Shaunnie

I just saw the posting about the little one with Ectodermal Dysplasia and Celiacs. My four year old daughter was recently (about 6 weeks) diagnosed with Celiacs. Then three days ago she was diagnosed with Ectodermal Dysplasia. Is there a connection between the two diseases? Does anyone know how I can find out? Thank you. This website has been a blessing...

I took my daughter to the gastroenterologist and he said there was no need for a biopsy because her numbers were conclusive that she does have celiacs. He also said that the other pos. results (lupus and scleraderma) were probably because her celiacs has messed up her immune system so much. After 3 months on the gluten free she will go back and have the...

Thank you all fo your help and concern. This is a bit scary to have your child go through. You are all giving great feedback that is helping to calm me a little. I have taken all gluten out of my daughter's diet (or at least I am trying. I found that they hide gluten in many areas). So we are definately trying to get all gluten out. She is a trooper...

Thank you for your help. I have gotten some more test results on my almost four year old daughter. One of the concerns that I had was with her hight. She has an alkaline phosphatase (growth hormones) of 238. An adult who has finished growing should have a normal number range of 240 - 530. Children's should be higher while growing. That means that she...

Thank you for your reply. I have now made an appointment with a gastroenterologist. We will see him for a consult on Friday. The biopsy has been suggested by the primary dr. I am worried about putting my daughter through such a test. It seems invasive and I am concerned about her being put under anesthesia. Shaunnie

I am also lookingfor some understanding of my daughter's test results. She is almost four yrs old. She had many symptoms such as stunted growth, lack of hair growth, hypocalcification 9loss of tooth enamel, including one tooth not even growing in) and irritability. I did some research and came up with hypothyroidism. I asked the dr. to test and it was...