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StormyWen

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  1. Most recent one is also normal: TISSUE TRANSGLUTAMINASE, IGA 4.35 0-20
  2. Is there even another test on the panel that would show up positive if the deaminated gliadin tests were negative?
  3. My blood tests results are slowly trickling in and so far they are all normal. I know 4 tests were being run but am not sure which one I am still waiting for. I don't think I want to pursue further testing....just would like to go gluten free and get on with my life. My brother is severely gluten intolerant (never tested) so at least I won't be the only...
  4. I have pelvic instability and problems with my sacroiliac joint and pubic joint.....bone inflammation and hardening. Already in physical therapy for those things. I don't think my back is involved but I do have bad scoliosis. Wendy
  5. The past few days of my gluten trial I have noticed that the top of my right foot and ankle are numb and feel weird. It is pretty constant....feels like nerve damage after a surgery. Is it possible that this is from the gluten exposure? Will it go away when I am gluten free? Wendy
  6. I'm on day 7 of my gluten trial and am going to try to go for at least 2 weeks.....since I was only off gluten for 12 days and I've been eating gluten for 42 years! I was getting really excited that I only have one more week of this and then I realized I have to keep eating gluten until I get the blood test results and they decide if I need an endoscopy...
  7. Recently my sister-in-law (who is a physical therapist) mentioned that I might try going gluten free to see if it helped me with my joint pain/inflammation. I was completely gluten free for 12 days and wasn't really sure if it helped with the joint pain but what I did notice was that I had more energy, no headaches, no nausea, no stomach aches and I stopped...
  8. Very well put! I've been thinking about this quite a bit since I am currently eating gluten so I can have an accurate test done. I'm only on day 5 (after only being gluten free for 12 days) and am ready to just do the test and hope it's accurate. Sometimes I'm feeling ok but most of the time I just feel so yucky.
  9. Thank you for the replies. I've e-mailed my doctor to see if I can have the testing done later in May. I'm finding it really strange that I didn't realize how lousy I usually feel until I was actually feeling better. This might be a long few weeks but I will try to enjoy some tasty treats for everyone here without making myself too sick.
  10. I only went gluten free for 12 days and then started eating gluten again thinking I wasn't noticing that much of a difference. I was focusing so much on my joint pain that I didn't realize that my headaches, nausea and heartburn had gone away. Within 12 hours of re-introducing gluten I had heartburn and liquid diarrhea. My doctor agreed that we could do...
  11. I've been taking omeprazole for more years than I can remember. If I don't take my daily dose I will have heartburn or acid reflux during that 24 hour period. So my theory is that if I stop taking it once the gluten is out of my system that I should know pretty quickly if the diet change has helped....but I'm definetely not an expert! I also think that...
  12. I have been eating gluten free for 8 days to try to figure out if being gluten free could help with the joint pain and bone inflammation I have in the front and back of my pelvis. My PCP told me that a diet change would not help and that I should just go to a doctor she has recommended and get cortisone injections.....which I will do anything to avoid. ...
  13. My son has a problem with dairy, so he drinks Rice Dream Rice Milk. But he also seems to have a problem with gluten and the Rice Dream box says "Contains Barley Gluten .002%" Is that enough gluten to cause a problem for someone with gluten intolerance or celiac? How much gluten actually makes you sick? There is a gluten-free rice milk at the store I shop...
  14. It's funny how excited we moms can get when our child has solid poop! My three year old has almost had solid poop on two occasions, but the rest of the time it's foamy and green. We're on an elimination diet right now and when he doesn't sneak forbidden food his stool is a normal color....but still not solid. It was very interesting to me that your son...
  15. My three year old has had GI problems as long as I can remember. We started food allergy testing about 4 months ago and have eliminated numerous things from his diet. We know for sure he has a problem with dairy because if he gets into any his diarrhea comes back. We also know that he has a problem with wheat because we tried adding that back into his...
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