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castor

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by castor

  1. castor
    None of the diets are working for me either, I'm just not digesting anything, and now with my colon and everything so messed up, I'm becoming alergic to anything I eat regularly, so.... I have no idea what I can even eat now. I feel horrible no matter what I do. The reality is sinking in about this. I've known something was seriously wrong for several...
  2. castor
    It's confirmed (kind of...) I have Lyme. I found a 'voodoo' doctor in my area, and I'm not going to give many details about it all, as to most it would be quack work, but he has a powerful research type microscope in his office, with a camera and monitor hooked to it, did a blood sample/ slide, and it looked like a battle field. Some red blood cells had...
  3. castor
    Hey everybody, I'm still around. Things have just been such a roller coaster and I want off, ha. I've been reading everything everybody posts or links people send me, and also parts of other threads and things online taking in as much info as I can as well as putting things into practice at the same time. I've been so busy and so much is going on,...
  4. castor
    I have a question for the lymies. Lyme can cause a lot of different symptoms, but can it affect just one part of the body? Take up a stronghold in mostly your brain and spine? Most of my symptoms most of my life have been primarily neurological, with things similar to MS, recently getting worse when I started losing weight. I have other things going...
  5. castor
    Hey, sorry it's been a few days, been somewhat busy. I got a call this morning about getting in to a gastro doc that I was on a waiting list, and could get in today, but had to be there in about 4 hours. Had to twist a few arms to get a ride there, but it was pretty much pointless. I think I would have gotten the same reaction if I went in saying my gills...
  6. castor
    Hey Carla, it was actually your post in my first thread on here that got me wondering about lyme. I had suspected lyme in the back of my head for years, but I never knew much about the disease and always thought it was rare and mostly just people that were outdoors all the time would usually have it and never remembered anything about a tick bite. I did...
  7. castor
    I guess I'll start in my childhood when I believe I would have been infected with lyme if that's what it is. I'll try and keep this part short. I was born just outside of Philadelphia, but moved to where I am now, the very northeast part of Indiana right before I turned 5. My dad is full sicilian, and has the Italian temper to go with that. He was abused...
  8. castor
    I have a feeling this is going to be another sleepless night so I am going to sit (lay) here and type out a lot of what has led up to now, it will most likely be somewhat lengthy, but that is more because so many things have happened, has just been one horrible thing after another most of my life. Plus, in reading an article written by the doctor who was...
  9. castor
    Hey everybody, I'm feeling a lot better today, had a long deep sleep last night. Does anybody here with lyme, when they get flare ups have problems with insomnia during? I thought of something everybody here could help me with, and I think it could help a lot. - diet At this point, I really don't know what I can/should eat anymore. I don't have...
  10. castor
    meant to write more yesterday but this flare up has been pretty bad though but am feeling on the up today, again seemingly for no reason at all as I go up and down. Stress seems to be my catalyst though, it was an, I guess tragic (to me at the time) occurrence in my life 9 years ago after which I've never really recovered, mentally or physically. ...
  11. castor
    Thank you very much AliB for your reply, in making this post I am looking for direction, but also just... some kind of support.. I've been going this alone for so long and it's just now everybody is almost pissed at me that I'm still sick (or to them, so I say I am). I just had another argument with my father, that turned into a yelling match again over...
  12. castor
    I don't know if this is the place to post this, but this is where the lyme thread is and was pointed to it a bit back when I first posted here. It's been a while since I have posted but since my last post I've fallen off the radar for a while.... Been somewhat incapacitated in that time and have gone through many tests... all showing I am supposedly perfectly...
  13. castor

    Hi Castor!

    Hope you are having some better luck!

    feel better!!!

  14. castor
    Okay, finally have the results of my blood panel in hand, even after looking at several others and reading how people read them... I still have no idea how to interpret this all that well. I'm just going to type out the whole page.... Celiac Serology Profile JLP Endomys. Titer NEGATIVE IgA 204 mg/dl Range: 70-400 TTG IgA 3 EU ...
  15. castor
    Okay, finally made some progress... My suspect of celiac seems to be becoming a lot more concrete to me, and well, seemly only me (compared with my doctors) Yesterday I sat down at my parents with the phone (they have free long distance), a pad of paper, and any numbers I had so far and started calling. Spent three hours making calls and on hold and...
  16. castor
    Sorry I haven't replied, thanks everybody for the support... just not doing to well to sit at the computer much, and my irritability seems to be coming out in full swing the last several days and am kind of afraid to start typing away on some rant. >< Anyway.. the nurse called today and said the blood tests showed I don't have celiac, and was just...
  17. castor
    Doctor did a lot of blood tests and a stool sample, got a verbal of most results but am waiting for the celiac panel. They said liver was fine, thyroid was fine, and nothing wrong with the stool and nothing else out of ordinary, they are mailing the results, should have them to look at in a day or two. I think I will have results for the celiac tomorrow...
  18. castor
    >< it was same as usual with this doctor too...... 5 mins with me, didn't even do a physical exam, said something like we'll do some blood tests and check your thyroid and starts to leave but I stopped him and mentioned celiac disease and if he could do the panel testing on that, he said he would, but I couldn't tell if it was on the order or not...
  19. castor
    wow, lots of typos... sorry I'd fix them but I am really tired.
  20. castor
    Oh wow, thank you so much for all the replies and help. I was pretty distrought last night. It's just been one thing after another medically for the last almost 9 years. Doctors are getting sick of seeing me. I have an appointment with me GP at 1:15pm today (friday). I am going to bring that list of tests to do with me, thank you for that, I had no...
  21. castor
    Hi, my first post here. I only realized a few days ago that there was celiac disease... and it may have been ongoing for a while now but was masked by a lot of other things (used to feeling like I've been run over every day from other medical problems) I am 24 and am bi-polar type one, or so they say/think/guess as they throw pills at me and try and...
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