tfrankenberger

Our orthodontist wants to make impressions again, but now we've got the celiac diagnosis and nothing is going in my son's mouth without a thorough check! Anyone know anything about having to get impressions and makings sure the stuff they use is gluten free? They're calling the manufacturer of the product, Benco eluminate alginate but I can't find much...

We've made a few roadtrips where we had to stay in a hotel for a couple of days. What I did was prepare meals ahead of time that I could warm up in the microwave for us. We only have a family of three, so that may not work for you. We have not eaten out with our Celiac child in a year due to fear of cross contamination. We just do not feel it's worth...

Symptoms can and will continue until her intestines have healed. It is my understanding that the damage and inflamation in the intestine will keep the person from digesting anything well for a while. As healing progresses, symptoms should get better. This could take a few months.

Anyone have a doctor want to do a growth hormone defficiency test? This is a three hour test where they stimulate the pituitary gland and see if you're producing the growth hormone. My son has fallen underneath his growth curve. He's always been small (5th percentile). Since diagnosis last year of Celiac he has fallen to below all percentiles. I feel...

Anyone out there have a child on a gluten free diet who has now become unable to eat rice? My son has been on the gluten free diet for a year and we've still been dealing with many issues of nausea, heavy head, excess gas, etc. We've had so many tests run and the Celiac seems to be under control, and the doctor has no clue what's still causing the symptoms...

How many of you have dealt with or heard of fructose malabsorption along with Celiac Disease? After a year on the gluten free diet and many tests that revealed my son was healed and all levels were normal, etc., he was still experiencing regular nausea, excessive burping, and fuzzy or heavy head, and fatigue. After much of my own research, I came to see...

I try to vary all his grains and I keep a very detailed food journal. I don't give him straight corn because that's difficult to digest. When he has corn in things, like sprite or gluten-free cornbread, etc., he doesn't seem to have problems with it. I'm positive he is not sneaking food. He is extremely strict on himself and will avoid all possibilities...

What I mean by digestion issues is he will tell me his stomach is slightly upset and ask for Pepto or Tums. Sometimes that makes him feel better and sometimes it lingers until he goes to bed. There are nights he doesn't ask for anything, but he says he feels it most every night.

We have checked all those things. This week we're going to try switching his "dinner" meal to lunch and his lunch meal to dinner time. If he still has issues only at the same time of day, we may at least be able to say it's not the food. The only thing I do differently at dinner is make things with a bit more in them such as seasoning, vegetables, etc...

I am a mother of a teen with Celiac, so I thought I'd get some teen feed back on this. My 15 year old son has been gluten free for ten months and dairy and soy free for five months. He says that every night after dinner, within an hour, he still has issues. Most of the time they are minor and he doesn't even ask for pepto or anything like that. Sometimes...

For those of you who live in Georgia, or a neighboring state, I thought you'd want to know about a week long kids' camp for children with Celiac Disease. It is hosted by Camp Twin Lakes Will-A-Way in Winder, Georgia. It will be May 30 - June 4, 2010. In January you should be able to go to their website to find 2010 info. I went to a family camp for...

Do any of your Celiac kids take Prevacid along with a gluten free diet?

Yes, since July he has been soy free, nut free, and dairy free along with his gluten free status. We're also currently avoiding potatoes and tomatoes. I'm at the point now where if we can ever go to just gluten free then we will absolutely celebrate!!!!!!!!!!!!!!! Going dairy free has been the hardest next to the gluten. Pepto does work for him occasionally...

Yes, we totally took him off of all dairy as of end of July.

My son is 14 years old and has been gluten free for eight months. We've seen improvement and his doctor says he should definitely be healed by now. But he still has bouts of nausea and stomach discomfort. He belches a lot and they are long and deep ones. It's like he has a lot of gas build up or something. We keep a medicine log to see how often he takes...