CoolCat1
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Latest Celiac Disease News & Research:
Everything posted by CoolCat1
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ARCHIVED Endoscopy This Morning
CoolCat1 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
jhmom: sorry about your negative experience.There are some terrible doctors out there. Do you feel like your celiac disease is better and you are looking for something else that is causing you pain? -
ARCHIVED What Happens If I Don't Stick To The Diet?
CoolCat1 replied to Killarney's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lovgro, that is bad news about Godiva...are there any Belgian/Swiss chocolates that are gluten free? -
Hi, CanadianKaren: Hope all went well. From a fellow Canuk, Anne
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ARCHIVED Anyone Not Super Careful About Cross Contamination
CoolCat1 replied to MichelleC's topic in Coping with Celiac Disease
To Pturse: There are some beers being brewed that are malt free. I heard there is one in Montreal Canada. I am sure there are more. I am not a beer drinker so I haven't investigated this further but why not take some time..use the internet or switch to liquor. I always wondered years ago before I was diagnosed for celiac disease why beer made me feel so bloated... -
ARCHIVED Stomache Bloating/gas Daily
CoolCat1 replied to campcour's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When I made my own gluten-free pies after being gluten-free with celiac disease for a month I had bad gas and diarrhea. I told my GI and he said it was because my intestines were too damaged to absorb fats. I find if I eat too many fats I get gas. Has anyone gone gluten-free for months and then had another biopsy, found out their small intestine is fine... -
ARCHIVED Weird Lip Reaction
CoolCat1 replied to sixtricks6's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Keep a food diary for a few weeks and see if you can pinpoint the food allergy.I don't have the lip liner reaction but my lips are very dry and I'm always peeling them. It got really bad before I was diagnosed 4 months ago when I had anemia but in the last 3 weeks its coming back. -
ARCHIVED What Happens If I Don't Stick To The Diet?
CoolCat1 replied to Killarney's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was diagnosed on June 28.It may be a shock to have celiac disease but before I knew I had it I was told I had Crohn's Disease or Colitus. These would be much worse since they involved surgery and lasting effects post surgery. It was nice to know I could recover from the horrible fatigue, anemia, diarrhea, etc. I found a great health food store with a gluten... -
ARCHIVED Advice Please
CoolCat1 replied to CoolCat1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks, Tiffany. It seems as if I'm better today but my allergies(environmental: grasses,pollens) are better today and I'm not at work either. I guess I'll see tomorrow with increased stress whether that's the problem. I think I'll see how tired I am this week and if its bad I'll phone my gastrologist up and ask to see him. -
Try Imovane(sleeping pill). I just take 1/3 of a pill. It gets me sleeping. I tried Melatonin and it only works sometimes. A glass of wine and melatonin worked though. I would think Tylennol is a bad choice for longer because could it not damage your organs?
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I have the same problem with sleep. I tried Melatonin and sometimes that works(health food store). The rest of the time I take 1/3 of an Imovane tablet (sleeping pill). It can be taken for 4 days in a row.For exercise I take karate and if I take it earlier in the day I'm ok but when I take it later it makes me even more revved.Also I go for walks. I take...
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ARCHIVED Advice Please
CoolCat1 replied to CoolCat1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for trying to help. I doubt if I can get Long Term Disability because my GI said that I could be better in a matter of weeks to months. I have another biopsy scheduled in February. I suppose I could always take sick days but if they occur more than 3 days I would need a doctor's certificate. I guess I should take another blood test to see if my iron... -
ARCHIVED Advice Please
CoolCat1 replied to CoolCat1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes I was told during my Endoscopy on June 28 that I had celiac disease and when I went to my office visit on Aug. 4 ths GI told me my small intestine was severely damaged with completely flattened villi and no ridges. I have been gluten-free since June 28 with a few errors. I had a medicial certificate from my doctor saying I have celiac disease and I... -
I lost weight,had anemia for months, diarrhea/bloating for years and finally had a biopsy in July. I have been on sick leave from May till this month.I started working half time mornings after much flack/opposition (I was working afternoons teaching for years and my principal didn't want to let me change to mornings until I got my federation to help me)....
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ARCHIVED My Friend
CoolCat1 replied to beelzebubble's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It could be Lupus. Also, my friend's husband has rhematoid arthritis and I suggested he go gluten-free and she says he's way better. He's starting to get more movement and has no more abdominal pain. -
ARCHIVED Allergies, Depression And Celiac Disease
CoolCat1 replied to christtheking's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was interested in your question because I'm wondering if my husband might have celiac disease. I was really sick this last year and found I have it but I was only marginally depressed. My husband has been on antidepressants for the last 3 years and can't find anything that keeps his moods consistently steady. Have any of you noticed depression before you... -
ARCHIVED James Blood Work As Of Now
CoolCat1 replied to Jamesmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I understand you worrying about your son. I just had my kids tested too and am waiting for the results. If he does have celiac disease its certainly not that bad and you will feel relieved to know whatever the results are.Cancer is only a remote possiblity for anyone after years of having celiac disease. If you have financial concerns, check to see if you... -
I tried internet and haven't found anything about gluten-free restaurants or health food stores in Cozumel. I'll be there for 2 weeks. I just had my kids tested for celiac and I don't know if they are or not yet but if my daughter is it will be worse because she is vegetarian. I would appreciate any help with this.
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ARCHIVED Endoscopy This Morning
CoolCat1 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Not having folds is bad. I was told when I had my first biopsy about 2 months ago that I had no folds and my villi were severely flattened. I'd say to look for hidden glutens. I almost ordered something in my favourite Chinese restaurant that had been marinated in kikomen sauce even though I brought my soya sauce to the restaurant. However, when they all... -
I am going to Cozumel with my family again but this time I need to be gluten-free as I was diagnosed in June 30/04. Anyone know of any gluten-free menus or health food stores there? Any help/ advice would be appreciated? We are staying in a cottage and can buy groceries/cook.
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I felt tired for years and then I got really exhausted but thought I was just stressed. I then lost weight and eventually tested low iron and was definitely anemic. I tried iron pills but they gave me diarrhea. 2 months ago I found out I had celiac disease and am on the gluten-free diet. i still can't sleep without a sleeping pill and I'm still bloating/constipated...
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ARCHIVED Yet Another Post About Fatigue
CoolCat1 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would like to know too. I am still tired and can't get to sleep at night. I work mornings only. I sometimes rest afternoons for awhile but whether I do or not I can' t get to sleep unless I use a sleeping pill. I had Iron injections when I was anemic in May. I am still low normal and have been gluten-free for 2 months. -
ARCHIVED Stomache Bloating/gas Daily
CoolCat1 replied to campcour's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have been gluten-free for 2 months and I just recently found out that my favourite chocolate Lindt/Lindor has malt. Cheaper chocolates do not. I am looking for a comparable Swiss/Belgian chocolate. Anyone know of any? Chocolate withdrawal uck! -
ARCHIVED My Hair Is Falling Out!
CoolCat1 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks, Jill for the shampoo advise. I colour my hair...is it ok for coloured hair? -
ARCHIVED What Has Helped You Heal?
CoolCat1 replied to BRCoats's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had to get iron injections because the iron pills gave me really bad diarrhea. Ask about this. -
ARCHIVED Sheesh, Why Am I Still Having Problems?
CoolCat1 replied to HappyCat22's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Canadian Karen, I had the gastroscopy, colonoscopy etc a couple of months ago and got diagnosed with celiac disease. The demoral they give you made me so relaxed. It's a fantastic drug. Don't worry. I love Demoral.