Joon
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Joon
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Do I just ask for genetic testing? How do I go about doing this? My gastroenterologist seems so skeptical about me having celiac disease at this point. He thinks it must be some kind of allergy or general intolerance. What is the test called? Does having the gene mean for certain I would have celiac disease, or could it just mean I'm a carrier? --All of...
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I had nine vials of blood taken, and had antibody tests taken, etc. He sees a lot of Celiacs and seems quite specialized. I just talked to his secretary now and she passed on that I'm to have no more gluten, though I'm to keep up this food diary. I'm still considered "Not Celiac." I wonder if he'll be happy to keep me as "Mysteriously Gluten-Free Person...
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My hemoglobin is remarkably good for my age (just turned 30) and gender (female). Everything was peaches 'n cream, except for the B12 & calcium I mentioned. I can't believe I actually felt frustrated at how well my testing turned out. I'm just mystified.. you know? Is it strange that the bloating was primarily lower-left part of my belly? Very...
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I'll try to sum this up as succinctly as I can. For five years I have suffered chronic common migraines and now that I'm on Topamax, which cuts down on the frequency, I still could never drive a car, because my l. eye's vision is double &/or blurry so much of the time. The last couple of years I've lost a lot of weight, close to 40 pounds, without...
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ARCHIVED Negative Tests But gluten-free Diet Works
Joon replied to ginnym's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Negative Tests But gluten-free Diet Works
Joon replied to ginnym's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm in the same boat as tabdegner here and I am a week away from a small bowel x-ray. The GFD has helped me immensely and the doctor is saying it looks like I have an "intolerance," though my whole mother's side of the family has celiac disease. I have been so discouraged after getting my blood test and biopsy results because I have been incredibly ill. The... -
ARCHIVED Not Seeing Results Yet From Gfd
Joon replied to Joon's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm not sure if he did. The gastroenterologist took nine vials of blood and ticked off nearly everything on a giant page of paper. He knows about the thirst and he's been great about taking everything seriously. He noticed things wrong with me I hadn't noticed (apparently something in the look of my eyes, and something with the way my wrists look). I'm... -
ARCHIVED Still Sick
Joon replied to KProc's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am new to my GFD, but I do know about the magnesium and the migraines. I've been a chronic common migraine sufferer for four years and I know that magnesium is a huge part of it for more than 85% of common & classical migraine sufferers. I'd recommend a cal-mag supplement (Jamieson is the best), but you must talk to your doctor because this can stress... -
ARCHIVED Not Seeing Results Yet From Gfd
Joon replied to Joon's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I really appreciate that; thanks. I may try goat's milk instead of cutting out dairy... I get a lot of stomach and abdominal pain and a lot of bloating. I could write "a lot of" in front of everything I write. I've lost so much weight so the bloating looks ridiculous and is very noticeable. I was getting cramps in my feet and calves but more recently... -
ARCHIVED Not Seeing Results Yet From Gfd
Joon posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm still waiting to get results from my biopsy, but my gastroenterologist strongly suspects I have celiac disease. (My entire mother's side has this and I grew up on a GFD almost entirely, and it's only been as an adult the last few years that I've been eating gluten.) ...I've been extremely ill the past few months, and since Wednesday (it's now Monday...