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linda-r

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by linda-r

  1. linda-r
    I am not an expert, but I thought Prometheus was considered to offer high quality testing for celiac. Perhaps their customer service can help you. Good luck!
  2. linda-r
    I think I do need to push her harder because I feel her health is at the tipping point. Even if she is not celiac she may be gluten intolerant which may cause continuing autoimmune issues. I may try for strict adherence for 6 or 8 weeks to see if the abdominal pain clears and the psoriasis improves. She can tolerate the pain, but the rash on her scalp...
  3. linda-r
    My 14 yr. old daughter complained of "tummy hurt" from age 4. She was diagnosed with GERD at age 8. She had an endoscopy 2 years ago that showed normal villi but demonstrated "mild reactive gastropathy". A diagnosis of irritable bowel was proposed. She started having episodes of Raynaud's at age 12. Six months ago she developed scalp psoriasis. She...
  4. linda-r
    Thank you all for your responses. I now feel more comfortable having the testing done.
  5. linda-r
    I am new here also, but advanced members have written that a gluten free trial should be three months. Good luck to you!
  6. linda-r
    Jestgar, Your statement implies that since the gene is only associated with celiac, and that the general populace has a 30% presence of these genes, then perhaps there is little risk of discrimination from insurance companies. Prometheus only runs the genetic test if all serologies are negative, so the presence of genetics alone may not carry a lot...
  7. linda-r
    I am wondering if maybe I should have the genetic portion done through Enterolab without using the insurance company. I could still have the serology tests done by Prometheus while still protecting her genetic privacy. I am going to ponder this for a while. Anyone else have any thoughts? Does Enterolab have a reputaion for reliable results?
  8. linda-r
    I finally got authorization from insurance for celiac serology and genetic testing for my daughter. Is there risk that insurance companies in the future may use her genetic profile to deny coverage or charge more for coverage? Has anyone had any experience or thoughts on this subject? I had previously posted that she had a negative biopsy, but although...
  9. linda-r
    Thank you for your responses. lizard00, I think you are giving excellent advice. I don't see the tTg IgG on her lab order sheet, although the AGA IgG is there. I may have to inquire about that test. Even if everything comes back negative, we will probably have her trial a gluten free diet for 3 months and see what happens. I think it would be hard to...
  10. linda-r
    I have read that IgA deficiency is a risk factor for both celiac and autoimmune disorders. My daughter is also IgA deficient, about half normal. I hope others have more info for you. Good luck!
  11. linda-r
    My teenage daughter has a 10 year history of acid reflux, GI pain, and a 2yr. history of occasional Raynaud-like symptoms. She had celiac serologies 3 yrs. ago by Quest. They were negative for the IgA markers, but she was IgA deficient (about 50% of normal). She will soon be retested by Prometheus Lab, which will be doing both the IgA makers and also Antigliadin...
  12. linda-r
    Her doctor ordered genetic and serologic testing for celiac. If they are negative, we will still give a gluten free diet a try for a couple months. It also would be interesting to contact an allergist about elimination diets.
  13. linda-r
    Thank you for your feedback. I will have to get more info about elimination diet. We are off to the dr. now! Sounds like the gene test is not an absolute answer.
  14. linda-r
    I have pretty much decided to try the gluten free diet regardless whether we do more blood tests or not. I am not going to put her through another endoscopy. She has a followup appointment today at GI clinic at the children's hospital. I have held off the diet change until after the appointment in case it is decided to pursue more testing. I am not sure...
  15. linda-r
    She is willing to do what it takes to feel better. The lack of definitive answers about why she feels lousy is scary for her. Also, she has already eliminated some sources of gluten because those foods make her ill, such as spaghetti. She eats a lot of fruit and vegetables, but they don't give her enough calories.
  16. linda-r
    Thanks for the reply. Your friend sure has similar symptoms. I am thinking that the main purpose of the genetic marker is to rule out celiac. I think we might try the gluten free diet even if more testing is not done.
  17. linda-r
    My 14 year old daughter has had chronic mild to moderate abdominal pain since she first stated "my tummy hurts" at the age of 4. She was diagnosed with acid reflux at 10, but continues with chronic pain despite treatment. She has repeatedly tested negative for H. pylori. She has also tested negative for Giardia, food allergies, Chron's and celiac Ab. ...
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