of all the symptoms and he ordered a whole list of blood work, stool samples, did a x-ray of her stomach and also wants me to take her in for a sweat test this week to check for Cystic Fibrosis (which I don't think she has)...
  18. TaylorsMom
    Hi, my name is Megan. I need your help to determine if my dd symptoms may be caused by celiac or if they are completely normal and I'm just a neurotic mom. These are her symptoms: *As a newborn she had projectile vomiting. I was bf her but switched to formula hoping to stop the vomiting, it didn't work. So I had her tested for Reflux, we saw the...
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