angelschick
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37 year old Mom of 6, living in Mid-Michigan. After spending months with Doctors shuffling me around and telling me nothing was wrong - I decided to just try the gluten-free diet. As of this writing, I am very hopeful as I seem to have less joint pain already. I am only on day 3 so I am excited to see how this goes. Main symptoms are - joint pain - all joints but mostly back, NO stamina, frequent digestive issues, bloating, dizzy upon standing, numbness in both hands and feet and NO sex drive. I had one lab done that was negative but figured the diet was easier than finding the right lab to have ordered or go through a biopsy. If this works, I will get genetic testing in January on me and at least 3 of my children as they exhibit similar symptoms.
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ARCHIVED Negative Biopsy
angelschick replied to angelschick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Negative Biopsy
angelschick posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know if I'm happy or sad. My biopsy came back negative. Combined with the fact that I do not have either of the genes, I'm assuming I do not have celiac. Still confused because when I went gluten-free, I felt sooo good the first week, then moderatly good for 2 more weeks with the pain creeping back in. Also in that time my cholesterol finally went... -
ARCHIVED Pain/nausea After Endoscope
angelschick posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the biopsy done Friday afternoon and ever since I get these odd pains in my upper abdomen - like right between and just under my ribs. It occurs mostly when I eat a normal sized meal - small snacks do not trigger it. I also get pretty bad nausea and I'm not prone to nausea normally. The pain feels like something is stuck in there. I do not have reflux... -
ARCHIVED Had The Biopsy
angelschick replied to angelschick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
While I hope you get some answers and some relief I sure hope you don't have celiac disease! Good luck. -
ARCHIVED Saw A Gi Finally - Well Not Really
angelschick replied to angelschick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I went ahead and stuck with this guy. They put me on a cancellation list and I had it done this AM. He was actually really nice and reassuring when he saw I was scared. It went fine despite my fears - I remember nothing!! So at least its over. -
ARCHIVED Had The Biopsy
angelschick posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Doc had a cancellation and so I didn't have to wait till Feb - yay!! I was scared but the Doc was good at reassuring me and I don't remember a thing about the procedure. Now my question - is it normal for them to not see anything if you have celiac? The waiting for pathology is gonna drive me nuts :-( He said if it's negative, I will know by Wed or so if... -
ARCHIVED Saw A Gi Finally - Well Not Really
angelschick posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Finally had my appointment with the GI today and have an upper GI with biopsy scheduled for Feb4th at 5:30 P.M. I'm not feeling this place and just wanted to get a feel for how "normal" this is. I didn't see the Doc at all, didn't even meet him. We watched a video (from 1980) and when it was over I asked questions to the lady behind the desk. 1) how many... -
ARCHIVED Help Interpreting Scratch Test Results!
angelschick replied to 2sensitivekids's topic in Parents, Friends and Loved Ones of Celiacs
I always have questioned the scratch tests. My son has sever allergies when he was young and we had the scratch test done maybe 15 years ago. He tested highly positive to birds. I had an African Grey Parrot I had raised from a chick, hand fed and it was my baby. The Doc told me the bird had to go. I re-homed my bird and my son was still sick. In fact, he... -
ARCHIVED Dna Results In
angelschick replied to angelschick's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I saw an "allergist" today who specializes in and HAS celiac. She says best case scenario I have a bad gluten sensitivity, maybe even celiac. She said my genes alone cannot rule out celiac. So - she has ordered a biopsy and a full celiac panel.I will know Monday when it is. Fedora - my symptoms are - PAIN (LOTS of it) in mostly back and left hip but... -
ARCHIVED Dna Results In
angelschick replied to angelschick's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It does help but now I'm even more confused. I was *SURE* I had celiac disease but the genetics say otherwise. So why would a non-celiac's LOW cholesterol finally go up after going gluten-free? I just don't understand...... -
ARCHIVED Dna Results In
angelschick posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I just got my genetic test in and I am very confused. Can somone explain this to me in English? HLA-DQB1 Molecular analysis, Allele 1 0501 HLA-DQB1 Molecular analysis, Allele 2 0604 Serologic equivalent: HLA-DQ 1,1 (Subtype 5,6) So if hubby is reading this right, I do not possess the gene for celiac. Am I in the clear then and just... -
ARCHIVED Getting Kids Tested
angelschick posted a topic in Parents, Friends and Loved Ones of Celiacs
Just kinda learning still but I have a question - it is suggested you get children tested if you are positive yes? How did you guys go about? Were the pediatricians helpful? It seems so many Doc's are clueless on this disease, just wondering what the experiences are like of getting kids screened with a positive family member? Thanks Amy -
ARCHIVED What To Do Now?
angelschick replied to angelschick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe I am misunderstanding things or I wasn't clear in my post. One of the main reasons I even suspected celiac disease was because of my freakishly LOW cholesterol. No Doc could explain it and I don't lead the lifestyle to support such low numbers. In the few weeks I was gluten-free, that was the only thing that changed in my lifestyle and it brought my... -
ARCHIVED What To Do Now?
angelschick posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Long story short I went gluten-free about 4 weeks ago with some improvements right away then symptoms returned a tad. I began to think the week of no pain was a fluke but toughed it out and had my cholesterol tested after being gluten-free for 3 weeks and 3 days. Heres the results - WAS IS Total cholesterol... -
I also have Hasi, DX about 4 years ago. I am on Armour - synthroid did nothing for me at all. I didn't experience side effects, I didn't experience anything! LOL! I would suggest you poke around these sites - www.realthyroidhelp.com www.stopthethyroidmadness.com It's a long process so try not to expect instant results. Hang in there! Amy