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About WestyPDX

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    Portland, OR
  1. WestyPDX

    Olive Garden

    Thanks for posting this. I've not been in an Olive Garden for years, and wasn't aware they had a gluten-free menu. As much as chain restaurants are maligned for factory food trucked in from central kitchens, OG opens up a whole new dining...
  2. WestyPDX

    How Many Have Dh, Really?

    I recognize and agree that DH is a side effect of celiac disease, I'm living proof of that. But where are the numbers to support 20-25% of us having DH? This forum has 73 pages of posts. Doctors has 94 pages. Coping With has 724 pages...
  3. WestyPDX

    How Many Have Dh, Really?

    What percentage would you say is "many"? If you walk into any reputable dermatologist's office and they see watery, itchy blisters covering joint areas, they can dx DH by sight alone. If 20% or so of celiacs have DH, why isn't this forum...
  4. My local GI doctor consulted with Dr. Green about my case a couple of times by phone. While I appreciated the effort both of them made, I think my doctor benefited more as a doctor than I benefited as the patient. I still got the same standard...
  5. WestyPDX

    How Many Have Dh, Really?

    I think the 1% number is closer to reality. Data points: My primary care physician has ~2,000 patients across all ages. If the numbers are right, he should have about 20 celiacs currently. When we last discussed DH, he said I was his...
  6. WestyPDX

    Did You Get A Negative Biopsy?

    Yes, but the pain is over fairly quickly. It's about twice as painful as a standard blood draw, but lasts a bit longer. It's been a long time since I had mine, so I forget if they give you a shot of local anesthetic or just rub a numbing...
  7. WestyPDX

    How To Get Relief From Itching?

    A medication called Dapsone will do it. I can't imagine why your doctor didn't prescribe it while giving you your diagnosis. My experience was that itching stopped within 24 hours and blisters healed within a week.
  8. WestyPDX

    How Did Your Dh Start?

    I'd been on hydrocortone (an oral cortisone) for a couple of years, as one of the things my doctor found while searching for answers to a bad reaction to thyroid meds was that I had low adrenals, too. When I literally OD'd on thyroid, a...
  9. Interesting links. Something to think about before you go for B-12 shots: When I had an untypical bad reaction to thyroid medication some years ago, my doctor ran a battery of tests. After finding my B-12 levels were "dangerously" low...
  10. WestyPDX

    How Do You Deal With Stress?

    If your issues with stress, anxiety and OCD weren't caused by gluten in your diet, a gluten-free diet isn't going to cure them, of course. Four months is probably long enough to see if they were or not. You've said that the stress on your...
  11. I've got a left field recommendation for you that's helped me with energy issues, and I only mention it because you're male. If you're absolutely certain that you've not been absorbing nutrients fully, you may be anemic. As in iron-poor...
  12. WestyPDX

    Just Ditched The Gfd

    Heh. Got it, that'll be easy to remember. Bean flour is icky. It's too bad that I'll be ditching dairy as well after the last of the milk is gone, otherwise I'd go out for some Rice Chex. Those I like. Too bad I didn't know they were...
  13. WestyPDX

    Just Ditched The Gfd

    Hi, and yup, I live about 4 miles from Bob's HQ in the Portland 'burbs, LOL, so easy access. I remember them when they were literally a hole in the wall. After my experience at the gluten-free bakery on Corbett on Day 3 of the diet (spitting...
  14. WestyPDX

    Just Ditched The Gfd

    I love Alton! Even have his first cookbook. I've always liked to cook, but when I'm in a state of distress, the last thing I want to do is get up and be creative in the kitchen, so it's nachos. Or chili over rice. Over and over. Excellent...
  15. WestyPDX

    Just Ditched The Gfd

    Fair question, but nope, I don't really drink that much at all, perhaps one or two drinks or a glass of wine a month. But put a Campari with grapefruit juice in front of me and I'll take two! The only other things that have been a problem...