Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

celiacprincess

Advanced Members
  • Posts

    7
  • Joined

  • Last visited

Contact Methods

  • Website URL
    http://
  • ICQ
    0

Profile Information

  • Gender
    Female

celiacprincess's Achievements

  1. May I suggest that you not even bother with a nutritionist but go see a dietitian? They are two different things - anyone can call themselves a nutritionist so be careful.

    This site:

    Open Original Shared Link

    looks helpful. There's even a dropdown box for specialty and Celiac disease is one of the choices . . .

    Oh, thanks so much, This site you gave me gave more information than my own search!! Wish me luck!

  2. What some others have said about getting bone density testing, full blood count and seeing a Celiac specialist dietician, I would echo. Especially the dietician. If they can show you what to look for on labels to know what you can eat rather than you being scared to eat anything, that is invaluable. You won't have to stick to buying only products labelled "gluten free".

    There is general acknowledgement that damage can be patchy, so I'm not sure that the amount of damage shown just in the small biopsies they took could be taken as representative. Also, severity of symptoms are not a reliable indicator of severity of damage to villi.

    Me too!

    I, too, was just diagnosed, and need to find a nutritionist. I am having difficulty finding one in my area using the web, any ideas?

  3. I was just diagnosed with possible "mild" celiac disease, whatever that means!! :huh: The diagnostics were the IgA against tTG, with high "weak positive" and biopsy showing "Possible Mild Celiac Sprue". I am trying to find a nutritionist familiar with celiac in the Minneapolis/St. Paul area, and wondered if that is even necessary. Any suggestions would be appreciated.

  4. I am curious what everyone's age here was at diagnosis. Whenever I heard of someone having Celiac before, I assumed they knew since they were babies. So, imagine my surprise when I found out at 36.

    Now, I know better.

    I was just diagnosed last week, thru blood test & biopsy at age 53. This was after I asked for the tests by reading up on my symptoms on the web. My gastro doc says I have a "mild" case, whatever that means!! I haven't started eliminating gluten yet, as we just returned from vacation and I'm trying to find a nutritionist familiar with celiac. ;)

×
×
  • Create New...