I am still undiagnoised at this moment awaiting the 2nd biopsy to come back. All signs point to Celiac DH but nothing to confirm it yet. I figured that while I'm waiting for results, I would go gluten free to hopefully reap the benefits prior to dx.
I've been gluten free since Saturday (7 days) and not only is there zero improvement, it's still spreading. I know many have dealt with it longer but I think 2 months is just long enough.
I'm starting to get really frustrated and upset. My body is not my own anymore, it's on big itchy, ugly rash. I try to cover it up with clothing at work but it's summer in FL and I'd look stupid in a turtleneck. Besides that would cover my face would looks like I'm going through puberty worse than when I was a teenager.
So.....when will I even see a hint of an improvement? I go back to the dr. on Tuesday and if the results are negative again, I'm going to lose my mind. These are board certified, former Mayo drs. I don't want to be a medical mystery (which is what they called me last month).
How Long Before Even Slightest Improvement
in Dermatitis Herpetiformis
Posted
I am still undiagnoised at this moment awaiting the 2nd biopsy to come back. All signs point to Celiac DH but nothing to confirm it yet. I figured that while I'm waiting for results, I would go gluten free to hopefully reap the benefits prior to dx.
I've been gluten free since Saturday (7 days) and not only is there zero improvement, it's still spreading. I know many have dealt with it longer but I think 2 months is just long enough.
I'm starting to get really frustrated and upset. My body is not my own anymore, it's on big itchy, ugly rash. I try to cover it up with clothing at work but it's summer in FL and I'd look stupid in a turtleneck. Besides that would cover my face would looks like I'm going through puberty worse than when I was a teenager.
So.....when will I even see a hint of an improvement? I go back to the dr. on Tuesday and if the results are negative again, I'm going to lose my mind. These are board certified, former Mayo drs. I don't want to be a medical mystery (which is what they called me last month).