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glutenmommy

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by glutenmommy

  1. glutenmommy
    Anyone care to reply?
  2. glutenmommy
    This fall I had all the testing done -- EMA (Immunoglobulin A anti-endomysium antibodies) AGA (IgA anti-gliadin antibodies) DGP (Deamidated gliadin peptide antibody) tTGA (IgA anti-tissue transglutaminase) as well as upper endoscopy. Everything came back negative. Not even a trace of positive in the bloodwork. Every time I eat gluten (and I mean EVERY...
  3. glutenmommy
    Kristy, I could have written your post! For the past two years I have exercised daily, eaten "clean" with tons of whole grains, fruits, veggies, etc. without ANY improvement in how I feel and shedding this 10 pounds of squishy bloat. In fact, the healthier I ate (lots of whole wheat, sprouted grains, spelt, barley, etc.) the sicker and more bloated I became...
  4. glutenmommy
    All of my bloodwork came back normal on the complete celiac panel. I'm still waiting on the results of my endoscopy done last Friday, but my doctor said he didn't see any evidence of villi damage during the procedure. I haven't had ANY gluten since last Wednesday; ALL of my diarrhea is gone (usually 7-10 times per day! yuck), ALL of the gas and bloating...
  5. glutenmommy
    Thanks to everyone for your thoughtful replies to my post so far. I always learn so much on this board! I can see that many people are already thinking about this issue. I am not diagnosed with celiac (nor do I think I actually have it based on most of my labwork) but I can tell you that I feel absolutely horrible when I eat gluten. Bloating, gas, edema...
  6. glutenmommy
    ...I'm just wondering, after reading Dr. Stephen Wangen's book Healthier Without Wheat, how you all arrived at the diagnosis of celiac. Celiac disease is a very specific subset of a larger intolerance known as Gluten Intolerance. Celiac is only diagnosed when you have villous atrophy; however many more millions of people have Non-celiac Gluten Intolerance...
  7. glutenmommy
    I don't mean to sound harsh, but my feeling is who really cares if it's an "official" diagnosis? Your blood work has clearly indicated that you cannot tolerate gluten. Clearly it makes you feel sick when you ingest it, so the simple solution is to give it up. While it is important to know whether or not you have celiac disease (and in my opinion you do...
  8. glutenmommy
    It's really not that difficult. Just order a salad with absolutely no added toppings -- croutons, imitation bacon bits, crumbled cheese of unknown origin. candied or caramelized nuts, dried fruit, etc. Ask for vegetables only and oil and vinegar and maybe some fresh lemon for your dressing. Then just tell your guests that you're having a light dinner because...
  9. glutenmommy
    I really don't think you can get an accurate blood test result when you haven't been consuming gluten regularly. 2-3 days off of gluten might skew the results, and 2 months off of gluten would certainly skew the results! Even if you are regularly consuming gluten, the antibody tests can have as much as a 30% false negative result, according to my doctor...
  10. glutenmommy
    Well, it certainly looks like mine! I have not been diagnosed yet, but I am having a skin biopsy done next week. Mine looks exactly like poison ivy and ONLY comes out when I eat gluten. In fact, I was misdiagnosed with poison ivy for years! (Honestly, who has poison ivy that lasts six months?!) My dermatologist is fairly certain that it's DH just by...
  11. glutenmommy
    Don't forget to stock up the car with lots of nuts -- cashews, walnuts, peanuts, pistachios, etc. I try to buy unsalted and minimally processed ones at the health food store but you can find them in the regular grocery as well -- check the label carefully to be sure it isn't processed in a factory that also processes wheat. If you have room for a mini-cooler...
  12. glutenmommy
    Can DH be mistaken for poison ivy? Or does it have a distinctly different presentation? For years, I've gotten a rash on my neck/face (usually on both sides). I've always just assumed it was poison ivy because we do have it growing in our yard. Suspiciously though, it seems like I would get it in other places if it truly was poison ivy, like on my hands...
  13. glutenmommy
    Thanks for the replies so far. I wonder how many people get this and don't even know what it is. I can't tell you how many boxes of Monistat I bought thinking it must be a yeast infection...
  14. glutenmommy
    Every time (and I mean EVERY!) I eat gluten, I break out in my anal/vaginal area (sorry -- TMI!!) with small clear, watery blisters that itch worse than poison ivy. It is the most painful rash I have ever experienced. I nearly go through the roof when I'm showering and the soap or water touches it, that's how painful it is. It only happens when I've...
  15. glutenmommy
    Well, I don't get a runny nose, but I do get a lot of post-nasal drip down the back of my throat. Also, I usually experience a sharp pain and tightening in my throat (almost like when a cold virus is first lodging in your throat). All this followed by what I can only describe as a "diaper rash" and then I KNOW I've been glutened.
  16. glutenmommy
    Oh my gosh!!!!!!!!!!!! This makes perfect sense to me!! I really do think there is something to your family member's theory. After being gluten-free for more than a month, I accidentally ate a large dinner that I thought was gluten free (found out later it was not) but I experienced NO usual symptoms. I was beginning to think that this whole gluten thing...
  17. glutenmommy
    Thanks! It does sound suspiciously similar...
  18. glutenmommy
    Mindy, could I ask you a "personal" question? At the risk of revealing TMI (!) could you describe your rash (sorry!)? Because I suffer the same thing everytime I ingest gluten and the doctor keeps labeling it "pruritis ani" which is kind of a catchall term for itchy *utt! I'm getting SO frustrated because I keep explaining that it ONLY happens when...
  19. glutenmommy
    Dr. Petersen... thank you so much for your very informative reply. What a goldmine of information! I have never heard of IEL nor even stumbled upon it in my COUNTLESS hours of reading about gluten intolerance. I am married to a physician and he tells me the same thing you said -- that it takes as many as fifteen years for research to finally become assimilated...
  20. glutenmommy
    Neesee... thank you for that very informative article.
  21. glutenmommy
    Thank you so much for the explanation!
  22. glutenmommy
    Thanks for the replies so far! A firm diagnosis really isn't that important to me except for the fact that I have children and want to know the likelihood that they could develop this disease IF I have it. And also the fact that I am married to a physician who doesn't take any of this too seriously without firm scientific evidence . I realize...
  23. glutenmommy
    Well, since I have been gluten-free for nearly a month I'm not sure how accurate that test would be. I've heard the intestines begin to heal within days of going gluten-free.
  24. glutenmommy
    Every single post says pinned -- not sure why? And also, the new post that I just put up on the "Testing" board doesn't show up when I click on the board, but it DOES show up on the main forums page (in the right-hand column as the latest post). In other words, I am unable to find my post when I click on the "Testing" board. Help! What am I missing?
  25. glutenmommy
    Hi Everyone! Great site. I would really appreciate some input as to what I should do next. I have long suspected some type of food allergy/intolerance due to the following symptoms: hugely distended abdomen after eating, bloated/puffy all the time, shortness of breath, excessive gas and burping, diarrhea, and a constant rash/itching in my "private...
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