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flutegal64

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flutegal64 last won the day on February 3 2016

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  1. I've had issues with Chex so I'm going to say they are not safe. At first they were ok then I think now they aren't as careful as they were.
  2. A lot of over the counter medicines now are labeling things as gluten free... like Top Care brand labels if their medicines are gluten free. I notice the pharmacy medicines are the ones that won't claim they are gluten free or not. Anyway, I was just thinking Celiac is an autoimmune disease so...
  3. Do you have any diagnosis from a doctor? Weight loss like you are describing could signal a serious issue that you shouldn't be messing around with. You shouldn't be cutting out all of those foods without going to a doctor to figure out what is going on. A doctor would be doing testing to make...
  4. Keep looking for a GI doctor that you trust. Don't go back to someone you don't trust! I had a GI doctor who thought I had anxiety (I was a woman whose colonoscopy and endoscopy came back ok so I was crazy) and put me on highly addictive pain medicine without telling me... he told me to trust him...
  5. I had a lot of bad abdominal pain for at least 6 months. A few of the ER nurses told me to watch soy. I think they were on the right track because I ended up having a few other food intolerances besides gluten causing the pain. Food intolerances are tough to figure out. Could be anything, but...
  6. Buckwheat cereal is what I go to a lot. Oats may or may not be ok with you. If you go to a gluten free store there are lots of gluten free cereal options. Instead of cow's milk there is almond milk, coconut milk, rice milk, hemp milk, soy milk.
  7. It sounds like something else could be going on. I would have hoped the doctor would run a blood test for other vitamin deficiencies? A lot of people with Celiac are deficient in other vitamins. A lot of regular food is fortified with vitamins and most gluten free foods are not fortified with vitamins...
  8. Listen to your body. If it tells you your body doesn't react well to something then don't eat it. It could be gluten intolerance which is more common. If you have the extra money then why not get the genetic test (it's way cheaper than it used to be- I don't think it's $400 anymore like someone...
  9. Sometimes things like milk intolerance will go away after your gut heals. I would watch your diet and stay connected with a GI doctor... you never know if something else could be going on as well. There are other diseases associated with Celiac.
  10. Drugs can be frustrating! Your pharmacist should be able to call the manufacture. However, recently I've noticed the drug companies are being very mysterious in their responses. At best they will say there are no gluten containing ingredients. I've gotten sick on more and more medications recently...
  11. I noticed after I posted this that there are some topics about this posted before. There is a search function above. But, if anyone has anything new to post that would be appreciated.
  12. I have heard if you can't get comfortable you should go to the ER. How do you know nothing is serious with the organs? Have you had a CT or ultrasound or some scan? If you've never had a scan the ER might do a CT to confirm it's nothing serious. It depends on the ER doctor you get and what they...
  13. I've done the hospital thing. They won't do anything unless it's an emergency (like your heart rate is off, appendix, ruptured organ, gushing blood). They will give you pain meds (which will get you constipated a few days later making GI issues worse). But use your judgement. If you think it...
  14. I wouldn't eat anything by Quaker. I'd get rid of the Quaker rice cakes. Those big brands often has cross contamination issues. I stick with exclusive gluten free facilities. The Doctor situation is ridiculous... having to wait that long seems like the normal thing even if you are having excruciating...
  15. One of the things with weight loss is it could set off your gallbladder too. Some of your symptoms sound like gallbladder. Has your doctor tested for that yet? They can do a HIDA scan.