fripp017
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About Me
I am 23 and married to the love of my life. We have been married for over 4 years now. Unfortunetly, my husband is a member of the US Navy, so we don't always get to spend much time together. We have two children together, Maylee - 2-years-old, and Conner - 4-years-old.
I have been having abdominal pain since November 2008. I have seen over 10 different doctors, all focused on different fields. After months of feminine testing, I was finally seen by my primary care physician. He did all sorts of tests, but the only one that came back with any abnormal results was the Celiac Panel (I didn't know it was called that then). So, I was sent to a GI specialist who is the biggest idiot I have ever met. I had my endoscopy Feb. 6, 2009 and biopsies taken. In the end, I was "diagnosed" with Celiac. He told me I "probably" have Celiac but he couldn't say, "Yes you have Celiac Disease." I am not sure why, but I think it has something to do with liability and malpractice. (He sends me Celiac Support Group information though!?!)
So, "Diagnosed" since February 25, 2009
I recommend the book 'Heathier Without Wheat' by Dr. Stephen Wangen for anyone suffering from gluten problems.
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ARCHIVED Does Anyone Experience Violent Dreams?
fripp017 replied to msmini14's topic in Related Issues & Disorders
I have always had dreams I could remember - some bad and some good, some very violent or disturbing. When I started having Celiac symptoms my dreams were usually worse. I definetly sleep better when I haven't had any gluten, but I still have dreams. I mostly did want to comment on the smoking part. I also quit smoking after being diagnosed and I had horrible... -
ARCHIVED Frustrated With Doctors And Test Results
fripp017 replied to Mom of a Celiac toddler's topic in Parents, Friends and Loved Ones of Celiacs
I am right there with you, only I have two children! My daughter is 26 months and my son is 4. They both had the endoscopy and biopsies taken in July. They both came back negative. I put them on the gluten-free diet and they are so much happier. My daughter sleeps better, she rarely has rashes anymore, and she is just better. My son is alittle bit harder... -
ARCHIVED Two Sick Kids And No Diagnosis
fripp017 posted a topic in Parents, Friends and Loved Ones of Celiacs
So, after being diagnosed with Celiac I noticed my children had similar symptoms. So, I had blood work done on them. The blood test had some higher levels of antibodies, so they were both refered to a pediatric GI specialist at Yale Hospital. I kinda thought that since they would be going to a specialist for children, at a well funded medical facility that... -
ARCHIVED Celiac Test Is Neg. - Now What?
fripp017 replied to Mizyellow's topic in Parents, Friends and Loved Ones of Celiacs
I was diagnosed with Celiac Disease not too long ago. After I started getting better on the diet, I noticed that my daughter (21 months at the time) and my son (4-years-old) were displaying similar symptoms. They were tested with the blood panel and they showed no "evidence" of Celiac (according to the GI specialist), but they were refered to the specialist... -
ARCHIVED What Is The Point Of Diagnosis?
fripp017 replied to TotalKnowledge's topic in Coping with Celiac Disease
I think your question is such a big issue for patients and doctors. The disease has only recently started becoming more recognized, but doctors still know very little about it and why the body has such a response. In my experience, I HAD to know. It just bothered me that I suffered for so long and I trusted doctors so much that I couldn't understand why the... -
ARCHIVED Celiac Vs Gluten Intolerance
fripp017 replied to fripp017's topic in Parents, Friends and Loved Ones of Celiacs
Since no one seemed to have any ideas on my topic, I searched around for information and found a very useful book. If you are curious like me, this book has alot of answers for Celiac Disease and Gluten Intolerance. It's called Heathier Without Wheat. -
ARCHIVED I'm G.intolerant - Son Has Diarrhea
fripp017 replied to 2plustwins's topic in Parents, Friends and Loved Ones of Celiacs
Hi. I know this is off topic to your question, but I was wondering how you were diagnosed with gluten-intolerance. My kids seem to be showing signs of gluten-intolerance and/or Celiac Disease. They are in the process of being tested, but the doctor practically ignores the idea of gluten-intolerance. I was just wondering what it took to get the diagnosis.... -
ARCHIVED Where Do I Start?
fripp017 replied to mum2 charlotte's topic in Parents, Friends and Loved Ones of Celiacs
LOL! Yes, there is ALOT of hidden gluten! Some research and lots of label reading. The one thing I dread the most now that I am on the gluten-free diet is grocery shopping. It used to just be in and out, but now I spend most of my time checking the labels. Hints that I can give you - stay away from foods/products with: monosodium glutamate (flavor for chips... -
ARCHIVED Just Diagnosed - Weight Loss?
fripp017 replied to LiveLoveLaugh3's topic in Related Issues & Disorders
Hi. From my experience, you will initially loose some of the wieght when your body starts to heal. It starts absorbing the right foods, you feel better and you can be more active. It only took me about 3 days to start getting up and moving around more. I had sevre abdoinal pain as my main symptom, on top of the extreme tiredness. I spent alot of my sick days... -
ARCHIVED Where Do I Start?
fripp017 replied to mum2 charlotte's topic in Parents, Friends and Loved Ones of Celiacs
Hi. My children are in the process of being diagnosed as well. Doctors are still getting used to the idea of Celiac Disease. They aren't really sure how to test for it, how to know anyone has it for sure until they are very, very sick. So, I would keep trying. If you want to switch her onto the diet to test it, I think it would be less overwhelming than you... -
ARCHIVED Celiac Vs Gluten Intolerance
fripp017 replied to fripp017's topic in Parents, Friends and Loved Ones of Celiacs
My daughter is 2. Her results were as follows: Gliadin Ab IgG - 35 (suggested results should be less than 11) Gliadin Ab IgA - <3 (suggested results should be less than 11) Tissue Transglutaminase Ab IgA - <3 (suggested results should be less than 5) My son is 4. His results were as follows: Gliadin Ab IgG -20 ((suggested results should be less... -
ARCHIVED Celiac Vs Gluten Intolerance
fripp017 posted a topic in Parents, Friends and Loved Ones of Celiacs
Both of my children had the Celiac blood test. The both had high levels of IGG but no real presence of the other antibodies. The GI specialist said that they are doing the full work-up because I have Celiac disease, but IGG antibodies are "non-specific" and could be an allergy to anything. I was just wondering and reaching out to the parents whose children... -
ARCHIVED What All Were You Tested For Before Celiac Diagnosis?
fripp017 replied to latteda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's kinda wierd, but mine all started with a visit to my ob/gyn. I spent a month or two in and out of that office and then in and out of my doctors office until the celiac panel was done. I was diagnosed with (and prematurely treated for) : miscarraige menstrual cycle cramps uterine infection PID Diverticulitus (sp?) Irritable Bowel... -
ARCHIVED I Need Support With My 3 Year Old!
fripp017 replied to sol's mom's topic in Parents, Friends and Loved Ones of Celiacs
Hi, I was just browsing through this post and the replies. I have Celiac Disease. My two children have been screened by blood tests and both have come back with positive results. I am in the process of getting them tested. My son is 4 and my daughter will be 2 in a week. I have looked online, aniticipating their results, and I have found a couple of cute...