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HelpinOhio

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Everything posted by HelpinOhio

  1. HelpinOhio
    You should read some of the other threads I have made explaining my whole experience and all that I had to go through for years. If I dont have Celiac Disease, Im pretty much all the way back at square 1 after having symptoms since before my 12th birthday (over 6 years now) and Ive been researching diseases for the past 1 1/2 years. I do have GI symptoms...
  2. HelpinOhio
    How accurate is an upper endoscopy in diagnosing Celiac Disease? Im a 18 year old male, my mom was diagnosed with Celiac Disease through an upper endoscopy about 30 years ago. Ive been eating gluten regularly for about 8 months now, and about 6 weeks ago I added 2-4 more pieces of bread per day. Im scheduled to have an upper endoscopy in about 2...
  3. HelpinOhio
    Your story is also very similar to mine. Im a guy and 18 years old though. You can read my other threads to see most of my story and all the things I had to go through. I started having bad problems a little before my 12th birthday and its been horrible ever since. Most of the time like living very sick in a fog, and sometimes like in a waking nightmare...
  4. HelpinOhio
    If you want to know my whole story look at the my other threads and the one in "coping with" discussion about losing my childhood. Anyways, I came to the conclusion that I do have Celiac Disease. My mom has Celiac Disease and I have many symptoms of it, Ive been researching what is wrong with me for 1 1/2 years now. I got the blood test twice about a...
  5. HelpinOhio
    I want to share with everyone what happened. So I got there, did the paperwork, saw nurse, etc. I made sure to bring a list of my symptoms and to also talk to them about all of my symptoms. The doctor came in, we talked for a while about what was going on. Although hes an expert and all, I silently disagreed with a lot of things he said. He doesnt...
  6. HelpinOhio
    Although the noticeably bad symptoms started at age 12, and the worst at 16, Im considering that Ive had symptoms of Celiac Disease my entire life. Now that I think about it, I was never really normal or all the way healthy. There was always something just a little off about me my whole life and others noticed it. It was bearable until I was 12, but from...
  7. HelpinOhio
    I have to remind everyone that Im still going through the bad part right now. Ive been eating +4 pieces of bread daily along with whatever gluten I normally eat for over the past month, and I feel horrible. Ive also been eating gluten regularly for the past maybe 8 months. Im still going through this, but it should be over soon enough. Ive had bad symptoms...
  8. HelpinOhio
    Thank you all for the replys. I feel a little bit better now after hearing these. They say the average time for having Celiac Disease before being diagnosed is 11 years, so Im actually less than that. Im glad I found it this early in my life instead of having to deal with all of this until Im a lot older. Im still a little frustrated that I didnt know...
  9. HelpinOhio
    Im very frustrated and sad right now. Almost my entire childhood was ruined and lost because of Celiac Disease. Its like none of it ever happened. I had a mystery illness this whole time, and nobody could ever figure out what it was until I did it now. Im a guy 18 years old, and although thats young, I cant believe Im this old already. The last clear...
  10. HelpinOhio
    I have my 1st appointment with a GI Specialist in a few days. Im somewhat anxious about it. Anyways I have some questions about all of this for anyone that knows: 1. Can I ask the GI Specialist specifically that I want an endoscopy done, checking for damaged Villi caused by Celiac Disease? Will the GI Specialist agree to have an endoscopy done? 2...
  11. HelpinOhio
    Thanks for the replys. Im sorry that I didnt specify a few things. I have been eating gluten for the past 8 months, and have added +4 pieces of bread daily to my diet nearly a month ago. I have an appointment with a GI in a few days. I was aware you had to eat gluten, so thats why I started doing it. I will most likely get the endoscopy done, and...
  12. HelpinOhio
    Im new to Celiac Disease, and have yet to be diagnosed, but at this point Im 99% sure that I have it. Im a guy 18 years old, have had horrible symptoms for 3 years, bad symptoms for 7 years, and possibly symptoms throughout my whole life. Ive been researching whats wrong with me for the past 1 1/2 years, and long story short, everything leads right to Celiac...
  13. HelpinOhio
    I cant remember if Ive been tested for Lupus or not. I was tested for several other auto immune diseases like Rheumatoid though, and everything came back negative. A lot of my symptoms do sound like Lupus, thats why I was considering it. There are reasons why I doubt that I have it though. One, I have no family history of Lupus. and Two, Im a 18 year...
  14. HelpinOhio
    Ive made several other threads in here, but I wanted everyone to see all my symptoms and what you think of them. At this point I havent had the positive diagnosis yet, but am going to get another test at the end of the month, and Im now 90% sure that I do have Celiac Disease. My mom has it and everything leads right back to Celiac Disease. When I went...
  15. HelpinOhio
    Im 18 years old and suspect that I have Celiac. About a year ago my mom told me that she was diagnosed with Celiac Disease when she was younger. Possibly around 25 years ago. Her main problem was just the stereotypical Celiac Disease symptoms, Diarrhea whenever she ate gluten and stomach pains. When my mom got older she started eating gluten again...
  16. HelpinOhio
    Well its been settled now that I am getting tested again at the end of this month. Im seeing a GI for a possible Endoscopy and then Im asking to get the blood tests done again because they should come back correct now. Whether that be positive or negative. Either way after all this is done I should be going gluten free again. I figure I might as well...
  17. HelpinOhio
    Will they allow me to get tested for Celiac Disease even if Ive already been tested twice? As I mentioned in my other threads, I was 90% gluten free for a few months before both of the previous tests for Celiac Disease. Nobody told me that I had to eat additional gluten before the tests for 2-6 weeks. I hadnt eaten any before the 1st test, and only for...
  18. HelpinOhio
    Again, thank you for the replys. Ill be making posts on this site occasionally for a while to keep everyone up to date and to ask any questions that I have, and I do have a lot of questions. It seems that even though Celiac Disease (or whatever I have) basically took 7+ years of my life away, it could have been a lot worse. Of course I wish I would have...
  19. HelpinOhio
    Thank you both for the responses, and I hope to get some more replys. My decision as of right now is to continue eating an increased amount of gluten/wheat for the next couple weeks, then Im going to get another blood test for it, and whatever other tests they have for Celiac Disease. Ive been eating a few gluten products everyday for the past 3 months...
  20. HelpinOhio
    Im a 18 year old male. Im not sure if I have Celiac Disease, but my mom does have Celiac Disease. Ive been having a lot of problems for the past 7 years now, especially the last 2 years. I was tested for a lot of things and they all came back negative. They said I had some type of mental disorder like Depression/Anxiety. I do have mental symptoms,...
  21. HelpinOhio
    Thx for replying. I got blood tests done 2 separate times. Im not sure how I did on them, but the doctors said they showed I didnt have Celiac Disease. I was skeptical about that validity of that because I made a mistake in my eating patterns. I didnt know much about the tests until after the 2nd time. Now I hear your supposed to eat a good amount of...
  22. HelpinOhio
    Im a 18 year old male. Ive been tested for Celiac Disease twice and supposedly tested negative both times. This is the problem though: I ate bread rarely for over a year prior to the 1st test, gluten yes, but like pure wheat products like bread not really. I had heard I might have Celiac Disease before this, so before I took the 1st test, I had been...
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