Jump to content

RoseRobin

Advanced Members
 View Profile  See their activity

  • Posts

    21

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RoseRobin

  1. RoseRobin
    On one of my many internet searches re gluten/ celiac, I came across mention of supplemental gluten enzymes (eg, GlutenEase) which can be taken to help with the digestion of gluten. Is anyone familiar with these? Are they helpful for those who are just gluten sensitive, as opposed to those who are actually celiac? Or are they not of any significant help...
  2. RoseRobin
    The person who posted just above says she was able to diagnose celiac via the Enterolab test, along with diet, etc. Isn't the stool test more accurate than blood tests?
  3. RoseRobin
    Could you possibly help clarify what the value is of the Enterolab stool test? My son thinks his sinus issues worsen whenever he has wheat/ gluten, so he had the blood test for celiac, but it came back negative. However, it may have been a false negative as he may not have been back on gluten long enough (2 weeks after having largely, but not entirely, eliminated...
  4. RoseRobin
    I am confused! I thought that Enterolab promoted its stool test as being far more accurate than blood tests for celiac antibodies--ie, that such antibodies are more readily observable in a stool sample because damage shows up there sooner than it will be reflected in blood samples. According to them (or the dr who started Enterolab), by the time one can...
  5. RoseRobin
    Thanks for the information; that does help. I'm a a little surprised, though,a t your remarks that you do now sometimes eat gluten, perhaps twice amonth. I was udner the impression that those who are gluten intolerant or celiac must follow an absolutely gluten-free diet for the rest of their lives or risk intestinal, and perhaps other, damage. People...
  6. RoseRobin
    I've read about the stool testing done by Enterolab. Has anyone done this? Is it truly more accurate/ worth doing? Is it a difficult test to complete In terms of , ahem, awkwardness of acquiring the sample, etc)? Thanks.
  7. RoseRobin
    My son's test panel included: immunoglobulins IgG, IgA, IgM; IGE; celiac autoantibodies. Is that a good range of tests?
  8. RoseRobin
    Part of my concern about determining more accurately whether or not my son really is celiac or "just" gluten intolerant is: 1) if he is celiac,then the rest of us in the family could also be "silent" celiacs; how would we know if we are damaging our digestive systems too? 2) If my son thinks he just gluten intolerant, and occasionally "slips up" re...
  9. RoseRobin
    Thanks much for replying. Would you be willing to post again after getting results re your son? I just returned from an appointment for my son with the immunologist who ordered the celiac panel and iron anemia test. He (the dr) says my son's iron is perfect and he strongly believes that the negative celiac results are accurate (according to him, my son...
  10. RoseRobin
    My son had a CT scan which showed one polyp in a rear sinus, but the doctors say this would not cause his post-nasal drip. Why not? Also, I'm still confused on the gluten issue: it sounds as though even a tiny amount can cause symptoms if one is intolerant/ celaic BUT you have to eat a LARGE amount for weeks for the antibodies to show up on the test...
  11. RoseRobin
    Thanks for replying. May I ask what made you get tested yourself for celiac, and why you then had your son tested? Was that because you were positive? By "these same symptoms," do you mean the post nasal drip and congestion?
  12. RoseRobin
    I'm still not really clear-- are you saying that the period during which my son ate "some" gluten would "count" towards the time in preparing for the antibody test, or that only the two weeks when he ate more gluten would "count", and that that was not enough time? Did your aunt have other symptoms as well, or only the post-nasal drip? Was that what...
  13. RoseRobin
    So that is not very discouraging--I had been so hopeful,a nd so was my son. There is no way is going to go back to eating a gluten filled diet for 6 weeks just to be tested again and perhaps still have negative results. Why this concerns me so much is the possibility that he may have intestinal damage and we would not know how serious it is; and also that...
  14. RoseRobin

    ARCHIVED Help!

    RoseRobin replied to frecOregon's topic in Board/Forum Technical Help

    Thank you--Right after I sent you the message, my son pointed out exactly that information to me (that only I could see the private info while logged in). I apologize for the misunderstanding.
  15. RoseRobin
    My son received negative results to his blood tests, but we are still unclear about whether or not he could be celiac, as he had tried going gluten free for several months and then went back on gluten for only two weeks before the test. I'm wondering if we should try to get an intestinal biopsy done--or would that be pointless now that he has been back on...
  16. RoseRobin

    ARCHIVED Help!

    RoseRobin replied to frecOregon's topic in Board/Forum Technical Help

    I was appalled to find all my personal information displayed on my public profile. I thought when I signed up that this would only go to the board administrator. I cannot seem to edit it/ remove it. Please let me know how I can alter this.
  17. RoseRobin
    It was the skin prick tests; he also had "delayed" blood tests for dairy, wheat, and egg (all negative). How would I get the doctors to administer an injection allergy test?
  18. RoseRobin
    My 16 year old son has been suffering from chronic sinus issues/ congestion/ drip for almost 3 years. Allergy testing and GERD testing have turned out negative. He believes that the symptoms worsen when he eats gluten, so began cutting it out of his diet a few months ago, though not absolutely (ie, he would have a couple of meals a week that included some...
  19. RoseRobin
    I've come across the Enterolab site and am wondering what the process is for the stool testing and genetic testing. Does anyone know if Canadians can use their kits? Can you mail samples across the border? Thanks.
  20. RoseRobin
    Yes, he tried antihistamines and also steroidal nasal sprays with no relief.
  21. RoseRobin
    Hello, this is my first time posting. My 16 year old son has been suffering from chronic/ continuous post-nasal drip, congestion,and mucous in his throat for over two years. He has had two rounds of allergy testing (negative) and GERD testing (negative). He sees a chiropractor regularly. Thinking his symptoms might be related to dairy, he cut that out...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.