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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Yoekie
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ARCHIVED Specific Carbohydrate Diet (SCD)
Yoekie replied to AliB's topic in Food Intolerance & Leaky Gut
Hi Ali & mftnchn, I was breastfeeded for a long time, but my mom has had her own gut problems all of her life as well as her grandmother who had 'a lazy stomach'. I was examined for possible malabsorption and deficincies, the only thing that came out was a serious lack of iron/anaemia, that has been looked after. I am now officialy dx with nervous... -
ARCHIVED Specific Carbohydrate Diet (SCD)
Yoekie replied to AliB's topic in Food Intolerance & Leaky Gut
Ali B, you are right. I had a tummy bug only a couple of weeks before, that must have weakened my gut flora. -
ARCHIVED Specific Carbohydrate Diet (SCD)
Yoekie replied to AliB's topic in Food Intolerance & Leaky Gut
Hi all! Thanks for replying! What is very strange to me is that what I read about scd (which should be helpful in healing a leaky gut) is a contradiction to what the doctor prescribed me for it. He put me on 'permealine' which is a powder that is intended to stop hyperpermeablity of your gut, yet it's basically fructo-oligosaccharides. And I have to... -
ARCHIVED Specific Carbohydrate Diet (SCD)
Yoekie replied to AliB's topic in Food Intolerance & Leaky Gut
Hi all!! I've been reading about it (love the pecanbread site! usually, what's good for kids, is good for me). I've done some reading on the purely chemical structure of nutrition also and am now convinced that simple carbohydrates (both mono and disaccharides) go easier on an inflamed/irritated/leaky gut. So to me it's all about cutting down on complex... -
Okey I'm now giving it serious consideration. I know my parents will think I'm starving myself and I don't like the introduction diet at all but I really need to get better so I'm prepared to try a lot... maybe even SCD, who knows. I'll do some more reading first.
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I could give it a try but I have very little resources since I live in Belgium and you simply don't hear of 'SCD' around here. Only low-carb diets to loose weight but that's not what I want!! Didn't you loose weight? I can't get nut butter around here. Can I use walnut/chestnut/coconut powder? I could bake biscuits with them. Would it make a difference...
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People already suggested trying it 6 months ago when I joined the forum. I read about it, then rejected the idea because carbs are what I hang on to when I'm not feeling well. Most of the time I'm not hungry, and tasteless food (which is carbs!) are the only thing I get down easily. As does a bananamilkshake but I guess even that's 'forbidden' in SCD... so...
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It's been 6 months since I was diagnosed with leaky gut. I've taken probiotics every morning, fish oil supplements and followed a strict gluten/wheat/diairy/egg free diet. And nothing's changed!! I still have sensitive bowels (and stomach), I haven't gained anything, I still need 12 hours sleep and feel exhausted nevertheless. I have a chronic throatache...
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ARCHIVED What's The Minimum Iron Level?
Yoekie replied to Yoekie's topic in Related Issues & Disorders
ok thank you!! -
I had intense treatment for iron deficiency aneamia (got weekly iron shots). My level went up from minus 5 to 29. The doctor said it's enough for now, I just have to make sure I eat the right stuff but I wondered: am I where I should be at or do I have to get it up some more? Yoekie
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ARCHIVED What If You Just Can't Eat Anything?
Yoekie replied to IChaseFrisbees's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi there, I'm sorry to hear you're not doing any better yet, despite your efforts. You asked if anyone else remembers the day things changed. I do. Maybe you remember my story -I had a food poisoning at 14 and it went a steady downhill from there. That one scoop of ice cream got me so seriously messed up inside that it took me 5 years to even START to... -
ARCHIVED What Do You Have For Breakfast?
Yoekie replied to Yoekie's topic in Gluten-Free Recipes & Cooking Tips
Thanks for filling me in on american breakfast ideas!! We here in Europe are raised on bread with chocospread !! If you're oldfashioned you know porridge and we have croissants on Sunday but that's about it!! I'm thrilled to try out the puffed sweet potato and fried rice idea ! Thanks everyone! -
ARCHIVED What Do You Have For Breakfast?
Yoekie posted a topic in Gluten-Free Recipes & Cooking Tips
I'm trying to cut down on bread (as store bought is too expensive for every day and I can't bake edible bread myself -yet ). Sometimes I have a glutenfreegrain porridge but I'm looking for less labor-intensive alternatives. I get easily bored of granola and rice cakes. Any ideas? -
ARCHIVED So Frustrated - gluten-free-living In Europe
Yoekie posted a topic in Introduce Yourself / Share Stuff
I'm from Belgium and surfing the internet about glutenfree living is sooo frustrating... I see all those delicious-looking foods for sale in USA & Canada -not just basics but also real treats like donuts, bagels, cereals,... argh and I can't find any of it here!! Do you know what I'm talking about? I'm not used to buy stuff online and wonder about the... -
ARCHIVED Not Doing Well On Ortho Evra Patch?
Yoekie posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I wanted to take the pill to stop having m for a while because I'm very anemic. I'm putting so much efforts in getting my iron back up that I hate seeing much of it go wasted. I wanted the patch because I have a Leaky Gut and avoid taking oral medications. But I had not thought of the possibility of gastro-intestinal side effects. Since I'm on it I don... -
Sometimes I get lost on this forum, it's so big! I'm conviced I'd seen a post about this and just can't find it back!! Anyway, I got this since I went glutenfree. Almost to the day. In the beginning I thought it would go away but it doesn't and it's ALWAYS there. Can it be related to glutenintolerance/going glutenfree? Or could it have something to do with...
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I don't know if you're still here but I wanted to let you know, I have a similar experience. It's a lot better now but the first 5 years after my foodpoisoning (which is when all the trouble started) I would feel sick after everything I ate. And it's a feeling that took place in my mouth. I remember going to the doctor (I was a teen at the time) and telling...
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ARCHIVED Celiac Disease And Anemia?
Yoekie replied to savedbygrace92's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am anemic as well. I found out in early december. The doctor scared me to death, telling me I was on the edge of needing a bloodtransfusion. Then he told me what to eat (lentils, spinach, liver) and put me on a very high dosis of ironpills which made me sick, so I switched to intramuscular injections which I get weekly from my GP. Then I went to a GI for... -
ARCHIVED Not Sure
Yoekie replied to Yoekie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I do not feel better glutenfree. But I've had to make many dietary changes at once so it's difficult to know what glutenfree in itself is doing for me. Hence the confusion, I thought it would be good to have a biopsy done, but as I'm reading on the board, I came to understand a negative result is no total exclusion of celiac? -
I've been glutenfree since beginning of december, since diagnosed with gluten/egg/lactose intolerance and leaky gut. The doctor who told me so, didn't think I could be celiac and didn't think it was useful to get it checked. But I do, so I went to a GI for a second opinion and he thought I might be celiac and he immediately had a bloodtest done on me. The...
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hi, I can relate to all of your symptoms: dizzy, shaking, sweating, feeling sick to my stomach, not being able to walk, even bringing a fork to my mouth was really hard even though I so needed food, also I couldn't write -when I was at class- or think straight (which was dramatic when I had it in the middle of an exam). I went to my doc who laughed at me...
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ARCHIVED Leaky Gut Causes Gluten Intolerance?
Yoekie replied to Yoekie's topic in Food Intolerance & Leaky Gut
I think I should find out first of all if gluten-free is doing anything for me or not. So I decided to stick to it for at least 6 months. If I see no improvement, I might give SCD a chance... but after not much more than a month, I can't know yet if I need to try anything else than just glutenfree, right? Maybe I'm in those two thirds who actually get better... -
ARCHIVED Health History
Yoekie replied to Yoekie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
thanks for your encouragements! To be honest, I'm quite nervous! This is the second time I'm going to a GI, luckily the same. I always end up telling way less than I prepared to (but I'm really shy too), so I guess that's why I end up making pages full of preparations Yoekie -
I don't know if I can go through with that because I'm weary of taking supplements without a doctor's advice... but thanks for all the information anyway.
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The more I'm reading about celiac, the more things pop up that I didn't know could be related. So I decided to make a sort of medical history. I'm going to a GI on friday, to get a second opinion and ask if I should be checked for celiac. Would it be a good idea to tell him all this? early childhood: eczema, asthma, dust allergy (grew out of all of this...