AngelaMH

Wow, what a predicament you're in. I'm sure you've already given his teacher the lowdown on "no gluten" and "nothing that touched gluten"; do you think she'll be vigilent enough to take care of things if you're not there? Otherwise, you could talk to the school principal and see if there's another administrator (nurse, guidance counselor, lunchroom lady...) that can be in the room to keep an eye on your son during the party. You could ask that they place a special emphasis on cleaning up after the party so that there's nothing left around that your son could get into.

As far as pizza goes, would your son be happy with something else to eat besides pizza? Or you could make his own personal pizza for him. We use Kinnickinnick frozen pizza crust...yum!

It's hard when kids are in school and they really have to be responsible for themselves around gluten, and they're around it all the time!, but it must be especially hard when your child is so young and doesn't fully understand all the consequences. Good Luck!

We seem to be taking a long and winding road toward a Celiac diagnosis, and sometimes I'm not sure we're on the right road? Did you have a complicated diagnosing process?

Our daughter has UC, since age 5, and she's done great with treatment; but then she began having stomach pains last October, and that's when we got this crazy path. Since then she's had 2 sets of bloodwork done, a Barium Xray, 3 endoscopies, and 2 colonoscopies: blood says positive for Celiac and positive for Chron's markers (though neither one is a firm diagnosis, they say), biopsies say "doesn't look like Celiac, looks more like Chron's" and "doesn't look like Chron's, can't tell if it's Celiac", Barium Xray showed Reflux which is being handled with Prilosec since last November and her stomach pain has GONE AWAY!! She is strong and healthy, continues to gain weight (is nearly 10, weighs 98 lbs, is 4'8"), and feels fine! Since all these tests have continued to be inconclusive, the doctor has now put her on a gluten-free diet for the next 3 months and then we'll do another endoscopy and see if her duodenum looks better. If so, then doc says it'll be a firm diagnosis of Celiac, if not then doc says it will be Chron's.

In the meantime, I'm watching a healthy, happy child and I can hardly believe that she has either of these possible conditions. What's your opinion: did we get lucky and catch this so early that she hasn't yet had any complications, or...what?

Her Ped GI is a leading DR in the South Florida area, and I have complete confidence in her, which serves to further confuse me.

I would love your feedback!