saraphym
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About Me
I am a married mom of 2 kids. DD is 10 with ADHD and a heart of gold. She is outgoing, generous and loving. Healthy kid who grows like a weed!
Son is 3 with Ectodermal Dysplasia causing chronic eczema, pitted nails, sparse hair and pointed teeth. Celiac diagnosed 10/7/08, lactose intolerant found via trial & error. Other issues coming to light include failed hearing test, speech delays, anemic and has weighed between 30 - 38 pounds for the past year.
He's a loving kid but way more reserved than my daughter. He is more suspicious and stand-offish, but still very loving, so we don't think he has anything like Autism or Aspergers. Testing to come, I am certain!
My favorite is when he puts his little hands on my cheeks and pulls me in for a kiss. 
I am just here trying to figure all of this out try to understand how to make our family as healthy and comfortable and normal as possible.
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Wow - thank so much for the great info! I look forward to trying it all out! Hy-Vee has been great also - they even have a little gluten-free section that is really handy. Nature's Pantry is becoming one of my favorite stores also! Thanks again!
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Hi everyone I am a couple of weeks into the gluten-free diet for my kiddo and was thinking about venturing back into cooking bread-like products for him. I know - I must be feeling saucy! Anyway, in reading a lot of the posts here and information from other sites, I am unsure of how to deal with the whole flour thing. It seems like most everyone uses...
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ARCHIVED Oh Wow! Hi!
saraphym replied to saraphym's topic in Parents, Friends and Loved Ones of Celiacs
Just an update...the rear-end explosions were from the iron supplements. It just hit me all of a sudden that the supplement could be the issue. So I called the pediatrician and reported that the iron was causing this. The pediatrician said we just need to "keep up the good work" and keep him on the iron. So...I advised the nurse who called me that I was... -
ARCHIVED Oh Wow! Hi!
saraphym replied to saraphym's topic in Parents, Friends and Loved Ones of Celiacs
Wow, thank you all so much for the advice. I made him a sweet potato last night for dinner and mashed it up with brown sugar and cinnamon. He ate about half of what we gave him, which was pretty good for him. He is still REALLY poopy this morning - 4 "explosions" so far. I have been giving him Gatorade to try to make sure that he is getting enough electrolytes... -
ARCHIVED I Need To Vent
saraphym replied to Caseysmommy's topic in Parents, Friends and Loved Ones of Celiacs
I say forget the doctors and do what is right for your kid. It sounds like she has really had a positive reaction to the gluten-free diet. You can always get a second opinion if you think that will help, but you can never go wrong in doing what is working and what is right for your child. -
ARCHIVED Newbie With 2 Yold Just Diag
saraphym replied to mom2twoangels's topic in Parents, Friends and Loved Ones of Celiacs
It does sound like some sort of intolerance to something in her diet. My son (3) was diagnosed a few days ago as well. I took him in for his 3-year-old check up and they did a blood draw right then. He has always been very pale with sparse hair and low weight, but I always attributed that to his Ectodermal Dysplasia, so when they said that they wanted to... -
ARCHIVED Oh Wow! Hi!
saraphym replied to saraphym's topic in Parents, Friends and Loved Ones of Celiacs
OMG. I am so overwhelmed. What CAN I give this kid? I am in tears now - I don't know what I can give him to make this easier for him. It's all kind of hitting me now and I don't know what I can give him that won't make him sick. He has been drinking lactaid milk for the past couple of days, but only at home...usually he drinks soy and does ok with that... -
ARCHIVED Oh Wow! Hi!
saraphym replied to saraphym's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for the tips! He has really exploded lately. And I mean in the bottom area. Could it be the new types of flours and such that are causing his insane diarrhea? And this is really an issue...dripping down the leg, pouring out kind of poops. Could this be left over from the stomach bug he had a couple of days ago? He has been on an iron supplement,... -
ARCHIVED Oh Wow! Hi!
saraphym replied to saraphym's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for the warm welcome, everyone! It really feels good to know that there is a network of others out there who understand what we are going through. Here's a laugh - my DH's first reaction when I explained the disease to him was "OMG, he'll never get to have a BEER!" LOL - and I was worried about what to make for dinner!! Anyway, no one else in... -
Hello! I just wanted to introduce myself. I am mom to 2 kids, ages 10 and 3. My oldest, girl, has ADHD and is otherwise pretty normal. My son, 3, has a form of Ectodermal Dysplasia, lactose intolerance and, as we just found out last night, Celiac. In a panic, I sent DH to the store for gluten-free waffles, corn dogs, cookies, crackers, etc etc! So we...