glutenmommy

Anyone care to reply?

This fall I had all the testing done -- EMA (Immunoglobulin A anti-endomysium antibodies) AGA (IgA anti-gliadin antibodies) DGP (Deamidated gliadin peptide antibody) tTGA (IgA anti-tissue transglutaminase) as well as upper endoscopy. Everything came back negative. Not even a trace of positive in the bloodwork. Every time I eat gluten (and I mean EVERY...

Kristy, I could have written your post! For the past two years I have exercised daily, eaten "clean" with tons of whole grains, fruits, veggies, etc. without ANY improvement in how I feel and shedding this 10 pounds of squishy bloat. In fact, the healthier I ate (lots of whole wheat, sprouted grains, spelt, barley, etc.) the sicker and more bloated I became...

All of my bloodwork came back normal on the complete celiac panel. I'm still waiting on the results of my endoscopy done last Friday, but my doctor said he didn't see any evidence of villi damage during the procedure. I haven't had ANY gluten since last Wednesday; ALL of my diarrhea is gone (usually 7-10 times per day! yuck), ALL of the gas and bloating...

Thanks to everyone for your thoughtful replies to my post so far. I always learn so much on this board! I can see that many people are already thinking about this issue. I am not diagnosed with celiac (nor do I think I actually have it based on most of my labwork) but I can tell you that I feel absolutely horrible when I eat gluten. Bloating, gas, edema...

...I'm just wondering, after reading Dr. Stephen Wangen's book Healthier Without Wheat, how you all arrived at the diagnosis of celiac. Celiac disease is a very specific subset of a larger intolerance known as Gluten Intolerance. Celiac is only diagnosed when you have villous atrophy; however many more millions of people have Non-celiac Gluten Intolerance...

I don't mean to sound harsh, but my feeling is who really cares if it's an "official" diagnosis? Your blood work has clearly indicated that you cannot tolerate gluten. Clearly it makes you feel sick when you ingest it, so the simple solution is to give it up. While it is important to know whether or not you have celiac disease (and in my opinion you do...

It's really not that difficult. Just order a salad with absolutely no added toppings -- croutons, imitation bacon bits, crumbled cheese of unknown origin. candied or caramelized nuts, dried fruit, etc. Ask for vegetables only and oil and vinegar and maybe some fresh lemon for your dressing. Then just tell your guests that you're having a light dinner because...

I really don't think you can get an accurate blood test result when you haven't been consuming gluten regularly. 2-3 days off of gluten might skew the results, and 2 months off of gluten would certainly skew the results! Even if you are regularly consuming gluten, the antibody tests can have as much as a 30% false negative result, according to my doctor...

Well, it certainly looks like mine! I have not been diagnosed yet, but I am having a skin biopsy done next week. Mine looks exactly like poison ivy and ONLY comes out when I eat gluten. In fact, I was misdiagnosed with poison ivy for years! (Honestly, who has poison ivy that lasts six months?!) My dermatologist is fairly certain that it's DH just by...

Don't forget to stock up the car with lots of nuts -- cashews, walnuts, peanuts, pistachios, etc. I try to buy unsalted and minimally processed ones at the health food store but you can find them in the regular grocery as well -- check the label carefully to be sure it isn't processed in a factory that also processes wheat. If you have room for a mini-cooler...

Can DH be mistaken for poison ivy? Or does it have a distinctly different presentation? For years, I've gotten a rash on my neck/face (usually on both sides). I've always just assumed it was poison ivy because we do have it growing in our yard. Suspiciously though, it seems like I would get it in other places if it truly was poison ivy, like on my hands...

Thanks for the replies so far. I wonder how many people get this and don't even know what it is. I can't tell you how many boxes of Monistat I bought thinking it must be a yeast infection...

Every time (and I mean EVERY!) I eat gluten, I break out in my anal/vaginal area (sorry -- TMI!!) with small clear, watery blisters that itch worse than poison ivy. It is the most painful rash I have ever experienced. I nearly go through the roof when I'm showering and the soap or water touches it, that's how painful it is. It only happens when I've...

Well, I don't get a runny nose, but I do get a lot of post-nasal drip down the back of my throat. Also, I usually experience a sharp pain and tightening in my throat (almost like when a cold virus is first lodging in your throat). All this followed by what I can only describe as a "diaper rash" and then I KNOW I've been glutened.