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Latest Celiac Disease News & Research:
Everything posted by Twiggy
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ARCHIVED Well,thats It Then....results Are In!
Twiggy replied to Twiggy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Dratt! I accidently glutened myself on tuesday and ive been payiong the price for the last 2 days......my tummy sounds like a cauldren.....ouch.My family need gass masks -
ARCHIVED Always Hot And Sweaty
Twiggy replied to Googles's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yeah on the occasion when i accidently ate gluten i had a blazing hot face and body.I am always hot but then again i do have a faulty body thermostat due to hypothyroidism you should have a test with your GP -
ARCHIVED Well,thats It Then....results Are In!
Twiggy replied to Twiggy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am actually amazed at the ammount of people who say to me ''oh i cant tolerate bread either'' it just goes to show how many people are affected even in a slight way by gluten -
ARCHIVED Well,thats It Then....results Are In!
Twiggy replied to Twiggy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks guy's i appreciate your replies -
ARCHIVED Well,thats It Then....results Are In!
Twiggy replied to Twiggy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks Rudi,i have to admit i share your wife's fear of gluten containing foods.I cant bear the smell of bread and the smell of cooking pasta either,maybe its a defence mechanism to keep me safe.Nothing tastes as good as i feel since ive stopped eating gluten (6 weeks ago) so i dont feel like i am missing out on anything.I do find it comforting though that... -
ARCHIVED Well,thats It Then....results Are In!
Twiggy posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
After nagative endomysil blood tests and negative gastroscopy results the doctor has diagnosed me as gluten intolerant.She advised me that like ceoliac patients i should avoid gluten like the plague.She admited that test results are not always accurate and said that if i wanted to repeat the test i would have to reintroduce gluten into my diet for the next... -
ARCHIVED Biocard - Anyone Tried This Home Test For Celiacs?
Twiggy replied to SuzyQ2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ive done 3 one positive and 2 negative.....i'm equally as baffled.my endomyosil test was negative.Im still waiting for my Gatroscopy results but gluten free is having a massive impact on me,i feel a tonne better in just 10 days. -
ARCHIVED Ive Been Gluten Free For Five Days......
Twiggy replied to Twiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the Link Fluffy it sums my rash up to a ''T'',i'm just going to continue with my gluten-free lifestyle regardless of a DX,i feel fab! -
ARCHIVED Ive Been Gluten Free For Five Days......
Twiggy replied to Twiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hmm,i feel too well to risk making myself ill again....i dont know what to do I dont know if i really do need a dignosis,i'm convinced i have DH so thats prob good enough and besides that,if i dont eat anymore gluten it wont be a problem in the future.I have noticed however that i seem to get upset and a washing-machine type tummy now when i have milk or... -
ARCHIVED Ive Been Gluten Free For Five Days......
Twiggy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have vast improvement in my symptoms already,the stomach pain has eased and the bloating is starting to go down.I have'nt got the results of my gut biopsy back yet but i was feeling so poorly that i thought i'd go gluten free for 7 days to see if i felt any better and i'm glad i did.There is just one thing thats bothering me though,i think ive had DH since... -
ARCHIVED Newbie - Celiac Symptoms?
Twiggy replied to zsf86's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi i am Hyopthyroid,i have been on levothyroxine for 6 years....sadly for me it looks like i have been a silent ceoliac since my teens (am 39 now)the road to recovery is generally slow for thyroid patients.I suffered all mannor of symptoms beore diagnosis of thyroid and i'm sure if my ceoliac was diagnosed all those years ago i wouldnt have sufferd at all... -
ARCHIVED Dh...does Anyone Have Pics?
Twiggy replied to Tabasco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I get it.....on hands,feet,back of neck,elbows and knees i also get acne rosacea on my face which is not the best look for getting the fellas attention.....lol(good job i already have one eh?)It has a stinging ''nettle rash'' kind of feeling and comes up as water filled blisters which then burst and scab over...immensly itchy too.I will seek a skin specialist... -
ARCHIVED Help! Do Mushrooms Bother Anyone?
Twiggy replied to oceangirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I cant digest mushrooms,they make an apearance again if you get what i mean(in my stool) -
ARCHIVED Pain After Endoscopy
Twiggy replied to jkr's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I felt a kind of tugging sensation and it felt tender immdiatley they took it,i think i must have had very little saliva that day cause the whole procedure seemed to be dry and tuggy in my pipes (for want of a better description ) the area of the biopsies felt a little tender for days after.I am still uncomfortabe today actually and its four days ago now... -
ARCHIVED Pain After Endoscopy
Twiggy replied to jkr's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had my Endoscopy yesterday,i have a sore throat today but i also have a dicky tummy.Yesterday i felt like i'd been booted in the belly by a horse it was really sore and bloated.I felt them taking the biopsy it was a strange sensation they took 5 in total..no wonder it feels sore.The doc said that i may have a sore throat for couple of days.its going to... -
ARCHIVED Foot Pain
Twiggy replied to guy220d's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My feet get unbelievably sore...nothing to see..just really tender.It feel likes the foots padding has worn away and im walking on bare bone.Also my toes and feet tingle like they coming round fron anathetic...like how your mouth feels after dental numbing...nerves are numbed.Ankle and achillies tendons are so stiff when i wake/have sat for a while that i... -
ARCHIVED Runny/congested Nose After Eating Gluten?
Twiggy replied to LadyCyclist87's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I get nasal problems too.I have a keane (split/tear in the skin) on my nostril and a sore inside of my nose and it drips constantly,it will be interesting to see if this goes away when i become gluten free...hmm? -
ARCHIVED Stools.....
Twiggy replied to Twiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes,answers would be great.I'd love to focous on something other than what my bowels are doing......lol -
Stool symptoms....are these symptoms familiar to anyone? I swing from passing partially digested food,thats easily identifiable to what went in a few hours before to hard dark tar smelling 'pebbles' bound together by a gluey stretchy mucous that can be any colour you like (mostly light cream or fawn).can anyone else relate to these bowel habbits? i still...
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ARCHIVED Endomyosil Autoantibodies
Twiggy replied to Twiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am covered in blisters now,knees elbows, feet and hands.my wrists and elbows are especialy sore.I hope the Gstro doc sees them on thursday and links the two together? I'm gluten free today and tomorrow cause i'm going away at the weekend and dont want to be ill/itchy or bloated.My lovely man i making me my first gluten free pizza for tonight's dinner,he... -
ARCHIVED Endomyosil Autoantibodies
Twiggy replied to Twiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for your reply Sam the reason i dont want to stop eating gluten before ive seen the gastro guy's is because every article ive read tells you not to as its important in order to not to get a false negative.I just want to do everyting by the book so that i can get well quicker and not have the teests hampered in any way.I have suffered this long and... -
ARCHIVED Endomyosil Autoantibodies
Twiggy replied to Twiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks folks!! I suppose i wil just have to 'wait it out' and hope the result will come in the end.i am a little ashamed to admit that at the tender age of 39 (tomorrow )i have still not learned the art of patience. Thanks for all your helpful input into this thread i really find it helpful to hear others opinions.x.x.x to you all -
ARCHIVED Endomyosil Autoantibodies
Twiggy replied to Twiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi everyone just back from my GP appointment.Endomysial Antibody blood test was negative,doc is refering me to a gastroenteroligist,i have an appt for 2 weeks time.The doc hinks i have the desease as i present with all the classic symptoms but wants me to have a Gut Biopsy to confirm.He seems to think that whatever the result i should refrain from gluten... -
ARCHIVED The Bloating Is So Bad! Please Reply Anyone
Twiggy replied to Raynee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi,sorry i dont have any advice for you but i couldnt red and not post.I am sorry you havent been able to concieve a baby,it would be heartbraking to think it could have been diferent with a diagnosis of coeliac i wish you well and hope you get to the bottom of your problems/symptoms (((((hugs to you)))))) -
ARCHIVED Endomyosil Autoantibodies
Twiggy replied to Twiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Guys,thanks for your input here.I'm just worried sick that its going to take months to get a diagnosis......patience isnt my strong point at the best of times